Central Pain Syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Central Pain Syndrome?

Central pain syndrome is a neurological condition caused by damage to or dysfunction of the central nervous system (CNS), which includes the brain, brainstem, and spinal cord. The character of the pain differs widely among individuals partly because of the variety of potential causes.

What is it like to have Central Pain Syndrome?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Central Pain Syndrome and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
4
How many evaluations
3
Treatment name(s)

(Ambien, Ambien CR, Edluar) 11 more
Type
Prescription Drug
How many have tried
3
How many evaluations
2
Treatment name(s)

(4 needle technique, Acupuncture - Ear, Acupuncture - Facial) 9 more
Type
Procedures
How many have tried
2
How many evaluations
2
Treatment name(s)

(Acetaminophen cream, Alvedon, Atasol-500) 36 more
Type
Over the Counter Drug
How many have tried
1
How many evaluations
2
Treatment name(s)
Type
Supplement
How many have tried
1
How many evaluations
1
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(Carbagen, Carbamazepine XR, Carbatrol) 12 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(Soma)
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)
Type
Supplement
How many have tried
1
How many evaluations
1
See all 37 treatments
Data from patients with Central Pain Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Central Pain Syndrome

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
How many have tried
4
Perceived effectiveness
Side effects
Dizziness Double vision (diplopia) 8 more
How many evaluations
3
Treatment name(s)

(Ambien, Ambien CR, Edluar) 11 more
How many have tried
3
Perceived effectiveness
Side effects
Diarrhea
How many evaluations
2
Treatment name(s)

(4 needle technique, Acupuncture - Ear, Acupuncture - Facial) 9 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
2
Treatment name(s)

(Acetaminophen cream, Alvedon, Atasol-500) 36 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
2
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
How many have tried
1
Perceived effectiveness
Side effects
Tremor in hands
How many evaluations
1
Treatment name(s)

(Carbagen, Carbamazepine XR, Carbatrol) 12 more
How many have tried
1
Perceived effectiveness
Side effects
Edema in lower extremities Fluid retention weight gain
How many evaluations
1
Treatment name(s)

(Soma)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
See all 37 treatments
Data from patients with Central Pain Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Central Pain Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 3
40s 22
50s 22
60s 11
70+ 1

Gender

Distribution of females vs. males

72% Females
28% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 3
30-39 years 8
40-49 years 14
50-59 years 7
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 41
Not Diagnosed 4

These charts show data from Central Pain Syndrome patients who have completed their condition history
Last updated: