Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

What is it like to have Fibromyalgia?

Common symptoms How bad it is What people are taking for it
Modafinil, Amphetamine-Dextroamphetamine, Ginkgo Biloba
Rest, Modafinil, Naps
Ibuprofen, Tramadol, Hydrocodone-Acetaminophen
Topiramate, Acetaminophen (Paracetamol), Ibuprofen
Cyclobenzaprine, Tizanidine, Baclofen
Walker, Shower/Tub Chair, Walking Stick/Cane
Zolpidem, Amitriptyline, Trazodone
Gabapentin, Tramadol, Hydrocodone-Acetaminophen
Epidural Steroid Injection, Chiropractic, Hydrocodone-Acetaminophen
Duloxetine, Bupropion, Citalopram
Alprazolam, Clonazepam, Lorazepam

What do patients take to treat Fibromyalgia and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Yentreve, Cymgen, Yelate, Cymbalta)

1362

(Lyrica)

1185

(APO-Gabapentin, Gralise, PMS-Gabapentin, DOM-Gabapentin)

458

(Ixel, Savella)

405

(Durella, Tradorec XL, Ralivia, Dolzam)

257

(Fexmid, APO-Cyclobenzaprine, Tensodox, PMS-Cyclobenzaprine)

222

(Trepiline, Amitriptyline Troche, Tryptanol, Amineurin)

218

(Lorcet Plus, Anexsia, Zydone, Stagesic)

157

(Low Dose Naltrexone (LDN), ReVia)

63

(Movatec, Teva-Meloxicam, Movicox, Apo-Meloxicam)

63

(Venlalic XL, Zarelis, Venlor XR, Odven SBK)

58

(Novo-Nortriptyline, APO-Nortriptyline, Aventyl, Sensival)

55

(Warm massage, Friction massage, Ortho bionimy massage therapy, Cranio Facial Massage therapy)

54

(Soft Tissue Massage, Vestibular Therapy, PRRT, Recumbent Stepper)

51

(Soma)

49

These charts show data from Fibromyalgia patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?

  • 42,324 patients have this condition
  • 389 new patients joined this month
  • 32,789 say Fibromyalgia is their primary condition

Age
Age Proportion # of patients
<20 127
20s 1,861
30s 5,983
40s 11,740
50s 12,585
60s 5,061
70+ 752

Gender

Distribution of females vs. males

95% Females
5% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4,289
20-29 years 6,060
30-39 years 8,179
40-49 years 5,700
50-59 years 1,826
60-69 years 245
70+ years 38

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29,220
Not Diagnosed 2,519

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: