ALS (Amyotrophic Lateral Sclerosis)

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What is ALS (Amyotrophic Lateral Sclerosis)?

ALS (amyotrophic lateral sclerosis) is a degenerative disorder affecting upper motor neurons in the brain and lower motor neurons in the brain stem and spinal cord. Symptoms include progressive weakness, atrophy, fasciculation, dysphagia, and eventual paralysis of respiratory function.

What is it like to have ALS (Amyotrophic Lateral Sclerosis)?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat ALS (Amyotrophic Lateral Sclerosis) and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from ALS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has ALS (Amyotrophic Lateral Sclerosis) on PatientsLikeMe?

Age Proportion # of patients
<20 8
20s 99
30s 282
40s 862
50s 1,488
60s 1,537
70+ 871


Distribution of females vs. males

42% Females
58% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 34
20-29 years 186
30-39 years 560
40-49 years 1,060
50-59 years 1,253
60-69 years 773
70+ years 181

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4,389
Not Diagnosed 206

These charts show data from ALS patients who have completed their condition history
Last updated: