HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV infection refers to the spectrum of human immunodeficiency virus infections that range from asymptomatic seropositivity, thru AIDS-related complex (ARC), to acquired immunodeficiency syndrome (AIDS).

What is it like to have HIV (Human Immunodeficiency Virus)?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat HIV (Human Immunodeficiency Virus) and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from HIV patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 12
20s 256
30s 614
40s 708
50s 574
60s 177
70+ 25

Gender

Distribution of females vs. males

24% Females
76% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 159
30-39 years 161
40-49 years 82
50-59 years 27
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 82
HIV-1: Group M: Type A1 213
HIV-1: Group M: Type A2 16
HIV-1: Group M: Type B 103
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 6
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 2
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 30
HIV-2 18
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 958
Not Diagnosed 36

These charts show data from HIV patients who have completed their condition history
Last updated: