Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

What is it like to have Epilepsy?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Epilepsy and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Keppra, Keppra XR)
Type
Prescription Drug
How many have tried
472
How many evaluations
291
Treatment name(s)

(Apo-Lamotrigine, Epitec, Lamez) 14 more
Type
Prescription Drug
How many have tried
292
How many evaluations
144
Treatment name(s)

(Topamac, Topamax, Topamax Sprinkle) 3 more
Type
Prescription Drug
How many have tried
206
How many evaluations
124
Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
205
How many evaluations
116
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
147
How many evaluations
64
Treatment name(s)

(Carbagen, Carbamazepine XR, Carbatrol) 12 more
Type
Prescription Drug
How many have tried
137
How many evaluations
53
Treatment name(s)

(Apo-Divalproex, Depakote, Depakote ER) 7 more
Type
Prescription Drug
How many have tried
134
How many evaluations
68
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
105
How many evaluations
63
Treatment name(s)

(Oleptal, Oxtellar XR, Trileptal)
Type
Prescription Drug
How many have tried
93
How many evaluations
36
Treatment name(s)

(Dilantin, Dilantin Infatabs, Dilantin Kapseals) 5 more
Type
Prescription Drug
How many have tried
87
How many evaluations
45
See all 265 treatments
Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Epilepsy

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Keppra, Keppra XR)
How many have tried
472
Perceived effectiveness
Side effects
Tiredness Dizziness 147 more
How many evaluations
291
Treatment name(s)

(Apo-Lamotrigine, Epitec, Lamez) 14 more
How many have tried
292
Perceived effectiveness
Side effects
Tiredness Fatigue 103 more
How many evaluations
144
Treatment name(s)

(Topamac, Topamax, Topamax Sprinkle) 3 more
How many have tried
206
Perceived effectiveness
Side effects
Memory problems Weight loss 107 more
How many evaluations
124
Treatment name(s)

(Vimpat)
How many have tried
205
Perceived effectiveness
Side effects
Dizziness Double vision (diplopia) 71 more
How many evaluations
116
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
How many have tried
147
Perceived effectiveness
Side effects
Fatigue Drowsiness 19 more
How many evaluations
64
Treatment name(s)

(Carbagen, Carbamazepine XR, Carbatrol) 12 more
How many have tried
137
Perceived effectiveness
Side effects
Dizziness Balance problems 43 more
How many evaluations
53
Treatment name(s)

(Apo-Divalproex, Depakote, Depakote ER) 7 more
How many have tried
134
Perceived effectiveness
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 44 more
How many evaluations
68
Treatment name(s)

(Zonegran)
How many have tried
105
Perceived effectiveness
Side effects
Fatigue Diarrhea 54 more
How many evaluations
63
Treatment name(s)

(Oleptal, Oxtellar XR, Trileptal)
How many have tried
93
Perceived effectiveness
Side effects
Dizziness Drowsiness 30 more
How many evaluations
36
Treatment name(s)

(Dilantin, Dilantin Infatabs, Dilantin Kapseals) 5 more
How many have tried
87
Perceived effectiveness
Side effects
Drowsiness Insomnia 37 more
How many evaluations
45
See all 265 treatments
Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 491
20s 1,445
30s 2,003
40s 2,034
50s 1,434
60s 504
70+ 100

Gender

Distribution of females vs. males

67% Females
33% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,806
20-29 years 798
30-39 years 454
40-49 years 252
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,271
Not Diagnosed 183

These charts show data from Epilepsy patients who have completed their condition history
Last updated: