IBC (Inflammatory Breast Cancer)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is IBC (Inflammatory Breast Cancer)?

Inflammatory breast cancer is a rare but very aggressive type of breast cancer in which the cancer cells block the lymph vessels in the skin of the breast. This type of breast cancer is called inflammatory because the breast often looks swollen and red, or inflamed.

What is it like to have IBC (Inflammatory Breast Cancer)?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat IBC (Inflammatory Breast Cancer) and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Adriamycin, Doxil)
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(Femara)
Type
Prescription Drug
How many have tried
2
How many evaluations
2
Treatment name(s)

(Abraxane, Taxol)
Type
Prescription Drug
How many have tried
2
How many evaluations
2
Treatment name(s)
Type
Surgery
How many have tried
1
How many evaluations
1
Treatment name(s)

(Xeloda)
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(Cytoxan, Endoxan, HiCY (High Intensity Cytoxan))
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Bilateral mastectomy, Modified Radical Mastectomy, Unilateral mastectomy)
Type
Surgery
How many have tried
1
How many evaluations
1
Treatment name(s)

(Brachytherapy (High Dose Rate), Brachytherapy (Internal Seed Implants), Brachytherapy (Low Dose Rate)) 16 more
Type
Procedures
How many have tried
1
How many evaluations
2
Treatment name(s)

(Herceptin)
Type
Prescription Drug
How many have tried
1
How many evaluations
2
See all 12 treatments
Data from patients with IBC (Inflammatory Breast Cancer), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for IBC (Inflammatory Breast Cancer)

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Adriamycin, Doxil)
How many have tried
2
Perceived effectiveness
Side effects
Fatigue Hair loss 2 more
How many evaluations
1
Treatment name(s)

(Femara)
How many have tried
2
Perceived effectiveness
Side effects
Joint pain Fatigue 2 more
How many evaluations
2
Treatment name(s)

(Abraxane, Taxol)
How many have tried
2
Perceived effectiveness
Side effects
Diarrhea Fatigue 6 more
How many evaluations
2
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
Lymphedema
How many evaluations
1
Treatment name(s)

(Xeloda)
How many have tried
1
Perceived effectiveness
Side effects
Acid reflux Diarrhea 4 more
How many evaluations
1
Treatment name(s)

(Cytoxan, Endoxan, HiCY (High Intensity Cytoxan))
How many have tried
1
Perceived effectiveness
Side effects
Fatigue Hair loss 2 more
How many evaluations
1
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Bilateral mastectomy, Modified Radical Mastectomy, Unilateral mastectomy)
How many have tried
1
Perceived effectiveness
Side effects
Limited range of motion
How many evaluations
1
Treatment name(s)

(Brachytherapy (High Dose Rate), Brachytherapy (Internal Seed Implants), Brachytherapy (Low Dose Rate)) 16 more
How many have tried
1
Perceived effectiveness
Side effects
Application site itching Fatigue 2 more
How many evaluations
2
Treatment name(s)

(Herceptin)
How many have tried
1
Perceived effectiveness
Side effects
Heart ejection fraction rate decreased Shortness of breath (dyspnea)
How many evaluations
2
See all 12 treatments
Data from patients with IBC (Inflammatory Breast Cancer), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has IBC (Inflammatory Breast Cancer) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 3
40s 2
50s 11
60s 6
70+ 1

Gender

Distribution of females vs. males

100% Females
0% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 2
40-49 years 2
50-59 years 3
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 0

These charts show data from Inflammatory Breast Cancer patients who have completed their condition history
Last updated: