Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

What is it like to have Fibromyalgia?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Fibromyalgia and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Fibromyalgia patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 112
20s 1,875
30s 6,052
40s 12,100
50s 13,347
60s 5,709
70+ 872

Gender

Distribution of females vs. males

95% Females
5% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4,448
20-29 years 6,243
30-39 years 8,428
40-49 years 5,904
50-59 years 1,904
60-69 years 256
70+ years 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30,176
Not Diagnosed 2,563

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: