Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
670
Tried for
Parkinson's Disease (664) Stiffness/Spasticity (27)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
330
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
267
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
249
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
247
Tried for
Parkinson's Disease (245) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
151
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
114
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
103
Tried for
Parkinson's Disease (103) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
96
Tried for
Parkinson's Disease (96) Slowness (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
78
Tried for
Parkinson's Disease (76) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (324 evaluations)
Side effects
Nausea Dyskinesia 86 more
How many evaluations
335
Tried for
Parkinson's Disease (664) Stiffness/Spasticity (27)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (158 evaluations)
Side effects
Headaches Frequent urination 56 more
How many evaluations
164
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (135 evaluations)
Side effects
Daytime sleepiness Nausea 78 more
How many evaluations
141
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (103 evaluations)
Side effects
Dry mouth Blurry vision 52 more
How many evaluations
118
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (137 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 82 more
How many evaluations
149
Tried for
Parkinson's Disease (245) Fatigue (3)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (52 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 24 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (55 evaluations)
Side effects
Skin irritation under patch Dizziness 29 more
How many evaluations
55
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (41 evaluations)
Side effects
Hospitalization Headaches 26 more
How many evaluations
43
Tried for
Parkinson's Disease (103) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (24 evaluations)
Side effects
Loose stools Dyskinesia 7 more
How many evaluations
28
Tried for
Parkinson's Disease (96) Slowness (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (23 evaluations)
Side effects
Insomnia Bitter taste 14 more
How many evaluations
24
Tried for
Parkinson's Disease (76) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 58
30s 150
40s 614
50s 1,607
60s 2,665
70+ 1,984

Gender

Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 51
20-29 years 181
30-39 years 624
40-49 years 1,277
50-59 years 1,661
60-69 years 1,026
70+ years 284

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 91
Inherited (genetic) Parkinson's disease 493
Parkinsonism (unknown cause) 1,498
Parkinson's disease 4,944
Vascular Parkinsonism 40
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,880
Not Diagnosed 222

These charts show data from Parkinson's patients who have completed their condition history
Last updated: