Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

What is it like to have Parkinson's Disease?

Common symptoms How bad it is What people are taking for it
Carbidopa-Levodopa CR, Carbidopa-Levodopa, Pramipexole
Mental Exercise, Donepezil, Rivastigmine
Carbidopa-Levodopa, Ropinirole, Rasagiline
Hydrocodone-Acetaminophen, Gabapentin, Ibuprofen
Zolpidem, Clonazepam, Trazodone
Citalopram, Escitalopram, Bupropion
Memantine, Galantamine, Lumosity
Vitamin C (ascorbic acid), Modafinil, Armodafinil
Modafinil, Amantadine, Handicap/Disability Parking Permit
Carbidopa-Levodopa, Nortriptyline, Gum Chewing
Polyethylene Glycol 3350, Stool Softener, Fiber supplement
Clonazepam, Alprazolam, Lorazepam
Carbidopa-Levodopa, Vardenafil, Tadalafil

What do patients take to treat Parkinson's Disease and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Co-careldopa, Sinemet 25/100, Sinemet ER 50/200, Sinemet 25/250)

440

(Agilect, Azilect)

303

(Requip LP, Requip Prolib, Requip Depot, Requip)

289

(Premipex, Pexola, Teva pramipexole, Mirapexin)

259

(Amantrel, Mantadix, Mantidan, Amantix)

164

(Stalevo 75, Stalevo 100, Stalevo 50, Syncapone 100)

127

(CoQmax, Bio Organics CoQ10 Capules, Trader Joe's Co Enzyme Q10, Whole Foods CoQ10 Chewable Tablets)

77

(Carbilev, Syndopa CR, Apo-Levocarb CR, Half Sinemet CR)

58

(Subthalamic Nucleus Deep Brain Stimulation, Thalamic Deep Brain Stimulation, Pallidal Deep Brain Stimulation)

57

(Emsam, Xilopar, Deprenyl, Otrasel)

54

(Neupro Patch)

50

(Comtan, Comtess)

44

(Madopar Depot, Madopark Quick Mite, Prolopa HBS, Levopar)

27

(Benzhexol, Trihexyphen, Broflex, Agitane)

20

(Non-impact machines (biking, stairstepper, treadclimber), pushups, sitsups weights, Shapemaster toning table, Jogging / Personal Trainer / Circuit Training, Exercise (dancing, diving, and creating))

15

These charts show data from Parkinson's patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?

  • 8,491 patients have this condition
  • 57 new patients joined this month
  • 8,305 say Parkinson's is their primary condition

Age
Age Proportion # of patients
<20 3
20s 57
30s 145
40s 590
50s 1,539
60s 2,364
70+ 1,608

Gender

Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 46
20-29 years 173
30-39 years 597
40-49 years 1,200
50-59 years 1,541
60-69 years 915
70+ years 259

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 81
Inherited (genetic) Parkinson's disease 443
Parkinsonism (unknown cause) 1,346
Parkinson's disease 4,457
Vascular Parkinsonism 38
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,473
Not Diagnosed 190

These charts show data from Parkinson's patients who have completed their condition history
Last updated: