Epilepsy

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra, Keppra XR)
Type
Prescription Drug
How many have tried
456
Tried for
Epilepsy (455) Anxious mood (2)
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Treatment name(s)

(Apo-Lamotrigine, Epitec, Lamez) 14 more
Type
Prescription Drug
How many have tried
281
Tried for
Epilepsy (280) Depressed mood (2)
5 more
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Treatment name(s)

(Topamac, Topamax, Topamax Sprinkle) 3 more
Type
Prescription Drug
How many have tried
203
Tried for
Epilepsy (199) Headaches (11)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
196
Tried for
Epilepsy (196) Anxious mood (1)
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Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
141
Tried for
Epilepsy (129) Anxious mood (30)
1 more
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Treatment name(s)

(Carbagen, Carbamazepine XR, Carbatrol) 12 more
Type
Prescription Drug
How many have tried
136
Tried for
Epilepsy (136)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Divalproex, Depakote, Depakote ER) 7 more
Type
Prescription Drug
How many have tried
131
Tried for
Epilepsy (131) Depressed mood (3)
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Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
103
Tried for
Epilepsy (103)
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Treatment name(s)

(Oleptal, Oxtellar XR, Trileptal)
Type
Prescription Drug
How many have tried
88
Tried for
Epilepsy (88) Pain (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Dilantin, Dilantin Infatabs, Dilantin Kapseals) 5 more
Type
Prescription Drug
How many have tried
83
Tried for
Epilepsy (83)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra, Keppra XR)
Perceived effectiveness
for Epilepsy (261 evaluations)
Side effects
Tiredness Dizziness 134 more
How many evaluations
270
Tried for
Epilepsy (455) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Lamotrigine, Epitec, Lamez) 14 more
Perceived effectiveness
for Epilepsy (138 evaluations)
Side effects
Tiredness Fatigue 102 more
How many evaluations
142
Tried for
Epilepsy (280) Depressed mood (2)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamac, Topamax, Topamax Sprinkle) 3 more
Perceived effectiveness
for Epilepsy (111 evaluations)
Side effects
Fatigue Memory problems 110 more
How many evaluations
125
Tried for
Epilepsy (199) Headaches (11)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (94 evaluations)
Side effects
Dizziness Double vision (diplopia) 88 more
How many evaluations
112
Tried for
Epilepsy (196) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Perceived effectiveness
for Epilepsy (41 evaluations)
Side effects
Fatigue Sedation 19 more
How many evaluations
61
Tried for
Epilepsy (129) Anxious mood (30)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Carbagen, Carbamazepine XR, Carbatrol) 12 more
Perceived effectiveness
for Epilepsy (47 evaluations)
Side effects
Dizziness Balance problems 43 more
How many evaluations
51
Tried for
Epilepsy (136)
Check to add this treatment to your profile
Treatment name(s)

(Apo-Divalproex, Depakote, Depakote ER) 7 more
Perceived effectiveness
for Epilepsy (59 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 45 more
How many evaluations
68
Tried for
Epilepsy (131) Depressed mood (3)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (62 evaluations)
Side effects
Fatigue Diarrhea 53 more
How many evaluations
62
Tried for
Epilepsy (103)
Check to add this treatment to your profile
Treatment name(s)

(Oleptal, Oxtellar XR, Trileptal)
Perceived effectiveness
for Epilepsy (34 evaluations)
Side effects
Dizziness Low blood sodium (hyponatremia) 30 more
How many evaluations
36
Tried for
Epilepsy (88) Pain (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Dilantin, Dilantin Infatabs, Dilantin Kapseals) 5 more
Perceived effectiveness
for Epilepsy (41 evaluations)
Side effects
Drowsiness Insomnia 29 more
How many evaluations
43
Tried for
Epilepsy (83)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 497
20s 1,451
30s 2,035
40s 2,069
50s 1,444
60s 512
70+ 102

Gender

Distribution of females vs. males

67% Females
33% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,803
20-29 years 798
30-39 years 453
40-49 years 252
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,307
Not Diagnosed 183

These charts show data from Epilepsy patients who have completed their condition history
Last updated: