Fibromyalgia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with Fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2,261
Tried for
Fibromyalgia (2224) Depressed mood (334)
10 more
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Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,951
Tried for
Fibromyalgia (1909) Pain (239)
9 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1,094
Tried for
Fibromyalgia (980) Pain (363)
10 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
871
Tried for
Fibromyalgia (577) Pain (570)
7 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
657
Tried for
Fibromyalgia (478) Insomnia (326)
7 more
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Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
644
Tried for
Fibromyalgia (622) Pain (113)
7 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
567
Tried for
Fibromyalgia (376) Muscle spasms (319)
6 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
540
Tried for
Pain (382) Fibromyalgia (299)
6 more
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Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
251
Tried for
Fibromyalgia (162) Muscle spasms (157)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
219
Tried for
Fibromyalgia (152) Pain (132)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Fibromyalgia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Fibromyalgia (915 evaluations)
Side effects
Nausea Weight gain 345 more
How many evaluations
959
Tried for
Fibromyalgia (2224) Depressed mood (334)
10 more
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Fibromyalgia (710 evaluations)
Side effects
Weight gain Dizziness 335 more
How many evaluations
777
Tried for
Fibromyalgia (1909) Pain (239)
9 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Fibromyalgia (414 evaluations)
Side effects
Weight gain Dizziness 165 more
How many evaluations
493
Tried for
Fibromyalgia (980) Pain (363)
10 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Fibromyalgia (225 evaluations)
Side effects
Constipation Nausea 110 more
How many evaluations
355
Tried for
Fibromyalgia (577) Pain (570)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Fibromyalgia (236 evaluations)
Side effects
Dry mouth Weight gain 112 more
How many evaluations
344
Tried for
Fibromyalgia (478) Insomnia (326)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Savella)
Perceived effectiveness
for Fibromyalgia (341 evaluations)
Side effects
Nausea Hot flashes 159 more
How many evaluations
348
Tried for
Fibromyalgia (622) Pain (113)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Fibromyalgia (169 evaluations)
Side effects
Drowsiness Sleepiness 52 more
How many evaluations
236
Tried for
Fibromyalgia (376) Muscle spasms (319)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (140 evaluations)
Side effects
Constipation Drowsiness 62 more
How many evaluations
209
Tried for
Pain (382) Fibromyalgia (299)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for Fibromyalgia (47 evaluations)
Side effects
Drowsiness Sleepiness 20 more
How many evaluations
82
Tried for
Fibromyalgia (162) Muscle spasms (157)
7 more
Check to add this treatment to your profile
Treatment name(s)

(Mobic)
Perceived effectiveness
for Fibromyalgia (61 evaluations)
Side effects
Anxious mood Dizziness 23 more
How many evaluations
91
Tried for
Fibromyalgia (152) Pain (132)
3 more

Data from patients with Fibromyalgia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 131
20s 2,159
30s 7,663
40s 16,066
50s 17,524
60s 7,450
70+ 1,087

Gender

Distribution of females vs. males

96% Females
4% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5,013
20-29 years 7,070
30-39 years 9,657
40-49 years 6,859
50-59 years 2,268
60-69 years 293
70+ years 40

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 34,507
Not Diagnosed 2,701

These charts show data from Fibromyalgia patients who have completed their condition history
Last updated: