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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Cataplexy?

Cataplexy is the sudden loss of muscle tone that is triggered by the experience of an intense emotion. Cataplexy is the result of an absence of a neurotransmitter in the hypothalamus known as hypocretin or orexin. It is often associated with narcolepsy but is seen in other pathological conditions.

What is it like to have Cataplexy?

Common symptoms How bad it is What people are taking for it
Alprazolam, Deep breathing and relaxation, Sertraline
Tramadol, Oxycodone, Ibuprofen
Trazodone, Guided imagery
Amphetamine-Dextroamphetamine, Vitamin D, Methylphenidate
Sertraline, Duloxetine, Lamotrigine

What do patients take to treat Cataplexy and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Tolerade, Tofranil-PM, Tofranil)






These charts show data from Cataplexy patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Cataplexy on PatientsLikeMe?

  • 52 patients have this condition
  • 1 new patients joined this month
  • 10 say Cataplexy is their primary condition

Age Proportion # of patients
<20 2
20s 14
30s 15
40s 13
50s 2
60s 2
70+ 1


Distribution of females vs. males

77% Females
23% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 12
20-29 years 9
30-39 years 5
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32
Not Diagnosed 4

These charts show data from Cataplexy patients who have completed their condition history
Last updated: