Parkinson's Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

What is it like to have Parkinson's Disease?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Parkinson's Disease and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Parkinson's patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?

Age Proportion # of patients
<20 5
20s 61
30s 147
40s 608
50s 1,591
60s 2,610
70+ 1,863


Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 48
20-29 years 180
30-39 years 618
40-49 years 1,260
50-59 years 1,623
60-69 years 1,001
70+ years 272

Condition Types Proportion # of patients
Drug-induced Parkinsonism 89
Inherited (genetic) Parkinson's disease 479
Parkinsonism (unknown cause) 1,461
Parkinson's disease 4,814
Vascular Parkinsonism 39
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,770
Not Diagnosed 209

These charts show data from Parkinson's patients who have completed their condition history
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