1. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA updated her profile picture

  2. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA updated the condition RA (Rheumatoid Arthritis)

    • First symptom:
    • Diagnosis:
  3. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA updated her basic information

  4. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA updated her bio

    Been fighting RA for over 25 years and have been on steroids all 25. Live on a small (10 acre) walnut ranchette in rural Durham, northern CA. Used to have all sorts of livestock, but we are now down to 3 lady cats. I worked for many years as a medical biller and miss it very much as my dr will not let me go back to work. My main hobby is genealogy.

    I have a small consulting business (me!) and have taught medical billing to companies wishing to start up DME & HME businesses. I have 5 adult children: a son (who is engaged to a wonderful young lady!) and step daughter born in 1984,  step son (both parents deceased) and daughter both born in 1985, her husband born in 1982, step daughter born in 1987. I started in genealogy because I am an adoptee who has found her birthfamily and just kept looking! I have done some consulting work in genealogy as well, but prefer to help folks for free as many have done for me.

    I have tried gold shots, Humira, methotrexate, Enbrel, plaquenil and Remicade, Arava, etc. Remicade was the most effective treatment for me and I hope to convince my rheumatologist to put me back on it. I am currently on Simponi Aria and it seems to have some limited effectiveness! have been blessed with excellent insurance thru my husband's employer (St of CA) and have had 3 wonderful rheumatologists along the way. I have had a GP that is willing to listen and try new things as I have developed Degenerative Joint and Disc Disease esp in my top 4 or 5 vertebrae. They have deteriorated to the point that surgery to fuse them is no longer possible. Obviously, this causes a lot of pain, most of which I have simply learned to live with although I do have fentanyl patches and oxycodone for breakthrough pain. In late 2012 I had a heart attack that required the implantation of a pacemaker which helps enormously. Following the heart attack, I had a stroke which has cause some memory loss although I have recovered almost completely from it. I do walk with a cane, mostly for balance. I have broken my nose 3 different times in my life and had 2 repair surgeries for it. It seems my kidneys have gone south on me, probably due to all of the medications. I have acquired a kidney specialist due to my continuing stage 3 kidney disease. I also have Fibromyalgia. I have developed some dental problems, partly due to my birthmother's having taken Tetracycline when she was 4 months pregnant with me. I am also allergic to Tetracycline and extremely sensitive to penicillin. I have a complete plate on the bottom, but hate to wear it (excellent dentist!) and have been undergoing tooth removal followed by implantation on my upper jaw. The last round of dental surgery was the worst as my tooth roots had been very far up in the jaw and sinus cavities and became infected. While I wait for my dr to return from vacation, I have been just living with the pain. Ask me anything and I will try to answer! I am very open to all questions and discussions, but you may find me VERY protective of my kids and 4 senior lady cats! (ages 17, 16, 11, and not sure). My daughter and cats are VERY protective of me (I call them my herd of pit bulls!) and as my daughter is also in the medical industry, she keeps up with my medical issues for me. She is a TRUE blessing as are all of my kids and cats!

  5. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA was feeling good

    My husband was out of town (and will be until Wed afternoon) on another job he works at occasionally. He tends to start drinking and get mean to me most days and I'm tired of it. My new arthritis meds, Simponi-Aria, seem to be finally working well. I couldn't notice any difference the first 2 infusions, but this past week right before my infusion I noticed I was having more trouble than I had been and was more tired and having more joint problems. Those problems all went away right after I had my 1/2 hour infusion, even though the nurse had an awful time getting a vein to work. I worked out in the back field today, going over the leftover English walnuts that our farmer who takes care of them missed during harvest, There are always some left after harvest and it's not his fault, but I like to pick them up and make some glazed walnuts for my hubby who loves them and send some to various relatives who don't get any elsewhere.

  6. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA was feeling bad for

  7. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA updated the condition Carpal Tunnel Syndrome

    • First symptom:
    • Diagnosis:

    Have had Carpal Tunnel for years. It got very bad while I was in college 1994-1995. In recent years I have developed tingling and numbness in different parts of my hands. Sometimes I feel pressure too. Former Rheumatologist suggested wrist splints or braces at night. They work wonderfully, except on the numbness.

  8. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Simponi

    • Perceived effectiveness for RA (Rheumatoid Arthritis): Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: A little
    • Dosage: 50 mg/0.5 mL Every 8 Weeks
    • Cost: < $25 monthly
  9. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA completed the QOL survey

  10. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Zolpidem from

    • Perceived effectiveness for Difficulty sleeping through night: Moderate
    • Side Effects: Severe
    • Adherence: Always
    • Burden: A little
    • Dosage: 10 mg Daily
    • Advice & Tips: Made me virtually comatose.
    • Cost: < $25 monthly
    Made me virtually comatose.
  11. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Promethazine from

    • Perceived effectiveness for Nausea and vomiting: Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: A little
    • Dosage: As needed
    • Cost: < $25 monthly
  12. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Propranolol from

    • Perceived effectiveness for Tremor(s): Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: A little
    • Dosage: 10 mg Daily
    • Cost: < $25 monthly
  13. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Metformin ER from

    • Perceived effectiveness for Diabetes Type 2: Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: A little
    • Dosage: 500 mg Daily
    • Cost: < $25 monthly
  14. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Furosemide from

    • Perceived effectiveness for Edema (fluid retention): Moderate
    • Side Effects: Severe
    • Adherence: Always
    • Burden: A little
    • Dosage: As needed
    • Advice & Tips: Caused dehydration which became so bad I was hospitalized overnight for it.
    • Cost: < $25 monthly
    Caused dehydration which became so bad I was hospitalized overnight for it.
  15. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Wellbutrin SR from

    • Perceived effectiveness for Generalized Anxiety Disorder: Moderate
    • Perceived effectiveness for Major Depressive Disorder: Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: A little
    • Dosage: 225 mg Daily
    • Advice & Tips: Doctor was reworking my meds.
    • Cost: < $25 monthly
    Doctor was reworking my meds.
  16. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA added a treatment evaluation for Abilify from

    • Perceived effectiveness for Treat my mood condition(s): Moderate
    • Perceived effectiveness for Depressed mood: Moderate
    • Perceived effectiveness for Generalized Anxiety Disorder: Moderate
    • Side Effects: Severe
    • Adherence: Always
    • Burden: A little
    • Dosage: 5 mg Daily
    • Advice & Tips: Side effects included uncontrollable physical movements.
    • Cost: $25-49 monthly
    Side effects included uncontrollable physical movements.
  17. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA updated her weight

  18. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA updated her symptoms

    Arthritis pain BetterArthritis pain, Depressed mood, Excessive thirst (polydipsia), Fatigue, Heat intolerance See more
    Palpitations WorsePalpitations, Persistent worry, Urinary frequency
    moderate ModerateNervousness
    mild MildDehydration, Drowsiness
  19. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA shared details about Simponi

    Dosage50 mg/0.5 mL every 8 weeks (starting )
  20. 34004 thumb
    25yrRA
    Data Quality: 1 star
    • Sex: F
    • Age: 53
    Condition: RA (Rheumatoid Arthritis) 11 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Mild
    I am: g
    I have:
    RA (Rheumatoid Arthritis)

    25yrRA shared details about Zolpidem

    Stopped
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