Parkinson's Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Parkinson's Disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

What is it like to have Parkinson's Disease?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Parkinson's Disease and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Parkinson's patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Parkinson's Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 59
30s 149
40s 595
50s 1,593
60s 2,579
70+ 1,844

Gender

Distribution of females vs. males

47% Females
53% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 48
20-29 years 180
30-39 years 615
40-49 years 1,253
50-59 years 1,612
60-69 years 996
70+ years 274

Types
Condition Types Proportion # of patients
Drug-induced Parkinsonism 89
Inherited (genetic) Parkinson's disease 478
Parkinsonism (unknown cause) 1,446
Parkinson's disease 4,772
Vascular Parkinsonism 39
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,744
Not Diagnosed 209

These charts show data from Parkinson's patients who have completed their condition history
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