ALS (Amyotrophic Lateral Sclerosis)

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What is ALS (Amyotrophic Lateral Sclerosis)?

ALS (amyotrophic lateral sclerosis) is a degenerative disorder affecting upper motor neurons in the brain and lower motor neurons in the brain stem and spinal cord. Symptoms include progressive weakness, atrophy, fasciculation, dysphagia, and eventual paralysis of respiratory function.

What is it like to have ALS (Amyotrophic Lateral Sclerosis)?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat ALS (Amyotrophic Lateral Sclerosis) and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from ALS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has ALS (Amyotrophic Lateral Sclerosis) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 9
20s 102
30s 284
40s 869
50s 1,503
60s 1,554
70+ 885

Gender

Distribution of females vs. males

42% Females
58% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 35
20-29 years 186
30-39 years 563
40-49 years 1,065
50-59 years 1,259
60-69 years 779
70+ years 181

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4,413
Not Diagnosed 210

These charts show data from ALS patients who have completed their condition history
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