Parkinson's Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
Type
Prescription Drug
How many have tried
678
Tried for
Parkinson's Disease (672) Stiffness/Spasticity (27)
3 more
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Treatment name(s)

(Agilect, Azilect)
Type
Prescription Drug
How many have tried
332
Check to add this treatment to your profile
Treatment name(s)

(Requip, Requip Depot, Requip LP) 2 more
Type
Prescription Drug
How many have tried
275
Check to add this treatment to your profile
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Type
Prescription Drug
How many have tried
250
Tried for
Parkinson's Disease (249) Fatigue (4)
3 more
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Treatment name(s)

(Mirapex, Mirapex ER, Mirapexin) 6 more
Type
Prescription Drug
How many have tried
250
Tried for
Parkinson's Disease (248) Stiffness/Spasticity (4)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo, Stalevo 100, Stalevo 125) 5 more
Type
Prescription Drug
How many have tried
155
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
113
Check to add this treatment to your profile
Treatment name(s)

(Pallidal Deep Brain Stimulation, Subthalamic Nucleus Deep Brain Stimulation, Thalamic Deep Brain Stimulation)
Type
Equipment
How many have tried
103
Tried for
Parkinson's Disease (103) Stiffness/Spasticity (4)
2 more
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Treatment name(s)

(Comtan, Comtess)
Type
Prescription Drug
How many have tried
97
Tried for
Parkinson's Disease (97) Slowness (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Deprenyl, Eldepryl, Emsam) 5 more
Type
Prescription Drug
How many have tried
82
Tried for
Parkinson's Disease (80) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Parkinson's Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
Perceived effectiveness
for Parkinson's Disease (321 evaluations)
Side effects
Nausea Dyskinesia 87 more
How many evaluations
332
Tried for
Parkinson's Disease (672) Stiffness/Spasticity (27)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Agilect, Azilect)
Perceived effectiveness
for Parkinson's Disease (158 evaluations)
Side effects
Headaches Frequent urination 53 more
How many evaluations
164
Check to add this treatment to your profile
Treatment name(s)

(Requip, Requip Depot, Requip LP) 2 more
Perceived effectiveness
for Parkinson's Disease (143 evaluations)
Side effects
Nausea Daytime sleepiness 83 more
How many evaluations
149
Check to add this treatment to your profile
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Perceived effectiveness
for Parkinson's Disease (103 evaluations)
Side effects
Dry mouth Blurry vision 52 more
How many evaluations
118
Tried for
Parkinson's Disease (249) Fatigue (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Mirapex, Mirapex ER, Mirapexin) 6 more
Perceived effectiveness
for Parkinson's Disease (137 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 86 more
How many evaluations
150
Tried for
Parkinson's Disease (248) Stiffness/Spasticity (4)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Stalevo, Stalevo 100, Stalevo 125) 5 more
Perceived effectiveness
for Parkinson's Disease (54 evaluations)
Side effects
Dyskinesia Jerky movements (dyskinesia) 25 more
How many evaluations
59
Check to add this treatment to your profile
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's Disease (53 evaluations)
Side effects
Skin irritation under patch Dizziness 29 more
How many evaluations
53
Check to add this treatment to your profile
Treatment name(s)

(Pallidal Deep Brain Stimulation, Subthalamic Nucleus Deep Brain Stimulation, Thalamic Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's Disease (41 evaluations)
Side effects
Hospitalization Headaches 26 more
How many evaluations
43
Tried for
Parkinson's Disease (103) Stiffness/Spasticity (4)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Comtan, Comtess)
Perceived effectiveness
for Parkinson's Disease (22 evaluations)
Side effects
Loose stools Dyskinesia 7 more
How many evaluations
27
Tried for
Parkinson's Disease (97) Slowness (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Deprenyl, Eldepryl, Emsam) 5 more
Perceived effectiveness
for Parkinson's Disease (24 evaluations)
Side effects
Insomnia Bitter taste 15 more
How many evaluations
26
Tried for
Parkinson's Disease (80) Depressed mood (2)
2 more

Data from patients with Parkinson's Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 57
30s 150
40s 611
50s 1,603
60s 2,651
70+ 1,965

Gender

Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 50
20-29 years 181
30-39 years 624
40-49 years 1,274
50-59 years 1,651
60-69 years 1,019
70+ years 282

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 91
Inherited (genetic) Parkinson's disease 491
Parkinsonism (unknown cause) 1,490
Parkinson's disease 4,921
Vascular Parkinsonism 40
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,851
Not Diagnosed 217

These charts show data from Parkinson's patients who have completed their condition history
Last updated: