Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

What is it like to have Fibromyalgia?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Fibromyalgia and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
2,307
Tried for
Fibromyalgia (2267) Depressed mood (337)
10 more
Treatment name(s)

(Lyrica, Maxgalin, Provelyn)
Type
Prescription Drug
How many have tried
1,978
Tried for
Fibromyalgia (1933) Pain (241)
9 more
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
1,101
Tried for
Fibromyalgia (988) Pain (361)
10 more
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Type
Prescription Drug
How many have tried
886
Tried for
Fibromyalgia (584) Pain (583)
7 more
Treatment name(s)

(Ixel, Savella)
Type
Prescription Drug
How many have tried
676
Tried for
Fibromyalgia (655) Pain (114)
7 more
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
649
Tried for
Fibromyalgia (474) Insomnia (321)
7 more
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Type
Prescription Drug
How many have tried
576
Tried for
Fibromyalgia (378) Muscle spasms (327)
6 more
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
549
Tried for
Pain (387) Fibromyalgia (304)
6 more
Treatment name(s)

(Sirdalud, Sirdalud Retard, Zanaflex)
Type
Prescription Drug
How many have tried
251
Tried for
Fibromyalgia (161) Muscle spasms (156)
7 more
Treatment name(s)

(Apo-Meloxicam, Melox, Mobic) 6 more
Type
Prescription Drug
How many have tried
225
Tried for
Fibromyalgia (157) Pain (134)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Fibromyalgia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Perceived effectiveness
for Fibromyalgia (926 evaluations)
Side effects
Nausea Weight gain 345 more
How many evaluations
972
Tried for
Fibromyalgia (2267) Depressed mood (337)
10 more
Treatment name(s)

(Lyrica, Maxgalin, Provelyn)
Perceived effectiveness
for Fibromyalgia (726 evaluations)
Side effects
Weight gain Dizziness 338 more
How many evaluations
799
Tried for
Fibromyalgia (1933) Pain (241)
9 more
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Perceived effectiveness
for Fibromyalgia (413 evaluations)
Side effects
Weight gain Dizziness 166 more
How many evaluations
494
Tried for
Fibromyalgia (988) Pain (361)
10 more
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Perceived effectiveness
for Fibromyalgia (224 evaluations)
Side effects
Constipation Nausea 112 more
How many evaluations
359
Tried for
Fibromyalgia (584) Pain (583)
7 more
Treatment name(s)

(Ixel, Savella)
Perceived effectiveness
for Fibromyalgia (356 evaluations)
Side effects
Nausea Hot flashes 159 more
How many evaluations
363
Tried for
Fibromyalgia (655) Pain (114)
7 more
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Perceived effectiveness
for Fibromyalgia (228 evaluations)
Side effects
Dry mouth Weight gain 110 more
How many evaluations
332
Tried for
Fibromyalgia (474) Insomnia (321)
7 more
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Perceived effectiveness
for Fibromyalgia (168 evaluations)
Side effects
Drowsiness Dry mouth 53 more
How many evaluations
237
Tried for
Fibromyalgia (378) Muscle spasms (327)
6 more
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Perceived effectiveness
for Pain (147 evaluations)
Side effects
Constipation Drowsiness 63 more
How many evaluations
220
Tried for
Pain (387) Fibromyalgia (304)
6 more
Treatment name(s)

(Sirdalud, Sirdalud Retard, Zanaflex)
Perceived effectiveness
for Fibromyalgia (47 evaluations)
Side effects
Sleepiness Drowsiness 20 more
How many evaluations
81
Tried for
Fibromyalgia (161) Muscle spasms (156)
7 more
Treatment name(s)

(Apo-Meloxicam, Melox, Mobic) 6 more
Perceived effectiveness
for Fibromyalgia (60 evaluations)
Side effects
Anxious mood Dizziness 21 more
How many evaluations
91
Tried for
Fibromyalgia (157) Pain (134)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 130
20s 2,171
30s 7,618
40s 15,950
50s 17,404
60s 7,341
70+ 1,073

Gender

Distribution of females vs. males

96% Females
4% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4,993
20-29 years 7,040
30-39 years 9,600
40-49 years 6,819
50-59 years 2,252
60-69 years 288
70+ years 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 34,323
Not Diagnosed 2,697

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: