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What is it like to have Systemic Lupus Erythematosus?

Common Symptoms	Patients' Latest Severity	My Current Severity
	Severity Severe Moderate Mild None
Butterfly (malar) rash	53 (5%) patients experienced severe severity 183 (18%) patients experienced moderate severity 285 (29%) patients experienced mild severity 470 (47%) patients experienced no severity	None Mild Moderate Severe
Joint pain	363 (36%) patients experienced severe severity 433 (42%) patients experienced moderate severity 159 (16%) patients experienced mild severity 67 (7%) patients experienced no severity	None Mild Moderate Severe

What do patients take to treat Systemic Lupus Erythematosus and its symptoms?

Commonly prescribed and frequently used treatments

Treatment name	Efficacy	Overall rating of side effects	# of Evaluations
Hydroxychloroquine (Hydroxychlor, Plaquenil)	20 (25%) experienced major efficacy 18 (23%) experienced moderate efficacy 12 (15%) experienced slight efficacy 9 (11%) experienced no efficacy 20 (25%) could not tell	17 (22%) experienced severe side effects 14 (18%) experienced moderate side effects 15 (19%) experienced mild side effects 33 (42%) experienced no side effects	79
Prednisone (Encorton, Deltasone, Pronizon)	23 (50%) experienced major efficacy 10 (22%) experienced moderate efficacy 4 (9%) experienced slight efficacy 1 (2%) experienced no efficacy 8 (17%) could not tell	14 (30%) experienced severe side effects 21 (46%) experienced moderate side effects 8 (17%) experienced mild side effects 3 (7%) experienced no side effects	46
Naproxen OTC (Equate Naproxen, Good Sense Naproxen Sodium, Kroger Naproxen Sodium, Members Mark Naproxen Sodium)	2 (17%) experienced major efficacy 3 (25%) experienced moderate efficacy 4 (33%) experienced slight efficacy 2 (17%) experienced no efficacy 1 (8%) could not tell	2 (17%) experienced severe side effects 2 (17%) experienced moderate side effects 2 (17%) experienced mild side effects 6 (50%) experienced no side effects	12
Mycophenolate (CellCept)	4 (44%) experienced major efficacy 3 (33%) experienced moderate efficacy 0 (0%) experienced slight efficacy 0 (0%) experienced no efficacy 2 (22%) could not tell	4 (44%) experienced severe side effects 0 (0%) experienced moderate side effects 1 (11%) experienced mild side effects 4 (44%) experienced no side effects	9
Azathioprine (Imurek, Azasan, Azapress, Imurel)	1 (11%) experienced major efficacy 2 (22%) experienced moderate efficacy 2 (22%) experienced slight efficacy 1 (11%) experienced no efficacy 3 (33%) could not tell	3 (33%) experienced severe side effects 1 (11%) experienced moderate side effects 2 (22%) experienced mild side effects 3 (33%) experienced no side effects	9
Belimumab (Benlysta)	1 (14%) experienced major efficacy 1 (14%) experienced moderate efficacy 1 (14%) experienced slight efficacy 1 (14%) experienced no efficacy 3 (43%) could not tell	3 (43%) experienced severe side effects 0 (0%) experienced moderate side effects 3 (43%) experienced mild side effects 1 (14%) experienced no side effects	7

These charts show data from Systemic Lupus Erythematosus patients' latest treatment evaluations

Who has Systemic Lupus Erythematosus at PatientsLikeMe?

2,477 patients have this condition
377 New patients joined this month
2,011 say Systemic Lupus Erythematosus is their primary condition

<20	20-29	30-39	40-49	50-59	60-69	70+
Current Age
38 patients	227 patients	554 patients	683 patients	468 patients	103 patients	10 patients

Distribution of females vs. males
Gender
97%	Females
3%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 yrs	361	361
20-29 yrs	423	423
30-39 yrs	386	386
40-49 yrs	185	185
50-59 yrs	51	51
60-69 yrs	7	7
70+ yrs	0	0

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	1680	1680
Not Officially Diagnosed	76	76

These charts show data from Systemic Lupus Erythematosus patients who have completed their condition history

Find patients just like you Patients with Systemic Lupus Erythematosus

Where do I talk to patients with Systemic Lupus Erythematosus?

Immune, Inflammatory and Infections Room

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