ciachef's Journal

ciachef: Sex: M; Data Quality: 2 stars; MS: 10 yrs; Type: Relapsing-Remitting; Sensation: Moderate; Overall: Moderate; Cognition: moderate; Vision: moderate; Speech: moderate; Swallowing: moderate; Upper limb: moderate; Walking: moderate

ciachef: Male, 32 years; Glen Burnie, MD

Primary Condition: MS

Type: Relapsing-Remitting

First symptom: May 2003
Diagnosis: May 2003

ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

2 stars
ciachef earned a star! Apr 29, 2013
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

1 star
ciachef lost a star Apr 28, 2013
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

2 stars
ciachef earned a star! Apr 28, 2013
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

1 star
ciachef lost a star Jun 20, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

205 lb BMI: 28.6
ciachef updated his weight for Apr 29, 2012 Apr 29, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
QOL
- Bad Social
- Worst Mental
- Good Physical
ciachef completed the QOL survey for Apr 29, 2012 Apr 29, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
MSRS: 57
- Mild Cognition
- Mild Vision
- Mild Speech
- Mild Swallowing
- Moderate Upper Limb
- Moderate Walking
- Mild Sensation
ciachef completed the MSRS survey for Apr 29, 2012 Apr 29, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
Symptom Update
- severe Mood swings
- mild Insomnia
- severe Depressed mood
- moderate Excessive daytime sleepiness (somnolence)
- moderate Brain fog
- moderate Relapse MS (exacerbation)
- moderate Stiffness/Spasticity
- moderate Pain
- moderate Fatigue
- severe Emotional lability
- moderate Anxious mood
- none Bladder problems
- none Bowel problems
- none Sexual dysfunction
- See more
ciachef updated his symptoms for Apr 29, 2012 Apr 29, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

Neutral
ciachef added an InstantMe for Apr 5, 2012 Apr 05, 2012 12:43PM

still some residual weakness in my extremities, but better than I was
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
QOL
- Good Social
- Bad Mental
- Good Physical
ciachef completed the QOL survey for Apr 5, 2012 Apr 05, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
MSRS: 46
- Moderate Cognition
- Mild Vision
- Mild Speech
- None Swallowing
- Mild Upper Limb
- Mild Walking
- None Sensation
ciachef completed the MSRS survey for Apr 5, 2012 Apr 05, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

Bad
ciachef added an InstantMe for Mar 22, 2012 Mar 22, 2012 5:21AM

Mid relapse and I don't know when this one is going to end, or what I am getting back. Couldn't speak as of yesterday haven't tried yet today.
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
Natalizumab Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): Major
- Side Effects: None
- Adherence: Always
- Burden: Somewhat
Advice & Tips

I really hated coming off of this drug. Some of my MRI's actually showed repair to my system. In the end the risk of PML got to be too great and I had to stop, but man, what a great treatment.

Cost

< $25 monthly

ciachef added a treatment evaluation for Natalizumab Mar 22, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
Stopped: Natalizumab
- Stopped: Jan 10, 2012
- Reason: Doctor's advice
ciachef stopped taking the treatment Natalizumab Mar 22, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS

198 lb BMI: 27.6
ciachef updated his weight for Mar 22, 2012 Mar 22, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
QOL
- Good Social
- Bad Mental
- Good Physical
ciachef completed the QOL survey for Mar 22, 2012 Mar 22, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
MSRS: 64
- Moderate Cognition
- Mild Vision
- Moderate Speech
- Moderate Swallowing
- Moderate Upper Limb
- Mild Walking
- Mild Sensation
ciachef completed the MSRS survey for Mar 22, 2012 Mar 22, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
Baclofen Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): Slight
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
Advice & Tips

For spazticity overnight not a bad drug, but I found ways around taking another pill by stretching before bed and eating better.

Cost

< $25 monthly

ciachef added a treatment evaluation for Baclofen from Mar 21, 2012 Mar 22, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
Stopped: Baclofen
- Stopped: Jul 1, 2006
- Reason: Did not seem to work
ciachef stopped taking the treatment Baclofen Mar 22, 2012
ciachef

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: n

I have:
MS
Stopped: Baclofen
- Stopped: Jul 1, 2011
- Reason: Did not seem to work
ciachef stopped taking the treatment Baclofen Mar 22, 2012
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