Non-Hodgkin's Lymphoma

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Non-Hodgkin's Lymphoma?

Non-Hodgkin lymphomas (NHL) are a group of blood cancers that vary significantly in their severity, from slow growing to very aggressive. NHL may originate in the lymph nodes, bone marrow, the spleen, liver and gastrointestinal tract.

Common symptoms reported by people with Non-Hodgkin's Lymphoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Non-Hodgkin's Lymphoma

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
8
Tried for
Non-Hodgkin's Lymphoma (8)
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Treatment name(s)

(Stereotactic Radiosurgery)
Type
Procedures
How many have tried
3
Tried for
Non-Hodgkin's Lymphoma (3)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
Non-Hodgkin's Lymphoma (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
Non-Hodgkin's Lymphoma (1)
Check to add this treatment to your profile
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
Non-Hodgkin's Lymphoma (1)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Sinequan)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)

Data from patients with Non-Hodgkin's Lymphoma, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Non-Hodgkin's Lymphoma

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Non-Hodgkin's Lymphoma (3 evaluations)
Side effects
Peripheral Neuropathy Blurry vision 19 more
How many evaluations
4
Tried for
Non-Hodgkin's Lymphoma (8)
Check to add this treatment to your profile
Treatment name(s)

(Stereotactic Radiosurgery)
Perceived effectiveness
for Non-Hodgkin's Lymphoma (3 evaluations)
Side effects
Fatigue Radiation burn
How many evaluations
3
Tried for
Non-Hodgkin's Lymphoma (3)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Dry mouth
How many evaluations
1
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
Loss of sense of taste Overwhelming fatigue
How many evaluations
1
Tried for
Non-Hodgkin's Lymphoma (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Non-Hodgkin's Lymphoma (1)
Check to add this treatment to your profile
Treatment name(s)

(Celebrex)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Swelling in legs, feet and ankles
How many evaluations
3
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Non-Hodgkin's Lymphoma (1)
Check to add this treatment to your profile
Treatment name(s)

(Valium)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
How many evaluations
2
Tried for
Insomnia (1)
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Sinequan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Insomnia (1)

Data from patients with Non-Hodgkin's Lymphoma, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Non-Hodgkin's Lymphoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 10
30s 23
40s 36
50s 79
60s 61
70+ 18

Gender

Distribution of females vs. males

59% Females
41% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 8
30-39 years 7
40-49 years 21
50-59 years 18
60-69 years 15
70+ years 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 125
Not Diagnosed 5

These charts show data from Non-Hodgkin's Lymphoma patients who have completed their condition history
Last updated: