Non-Hodgkin's Lymphoma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Non-Hodgkin's Lymphoma?

Non-Hodgkin lymphomas (NHL) are a group of blood cancers that vary significantly in their severity, from slow growing to very aggressive. NHL may originate in the lymph nodes, bone marrow, the spleen, liver and gastrointestinal tract.

What is it like to have Non-Hodgkin's Lymphoma?

Common symptoms How bad it is What people are taking for it
Lorazepam, Clonazepam, Fluoxetine
Ibuprofen, Tramadol, Hydrocodone
Zolpidem, Trazodone, Lorazepam
Amphetamine, Testosterone, Modafinil
Citalopram, Bupropion, Fluoxetine

What do patients take to treat Non-Hodgkin's Lymphoma and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Intensity-modulated radiation therapy, CyberKnife Radiation Therapy, Naso-pharyngeal Radiation Therapy, Brachytherapy (internal seed implants))


These charts show data from Non-Hodgkin's Lymphoma patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Non-Hodgkin's Lymphoma on PatientsLikeMe?

  • 166 patients have this condition
  • 6 new patients joined this month
  • 98 say Non-Hodgkin's Lymphoma is their primary condition

Age Proportion # of patients
<20 7
20s 15
30s 70
40s 96
50s 108
60s 46
70+ 12


Distribution of females vs. males

40% Females
60% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 6
30-39 years 5
40-49 years 14
50-59 years 10
60-69 years 8
70+ years 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 82
Not Diagnosed 3

These charts show data from Non-Hodgkin's Lymphoma patients who have completed their condition history
Last updated: