The PatientsLikeMe Devic's NMO Community
Patient Spotlight
- MariaE
- Sex: F
- Data Quality: 2 stars
- Devic’s: 2 yrs
- Devic’s neuromyelitis optica (NMO)
- Left Eye: none
- Right Eye: none
- Sensation: moderate
- Overall: mild
- Swallowing: none
- Arms: mild
- Legs: moderate
- Bladder/Bowel: mild
- Spinal Cord: mild
- NMO-igG positive
- See profile
- MariaE
- Female, 49 years, Maracay/Miami, Aragua/Florida
- I am a very proactive person, professional (Human Resources), mother of two beautiful kids. After... See Profile…
Devic’s Neuromyelitis Optica (NMO) is a rare autoimmune inflammatory disorder which affects the optic nerve and spinal cord and is often confused with Multiple Sclerosis (MS). Compared with MS, Devic’s brain lesions affect different parts of the nerve cell, spinal lesions are larger, and relapses occur in a different pattern. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
179
total patients
10
Profiles
updated this week
10
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
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| Age | ||||||
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| Gender | |
| 90% | Females |
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| 10% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Azathioprine (Imuran, Imurel) | 24 patients |
|
|---|---|---|
| Baclofen (Lioresal Oral, Onelaxant R...) | 22 patients |
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| Gabapentin (Neurontin, Nupentin...) | 22 patients |
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| Prednisone (Pronizon) | 16 patients |
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| Rituximab (Mabthera, Rituxan) | 14 patients |
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Top Symptoms
| Fatigue | 85 patients |
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|---|---|---|
| Stiffness/Spasticity | 84 patients |
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| Pain | 77 patients |
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| Anxiety | 67 patients |
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| Depression | 67 patients |
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Real-World Experiences
Patient Forum
- Regarding Rituxan therapy and flu vaccinations
- 5 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- Charting the course of PLS and PMA
- August 11, 2009
- Rare Diseases: Well-Done Online
- July 17, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
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