HIV (Human Immunodeficiency Virus)

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV infection refers to the spectrum of human immunodeficiency virus infections that range from asymptomatic seropositivity, thru AIDS-related complex (ARC), to acquired immunodeficiency syndrome (AIDS).

What is it like to have HIV (Human Immunodeficiency Virus)?

Common symptoms How bad it is What people are taking for it
Bupropion, Citalopram, Escitalopram
Kaletra, Vitamin C Intravenous (IV), Selenium
Clonazepam, Alprazolam, Lorazepam
Efavirenz, Ibuprofen, Acetaminophen (Paracetamol)
Ibuprofen Prescription, Abacavir-Lamivudine
Dronabinol, Megestrol, Promethazine
Hydrocodone-Acetaminophen, Tramadol, Ibuprofen
Lorazepam, Zolpidem, Trazodone
Diphenoxylate and Atropine, Loperamide, Rifaximin
Vitamin B Complex, Modafinil, Testosterone
Triamcinolone topical, Mupirocin Topical, Valacyclovir

What do patients take to treat HIV (Human Immunodeficiency Virus) and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations





(Stocrin, Sustiva)




(Kivexa, Epzicom)




(Avocomb, Combivir)


(Viramune XR, Viramune)




(Epivir HBV, 3TC, Epivir)


These charts show data from HIV patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?

  • 3,563 patients have this condition
  • 9 new patients joined this month
  • 3,468 say HIV is their primary condition

Age Proportion # of patients
<20 13
20s 261
30s 616
40s 708
50s 559
60s 162
70+ 22


Distribution of females vs. males

24% Females
76% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 154
30-39 years 152
40-49 years 80
50-59 years 25
60-69 years 2
70+ years 0

Condition Types Proportion # of patients
HIV-1: Group M: CRF 75
HIV-1: Group M: Type A1 212
HIV-1: Group M: Type A2 15
HIV-1: Group M: Type B 104
HIV-1: Group M: Type C 9
HIV-1: Group M: Type D 6
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 2
HIV-1: Group M: Type G 6
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 28
HIV-2 18
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 939
Not Diagnosed 35

These charts show data from HIV patients who have completed their condition history
Last updated: