Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

What is it like to have Epilepsy?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Epilepsy and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Epilepsy patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?

  • 8,872patients have this condition
  • 311new patients joined this month
  • 7,960say Epilepsy is their primary condition

Age
Age Proportion # of patients
<20 462
20s 1,398
30s 1,912
40s 1,869
50s 1,320
60s 456
70+ 90

Gender

Distribution of females vs. males

67% Females
33% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,818
20-29 years 800
30-39 years 454
40-49 years 252
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,007
Not Diagnosed 186

These charts show data from Epilepsy patients who have completed their condition history
Last updated: