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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Cataplexy?

Cataplexy is the sudden loss of muscle tone that is triggered by the experience of an intense emotion. Cataplexy is the result of an absence of a neurotransmitter in the hypothalamus known as hypocretin or orexin. It is often associated with narcolepsy but is seen in other pathological conditions.

What is it like to have Cataplexy?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Cataplexy and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Cataplexy patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Cataplexy on PatientsLikeMe?

Age Proportion # of patients
<20 1
20s 15
30s 16
40s 15
50s 3
60s 3
70+ 1


Distribution of females vs. males

78% Females
22% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 11
30-39 years 5
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 37
Not Diagnosed 5

These charts show data from Cataplexy patients who have completed their condition history
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