tmmjclole's Journal

tmmjclole: Sex: F; Data Quality: 2 stars; MS: 4 yrs; Type: Relapsing-Remitting; Sensation: Moderate; Overall: Moderate; Cognition: moderate; Vision: mild; Speech: mild; Swallowing: moderate; Upper limb: moderate; Walking: moderate

tmmjclole: Female, 56 years; tinley park, IL

Primary Condition: MS and 4 more ▼
Type: Relapsing-Remitting
First symptom: Sep 2007
Diagnosis: May 2008

2 stars
tmmjclole lost a star • May 25, 2012
Nice work! One more star and you get a PLM t-shirt!
New evaluation

Mycophenolate Treatment Evaluation
- Efficacy for Antiphospholipid Antibody Syndrome: Slight
- Side Effects: None
- Adherence: Always
- Burden: A little
tmmjclole added a treatment evaluation for Mycophenolate from Apr 10, 2012 • Apr 16, 2012
Stopped treatment

Mycophenolate
- Stopped: Apr 10, 2012
- Reason: Expense
tmmjclole stopped taking the treatment Mycophenolate • Apr 16, 2012
What else would you like to share about stopping this treatment?
Added

Symptom Update
- mild Relapse MS (exacerbation)
- moderate Pain
- moderate Numbness in hands
- mild Memory lapses (brain blinks)
- moderate Joint stiffness
- severe Excessive daytime sleepiness (somnolence)
- mild Weakness in arms
- moderate Stiffness/Spasticity
- severe Pain in lower back
- mild Mood swings
- moderate Heat intolerance
- moderate Allergies
- severe Sexual dysfunction
- moderate Neck pain
- moderate Muscle twitching (fasciculations)
- moderate Heavy sensation in legs
- moderate Depressed mood
- mild Pneumonia symptoms
- severe Pain in shoulders
- severe Insomnia
- moderate High Cholesterol
- mild Bowel problems
- mild Blurry vision
- moderate Awakening due to pain
- severe Weight gain
- moderate Joint pain
- mild Inability to name objects (anomia)
- none Elevated blood pressure
- mild Bladder problems
- moderate Weakness in legs
- severe Restless feeling in legs
- moderate Numbness and Tingling with Pins and Needles
- mild Loss of coordination
- severe Difficulty sleeping through night
- severe Back pain
- moderate Walking slower
- moderate Walking problems
- moderate Pins and needles in feet and legs
- moderate Muscle spasms in back
- mild Brain fog
- none Trigeminal neuralgia (trigeminal nerve pain)
- mild Loss of balance
- mild Head Tingling
- mild Headaches
- mild Eye pain
- mild Cold intolerance
- moderate Asthma
- severe Acid reflux
- mild Swallowing difficulty (dysphagia)
- moderate Muscle and joint pain
- moderate Dry skin
- mild Double vision (diplopia)
- mild Balance problems
- moderate Anxious mood
- moderate Lose train of thought
- mild Lethargy
- moderate Emotional lability
- mild Cramps in feet
- mild Burning sensation in skin
- mild Word fishing
- moderate Muscle spasms
- severe Fatigue
- none Dry eyes
- mild Dizziness
- See more
tmmjclole updated heryour symptoms for Apr 16, 2012 • Apr 16, 2012
What else would you like to share about these symptoms?
tmmjclole updated heryour basic information • Apr 16, 2012
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tmmjclole updated heryour profile picture • Apr 16, 2012
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Hospitalization

Pneumonia
- Admitted: Mar 12, 2012
- Discharged: Mar 15, 2012
tmmjclole added a hospitalization for Pneumonia • Apr 16, 2012
What else would you like to share about this hospitalization?
Added condition

Pneumonia
- First symptom: ?
- Diagnosis: ?
tmmjclole updated the condition Pneumonia • Apr 16, 2012
What else would you like to share about 'Pneumonia'?
Added treatment

Mycophenolate
- Started: Sep 16, 2011
- Dosage: 2000 mg daily
- Purpose: Antiphospholipid Antibody Syndrome
tmmjclole added the treatment Mycophenolate • Apr 16, 2012
What else would you like to share about this treatment?
Weight

275 lb

BMI

50.3
tmmjclole updated heryour weight for Feb 25, 2012 • Feb 25, 2012
Is there anything in particular that influenced this weight decrease?
Updated outcome

QOL
- Good Social
- Bad Mental
- Good Physical
tmmjclole completed the QOL survey for Feb 25, 2012 • Feb 25, 2012
Your Quality of Life is improving! What sort of things are making it better?
PFRS

35
- Most Fatigue
- Most Sleep
- Most Stiffness
- Most Pain
- Severe External Stress
tmmjclole completed the PFRS survey for Feb 25, 2012 • Feb 25, 2012
What sort of things are making your Fibromyalgia symptoms worse?
MSRS

50
- Mild Cognition
- None Vision
- None Speech
- Mild Swallowing
- Mild Upper Limb
- Moderate Walking
- Moderate Sensation
tmmjclole completed the MSRS survey for Feb 25, 2012 • Feb 25, 2012
Congratulations, your MSRS is lower. What sort of things are helping your MS symptoms?
Added

Symptom Update
- none Relapse MS (exacerbation)
- moderate Pain
- moderate Numbness in hands
- mild Memory lapses (brain blinks)
- moderate Joint stiffness
- none Excessive daytime sleepiness (somnolence)
- moderate Weakness in arms
- moderate Stiffness/Spasticity
- mild Pain in lower back
- mild Mood swings
- none Heat intolerance
- severe Allergies
- severe Sexual dysfunction
- moderate Neck pain
- moderate Muscle twitching (fasciculations)
- mild Heavy sensation in legs
- moderate Depressed mood
- moderate Pain in shoulders
- moderate Insomnia
- mild High Cholesterol
- mild Bowel problems
- none Blurry vision
- moderate Awakening due to pain
- moderate Weight gain
- severe Joint pain
- mild Inability to name objects (anomia)
- none Elevated blood pressure
- mild Bladder problems
- moderate Weakness in legs
- mild Restless feeling in legs
- moderate Numbness and Tingling with Pins and Needles
- mild Loss of coordination
- moderate Difficulty sleeping through night
- mild Back pain
- moderate Walking slower
- mild Walking problems
- moderate Pins and needles in feet and legs
- mild Muscle spasms in back
- mild Brain fog
- none Trigeminal neuralgia (trigeminal nerve pain)
- mild Loss of balance
- mild Head Tingling
- severe Headaches
- mild Eye pain
- mild Cold intolerance
- severe Asthma
- moderate Acid reflux
- mild Swallowing difficulty (dysphagia)
- moderate Muscle and joint pain
- moderate Dry skin
- none Double vision (diplopia)
- mild Balance problems
- moderate Anxious mood
- mild Lose train of thought
- mild Lethargy
- moderate Emotional lability
- mild Cramps in feet
- moderate Burning sensation in skin
- mild Word fishing
- moderate Muscle spasms
- mild Fatigue
- none Dry eyes
- none Dizziness
- See more
tmmjclole updated heryour symptoms for Feb 25, 2012 • Feb 25, 2012
What else would you like to share about these symptoms?
3 stars
tmmjclole earned a star! • Feb 25, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
MSRS

53
- Mild Cognition
- None Vision
- None Speech
- Mild Swallowing
- Moderate Upper Limb
- Moderate Walking
- Moderate Sensation
tmmjclole completed the MSRS survey for Jan 25, 2012 • Jan 25, 2012
Congratulations, your MSRS is lower. What sort of things are helping your MS symptoms?
2 stars
tmmjclole lost a star • Jan 31, 2012
Nice work! One more star and you get a PLM t-shirt!
PFRS

31
- Some Fatigue
- Most Sleep
- Some Stiffness
- Most Pain
- Overwhelming External Stress
tmmjclole completed the PFRS survey for Dec 20, 2011 • Dec 20, 2011
Congratulations, your PFRS is lower. What sort of things are helping your Fibromyalgia symptoms?
MSRS

57
- Mild Cognition
- Mild Vision
- Mild Speech
- None Swallowing
- Moderate Upper Limb
- Moderate Walking
- Moderate Sensation
tmmjclole completed the MSRS survey for Dec 20, 2011 • Dec 20, 2011
Congratulations, your MSRS is lower. What sort of things are helping your MS symptoms?
Added

Symptom Update
- mild Relapse MS (exacerbation)
- moderate Pain
- moderate Numbness in hands
- mild Memory lapses (brain blinks)
- mild Joint stiffness
- mild Excessive daytime sleepiness (somnolence)
- severe Weakness in arms
- moderate Stiffness/Spasticity
- moderate Pain in lower back
- moderate Mood swings
- moderate Heat intolerance
- mild Allergies
- severe Sexual dysfunction
- moderate Neck pain
- severe Muscle twitching (fasciculations)
- mild Heavy sensation in legs
- severe Depressed mood
- severe Pain in shoulders
- moderate Insomnia
- moderate High Cholesterol
- none Bowel problems
- none Blurry vision
- moderate Awakening due to pain
- severe Weight gain
- mild Joint pain
- mild Inability to name objects (anomia)
- moderate Elevated blood pressure
- none Bladder problems
- severe Weakness in legs
- moderate Restless feeling in legs
- moderate Numbness and Tingling with Pins and Needles
- mild Loss of coordination
- severe Difficulty sleeping through night
- moderate Back pain
- moderate Walking slower
- moderate Walking problems
- moderate Pins and needles in feet and legs
- mild Muscle spasms in back
- mild Brain fog
- mild Trigeminal neuralgia (trigeminal nerve pain)
- mild Loss of balance
- mild Head Tingling
- moderate Headaches
- mild Eye pain
- moderate Cold intolerance
- moderate Asthma
- none Acid reflux
- mild Swallowing difficulty (dysphagia)
- moderate Muscle and joint pain
- mild Dry skin
- mild Double vision (diplopia)
- moderate Balance problems
- moderate Anxious mood
- moderate Lose train of thought
- moderate Lethargy
- mild Emotional lability
- mild Cramps in feet
- moderate Burning sensation in skin
- moderate Word fishing
- mild Muscle spasms
- mild Fatigue
- none Dry eyes
- mild Dizziness
- See more
tmmjclole updated heryour symptoms for Dec 20, 2011 • Dec 20, 2011
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