Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

What is it like to have Fibromyalgia?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Fibromyalgia and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
2,281
How many evaluations
972
Treatment name(s)

(Lyrica, Provelyn)
Type
Prescription Drug
How many have tried
1,975
How many evaluations
815
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
1,107
How many evaluations
501
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Type
Prescription Drug
How many have tried
895
How many evaluations
357
Treatment name(s)

(Ixel, Savella)
Type
Prescription Drug
How many have tried
700
How many evaluations
380
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
640
How many evaluations
326
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Type
Prescription Drug
How many have tried
590
How many evaluations
234
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
559
How many evaluations
222
Treatment name(s)

(Sirdalud, Sirdalud Retard, Zanaflex)
Type
Prescription Drug
How many have tried
249
How many evaluations
81
Treatment name(s)

(Apo-Meloxicam, Melox, Mobic) 6 more
Type
Prescription Drug
How many have tried
232
How many evaluations
90
See all 1060 treatments
Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Fibromyalgia

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
How many have tried
2281
Perceived effectiveness
Side effects
Nausea Weight gain 347 more
How many evaluations
972
Treatment name(s)

(Lyrica, Provelyn)
How many have tried
1975
Perceived effectiveness
Side effects
Weight gain Dizziness 339 more
How many evaluations
815
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
How many have tried
1107
Perceived effectiveness
Side effects
Weight gain Dizziness 167 more
How many evaluations
501
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
How many have tried
895
Perceived effectiveness
Side effects
Constipation Nausea 111 more
How many evaluations
357
Treatment name(s)

(Ixel, Savella)
How many have tried
700
Perceived effectiveness
Side effects
Nausea Hot flashes 162 more
How many evaluations
380
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
How many have tried
640
Perceived effectiveness
Side effects
Dry mouth Weight gain 109 more
How many evaluations
326
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
How many have tried
590
Perceived effectiveness
Side effects
Drowsiness Sleepiness 51 more
How many evaluations
234
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
How many have tried
559
Perceived effectiveness
Side effects
Constipation Drowsiness 62 more
How many evaluations
222
Treatment name(s)

(Sirdalud, Sirdalud Retard, Zanaflex)
How many have tried
249
Perceived effectiveness
Side effects
Sleepiness Drowsiness 20 more
How many evaluations
81
Treatment name(s)

(Apo-Meloxicam, Melox, Mobic) 6 more
How many have tried
232
Perceived effectiveness
Side effects
Anxious mood Dizziness 21 more
How many evaluations
90
See all 1060 treatments
Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 127
20s 2,158
30s 7,451
40s 15,499
50s 16,874
60s 7,062
70+ 1,018

Gender

Distribution of females vs. males

96% Females
4% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4,919
20-29 years 6,964
30-39 years 9,460
40-49 years 6,729
50-59 years 2,206
60-69 years 285
70+ years 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33,846
Not Diagnosed 2,685

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: