HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV infection refers to the spectrum of human immunodeficiency virus infections that range from asymptomatic seropositivity, thru AIDS-related complex (ARC), to acquired immunodeficiency syndrome (AIDS).

What is it like to have HIV (Human Immunodeficiency Virus)?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat HIV (Human Immunodeficiency Virus) and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Atripla)
Type
Prescription Drug
How many have tried
94
How many evaluations
65
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
83
How many evaluations
45
Treatment name(s)

(Norvir)
Type
Prescription Drug
How many have tried
59
How many evaluations
28
Treatment name(s)

(Isentress)
Type
Prescription Drug
How many have tried
58
How many evaluations
26
Treatment name(s)

(Prezista)
Type
Prescription Drug
How many have tried
38
How many evaluations
14
Treatment name(s)

(Stocrin, Sustiva)
Type
Prescription Drug
How many have tried
33
How many evaluations
16
Treatment name(s)

(Epzicom, Kivexa)
Type
Prescription Drug
How many have tried
30
How many evaluations
11
Treatment name(s)

(Reyataz)
Type
Prescription Drug
How many have tried
26
How many evaluations
23
Treatment name(s)

(Viread)
Type
Prescription Drug
How many have tried
23
How many evaluations
7
Treatment name(s)

(Complera, Eviplera)
Type
Prescription Drug
How many have tried
20
How many evaluations
14
See all 139 treatments
Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for HIV (Human Immunodeficiency Virus)

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Atripla)
How many have tried
94
Perceived effectiveness
Side effects
Vivid dreams Dizziness 41 more
How many evaluations
65
Treatment name(s)

(Truvada)
How many have tried
83
Perceived effectiveness
Side effects
Fatigue Diarrhea 26 more
How many evaluations
45
Treatment name(s)

(Norvir)
How many have tried
59
Perceived effectiveness
Side effects
Diarrhea Elevated liver enzymes 2 more
How many evaluations
28
Treatment name(s)

(Isentress)
How many have tried
58
Perceived effectiveness
Side effects
Headaches Anxious mood 16 more
How many evaluations
26
Treatment name(s)

(Prezista)
How many have tried
38
Perceived effectiveness
Side effects
Diarrhea GI problems
How many evaluations
14
Treatment name(s)

(Stocrin, Sustiva)
How many have tried
33
Perceived effectiveness
Side effects
Dizziness Vivid dreams 4 more
How many evaluations
16
Treatment name(s)

(Epzicom, Kivexa)
How many have tried
30
Perceived effectiveness
Side effects
Abdominal cramps Fatigue 2 more
How many evaluations
11
Treatment name(s)

(Reyataz)
How many have tried
26
Perceived effectiveness
Side effects
yellow eyes Dizziness 6 more
How many evaluations
23
Treatment name(s)

(Viread)
How many have tried
23
Perceived effectiveness
Side effects
Nausea Diarrhea 3 more
How many evaluations
7
Treatment name(s)

(Complera, Eviplera)
How many have tried
20
Perceived effectiveness
Side effects
Burning nerve pain right foot Increased insomnia 4 more
How many evaluations
14
See all 139 treatments
Data from patients with HIV (Human Immunodeficiency Virus), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 11
20s 250
30s 616
40s 698
50s 600
60s 198
70+ 26

Gender

Distribution of females vs. males

24% Females
76% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 163
30-39 years 166
40-49 years 80
50-59 years 28
60-69 years 2
70+ years 0

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 83
HIV-1: Group M: Type A1 216
HIV-1: Group M: Type A2 16
HIV-1: Group M: Type B 104
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 6
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 2
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 31
HIV-2 21
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 983
Not Diagnosed 37

These charts show data from HIV patients who have completed their condition history
Last updated: