Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

What is it like to have Parkinson's Disease?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Parkinson's Disease and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
Type
Prescription Drug
How many have tried
694
How many evaluations
346
Treatment name(s)

(Agilect, Azilect)
Type
Prescription Drug
How many have tried
342
How many evaluations
168
Treatment name(s)

(Requip, Requip Depot, Requip LP) 2 more
Type
Prescription Drug
How many have tried
277
How many evaluations
155
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Type
Prescription Drug
How many have tried
257
How many evaluations
124
Treatment name(s)

(Mirapex, Mirapex ER, Mirapexin) 6 more
Type
Prescription Drug
How many have tried
255
How many evaluations
153
Treatment name(s)

(Stalevo, Stalevo 100, Stalevo 125) 5 more
Type
Prescription Drug
How many have tried
157
How many evaluations
60
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
111
How many evaluations
53
Treatment name(s)

(Pallidal Deep Brain Stimulation, Subthalamic Nucleus Deep Brain Stimulation, Thalamic Deep Brain Stimulation)
Type
Equipment
How many have tried
106
How many evaluations
42
Treatment name(s)

(Comtan, Comtess)
Type
Prescription Drug
How many have tried
98
How many evaluations
28
Treatment name(s)

(Deprenyl, Eldepryl, Emsam) 5 more
Type
Prescription Drug
How many have tried
81
How many evaluations
26
See all 287 treatments
Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Parkinson's Disease

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
How many have tried
694
Perceived effectiveness
Side effects
Nausea Dyskinesia 105 more
How many evaluations
346
Treatment name(s)

(Agilect, Azilect)
How many have tried
342
Perceived effectiveness
Side effects
Headaches Frequent urination 54 more
How many evaluations
168
Treatment name(s)

(Requip, Requip Depot, Requip LP) 2 more
How many have tried
277
Perceived effectiveness
Side effects
Nausea Excessive daytime sleepiness (somnolence) 83 more
How many evaluations
155
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
How many have tried
257
Perceived effectiveness
Side effects
Dry mouth Chronic constipation 59 more
How many evaluations
124
Treatment name(s)

(Mirapex, Mirapex ER, Mirapexin) 6 more
How many have tried
255
Perceived effectiveness
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 87 more
How many evaluations
153
Treatment name(s)

(Stalevo, Stalevo 100, Stalevo 125) 5 more
How many have tried
157
Perceived effectiveness
Side effects
Dyskinesia Jerky movements (dyskinesia) 29 more
How many evaluations
60
Treatment name(s)

(Neupro Patch)
How many have tried
111
Perceived effectiveness
Side effects
Skin irritation under patch Dizziness 29 more
How many evaluations
53
Treatment name(s)

(Pallidal Deep Brain Stimulation, Subthalamic Nucleus Deep Brain Stimulation, Thalamic Deep Brain Stimulation)
How many have tried
106
Perceived effectiveness
Side effects
Hospitalization Headaches 25 more
How many evaluations
42
Treatment name(s)

(Comtan, Comtess)
How many have tried
98
Perceived effectiveness
Side effects
Loose stools Diarrhea 8 more
How many evaluations
28
Treatment name(s)

(Deprenyl, Eldepryl, Emsam) 5 more
How many have tried
81
Perceived effectiveness
Side effects
Insomnia Bitter taste 14 more
How many evaluations
26
See all 287 treatments
Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 57
30s 149
40s 604
50s 1,585
60s 2,625
70+ 1,922

Gender

Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 49
20-29 years 182
30-39 years 620
40-49 years 1,266
50-59 years 1,636
60-69 years 1,010
70+ years 278

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 90
Inherited (genetic) Parkinson's disease 484
Parkinsonism (unknown cause) 1,477
Parkinson's disease 4,855
Vascular Parkinsonism 41
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,804
Not Diagnosed 215

These charts show data from Parkinson's patients who have completed their condition history
Last updated: