Fibromyalgia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

What is it like to have Fibromyalgia?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Fibromyalgia and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Fibromyalgia patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 121
20s 2,077
30s 6,971
40s 14,168
50s 15,277
60s 6,295
70+ 923

Gender

Distribution of females vs. males

96% Females
4% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4,763
20-29 years 6,703
30-39 years 9,064
40-49 years 6,410
50-59 years 2,056
60-69 years 263
70+ years 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32,436
Not Diagnosed 2,641

These charts show data from Fibromyalgia patients who have completed their condition history
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