We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

What is it like to have Epilepsy?

Common symptoms How bad it is What people are taking for it
Amphetamine-Dextroamphetamine, Handicap/Disability Parking Permit, Vitamin B Complex
Donepezil, Journal Writing, Protein Supplements
Amphetamine-Dextroamphetamine, Methylphenidate, Lisdexamfetamine
Modafinil, Armodafinil, Naps
Ibuprofen, Acetaminophen-aspirin-caffeine, Topiramate
Hydrocodone-Acetaminophen, Ibuprofen, Gabapentin
Sertraline, Citalopram, Fluoxetine
Zolpidem, Trazodone, Quetiapine
Clonazepam, Lorazepam, Alprazolam

What do patients take to treat Epilepsy and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Keppra XR, Keppra)


(Lamictal Starter Kit (Orange), Lamictal Green, Lamogine, Lamez)


(Epitol, Carbamazepine XR, Shire Carbamazepine, Hermolepsin retard)


(Topictal, Toprel, Topamax Sprinkle, Topamax)


(Dilantin Kapseals, Epamin, Phenytek, Phenytoin liquid)


(Divalproex sodium ER, Epival, Encorate chrono, Divalproex DR)






(Clonotril, APO Clonazepam, Rivotril drops, Klonopin Wafer)


(Oxtellar XR, Oleptal, Trileptal)


(Phenobarbitalum, Luminal)


(APO-Gabapentin, Gralise, PMS-Gabapentin, DOM-Gabapentin)


(Sandoz Lorazepam, Tranquipam, Ativan SL, APO-Lorazepam)




These charts show data from Epilepsy patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?

  • 8,436 patients have this condition
  • 27 new patients joined this month
  • 7,557 say Epilepsy is their primary condition

Age Proportion # of patients
<20 450
20s 1,351
30s 1,828
40s 1,779
50s 1,206
60s 413
70+ 82


Distribution of females vs. males

68% Females
32% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,820
20-29 years 801
30-39 years 454
40-49 years 254
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4,805
Not Diagnosed 187

These charts show data from Epilepsy patients who have completed their condition history
Last updated: