1. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef updated his weight

  2. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef completed the QOL survey

  3. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef completed the MSRS survey

    • MSRS: 57
    • Mild disability but not requiring help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Mild disability but not requiring help from others Speech
    • Mild disability but not requiring help from others Swallowing
    • Moderate disability that requires some help from others Upper limb
    • Moderate disability that requires some help from others Walking
    • Mild disability but not requiring help from others Sensation
  4. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef updated his symptoms

    Insomnia BetterInsomnia
    Depressed mood WorseDepressed mood, Pain, Fatigue, Emotional lability
    moderate ModerateRelapse MS (exacerbation)
  5. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef was feeling neutral

    still some residual weakness in my extremities, but better than I was

  6. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef completed the QOL survey

  7. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef completed the MSRS survey

    • MSRS: 46
    • Moderate disability that requires some help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Mild disability but not requiring help from others Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Aware of symptoms but no functional disability Sensation
  8. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef was feeling bad

    Mid relapse and I don't know when this one is going to end, or what I am getting back. Couldn't speak as of yesterday haven't tried yet today.

  9. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef added a treatment evaluation for Natalizumab

    • Perceived effectiveness for Multiple Sclerosis: Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Somewhat
    • Advice & Tips: I really hated coming off of this drug. Some of my MRI's actually showed repair to my system. In the end the risk of PML got to be too great and I had to stop, but man, what a great treatment.
    • Cost: < $25 monthly
    I really hated coming off of this drug. Some of my MRI's actually showed repair to my system. In the end the risk of PML got to be too great and I had to stop, but man, what a great treatment.
  10. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Stopped Natalizumab

    • Stopped:
    • Reasons: Doctor's advice
  11. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef updated his weight

  12. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef completed the QOL survey

  13. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef completed the MSRS survey

    • MSRS: 64
    • Moderate disability that requires some help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Moderate disability that requires some help from others Speech
    • Moderate disability that requires some help from others Swallowing
    • Moderate disability that requires some help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Mild disability but not requiring help from others Sensation
  14. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef added a treatment evaluation for Baclofen from

    • Perceived effectiveness for Multiple Sclerosis: Slight
    • Side Effects: None
    • Adherence: Usually
    • Burden: Not at all
    • Advice & Tips: For spazticity overnight not a bad drug, but I found ways around taking another pill by stretching before bed and eating better.
    • Cost: < $25 monthly
    For spazticity overnight not a bad drug, but I found ways around taking another pill by stretching before bed and eating better.
  15. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Stopped Baclofen

    • Stopped:
    • Reasons: Did not seem to work
  16. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    Stopped Baclofen

    • Stopped:
    • Reasons: Did not seem to work
  17. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef shared details about Natalizumab

    Stopped
  18. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef was in the hospital for Relapse MS (exacerbation)

    Date
    -
  19. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef shared details about Baclofen

    Stopped
  20. Portrait default thumb
    ciachef
    Sex: M
    Data Quality: 2 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    ciachef updated his symptoms

    Excessive daytime sleepiness (somnolence) BetterExcessive daytime sleepiness (somnolence), Anxious mood, Depressed mood, Fatigue
    Mood swings WorseMood swings
  21. Show more