Cataplexy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Cataplexy?

Cataplexy is the sudden loss of muscle tone that is triggered by the experience of an intense emotion. Cataplexy is the result of an absence of a neurotransmitter in the hypothalamus known as hypocretin or orexin. It is often associated with narcolepsy but is seen in other pathological conditions.

What is it like to have Cataplexy?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Cataplexy and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Xyrem)
Type
Prescription Drug
How many have tried
5
How many evaluations
1
Treatment name(s)

(Altruline, Apo-Sertraline, Daxid) 11 more
Type
Prescription Drug
How many have tried
2
How many evaluations
0
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Type
Prescription Drug
How many have tried
2
How many evaluations
0
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)
Type
Procedures
How many have tried
1
How many evaluations
0
Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
1
How many evaluations
2
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Apo-Lamotrigine, Epitec, Lamez) 14 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(APO-Methylphenidate, Concerta, Daytrana) 15 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
See all 16 treatments
Data from patients with Cataplexy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Cataplexy

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Xyrem)
How many have tried
5
Perceived effectiveness
Side effects
Hunger
How many evaluations
1
Treatment name(s)

(Altruline, Apo-Sertraline, Daxid) 11 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
How many have tried
1
Perceived effectiveness
Side effects
Dizziness with hypotension upon standing Drowsiness
How many evaluations
2
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Apo-Lamotrigine, Epitec, Lamez) 14 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(APO-Methylphenidate, Concerta, Daytrana) 15 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
See all 16 treatments
Data from patients with Cataplexy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Cataplexy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 15
30s 16
40s 16
50s 3
60s 3
70+ 1

Gender

Distribution of females vs. males

78% Females
22% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 11
30-39 years 6
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 38
Not Diagnosed 5

These charts show data from Cataplexy patients who have completed their condition history
Last updated: