Parkinson's Disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
662
Tried for
Parkinson's Disease (656) Stiffness/Spasticity (27)
3 more
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Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
323
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Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
256
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Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
250
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Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
240
Tried for
Parkinson's Disease (238) Fatigue (3)
1 more
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Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
153
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Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
118
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Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
102
Tried for
Parkinson's Disease (102) Stiffness/Spasticity (4)
2 more
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Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
96
Tried for
Parkinson's Disease (96) Slowness (1)
1 more
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Treatment name(s)

(Zelapar)
Type
Prescription Drug
How many have tried
77
Tried for
Parkinson's Disease (76) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's Disease (329 evaluations)
Side effects
Nausea Dyskinesia 87 more
How many evaluations
341
Tried for
Parkinson's Disease (656) Stiffness/Spasticity (27)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's Disease (156 evaluations)
Side effects
Headaches Frequent urination 48 more
How many evaluations
161
Check to add this treatment to your profile
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's Disease (134 evaluations)
Side effects
Nausea Sleepiness 78 more
How many evaluations
139
Check to add this treatment to your profile
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's Disease (104 evaluations)
Side effects
Dry mouth Blurry vision 52 more
How many evaluations
119
Check to add this treatment to your profile
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's Disease (130 evaluations)
Side effects
Weight gain Drowsiness 74 more
How many evaluations
141
Tried for
Parkinson's Disease (238) Fatigue (3)
1 more
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Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's Disease (54 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 24 more
How many evaluations
59
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Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (58 evaluations)
Side effects
Skin irritation under patch Dizziness 29 more
How many evaluations
58
Check to add this treatment to your profile
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (41 evaluations)
Side effects
Hospitalization Headaches 26 more
How many evaluations
43
Tried for
Parkinson's Disease (102) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's Disease (25 evaluations)
Side effects
Loose stools Dyskinesia 7 more
How many evaluations
29
Tried for
Parkinson's Disease (96) Slowness (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Zelapar)
Perceived effectiveness
for Parkinson's Disease (23 evaluations)
Side effects
Insomnia Bitter taste 14 more
How many evaluations
24
Tried for
Parkinson's Disease (76) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 59
30s 147
40s 616
50s 1,631
60s 2,695
70+ 2,009

Gender

Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 52
20-29 years 181
30-39 years 626
40-49 years 1,285
50-59 years 1,668
60-69 years 1,031
70+ years 284

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 91
Inherited (genetic) Parkinson's disease 496
Parkinsonism (unknown cause) 1,511
Parkinson's disease 5,003
Vascular Parkinsonism 41
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,902
Not Diagnosed 226

These charts show data from Parkinson's patients who have completed their condition history
Last updated: