HIV (Human Immunodeficiency Virus)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV (Human Immunodeficiency Virus)?

HIV infection refers to the spectrum of human immunodeficiency virus infections that range from asymptomatic seropositivity, thru AIDS-related complex (ARC), to acquired immunodeficiency syndrome (AIDS).

What is it like to have HIV (Human Immunodeficiency Virus)?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat HIV (Human Immunodeficiency Virus) and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from HIV patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has HIV (Human Immunodeficiency Virus) on PatientsLikeMe?

Age Proportion # of patients
<20 12
20s 255
30s 616
40s 697
50s 596
60s 190
70+ 25


Distribution of females vs. males

24% Females
76% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 162
30-39 years 167
40-49 years 80
50-59 years 28
60-69 years 2
70+ years 0

Condition Types Proportion # of patients
HIV-1: Group M: CRF 83
HIV-1: Group M: Type A1 215
HIV-1: Group M: Type A2 16
HIV-1: Group M: Type B 104
HIV-1: Group M: Type C 10
HIV-1: Group M: Type D 6
HIV-1: Group M: Type F1 8
HIV-1: Group M: Type F2 2
HIV-1: Group M: Type G 5
HIV-1: Group M: Type H 3
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 30
HIV-2 21
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 980
Not Diagnosed 37

These charts show data from HIV patients who have completed their condition history
Last updated: