Epilepsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with Epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
439
Tried for
Epilepsy (438) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
271
Tried for
Epilepsy (270) Depressed mood (2)
5 more
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Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
197
Tried for
Epilepsy (194) Headaches (10)
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Treatment name(s)

(Vimpat)
Type
Prescription Drug
How many have tried
183
Tried for
Epilepsy (183) Anxious mood (1)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
136
Tried for
Epilepsy (123) Anxious mood (29)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
132
Tried for
Epilepsy (132)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
127
Tried for
Epilepsy (127) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Type
Prescription Drug
How many have tried
102
Tried for
Epilepsy (102)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Type
Prescription Drug
How many have tried
81
Tried for
Epilepsy (81) Depressed mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Type
Prescription Drug
How many have tried
77
Tried for
Epilepsy (77)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Epilepsy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Keppra)
Perceived effectiveness
for Epilepsy (239 evaluations)
Side effects
Tiredness Mood swings 128 more
How many evaluations
248
Tried for
Epilepsy (438) Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Lamictal)
Perceived effectiveness
for Epilepsy (131 evaluations)
Side effects
Tiredness Memory problems 94 more
How many evaluations
134
Tried for
Epilepsy (270) Depressed mood (2)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Topamax)
Perceived effectiveness
for Epilepsy (105 evaluations)
Side effects
Fatigue Memory problems 109 more
How many evaluations
117
Tried for
Epilepsy (194) Headaches (10)
Check to add this treatment to your profile
Treatment name(s)

(Vimpat)
Perceived effectiveness
for Epilepsy (89 evaluations)
Side effects
Dizziness Double vision (diplopia) 90 more
How many evaluations
104
Tried for
Epilepsy (183) Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Epilepsy (39 evaluations)
Side effects
Fatigue Sedation 17 more
How many evaluations
57
Tried for
Epilepsy (123) Anxious mood (29)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tegretol)
Perceived effectiveness
for Epilepsy (47 evaluations)
Side effects
Dizziness Balance problems 45 more
How many evaluations
51
Tried for
Epilepsy (132)
Check to add this treatment to your profile
Treatment name(s)

(Depakote)
Perceived effectiveness
for Epilepsy (59 evaluations)
Side effects
Weight gain Excessive daytime sleepiness (somnolence) 43 more
How many evaluations
67
Tried for
Epilepsy (127) Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Zonegran)
Perceived effectiveness
for Epilepsy (50 evaluations)
Side effects
Fatigue Anxious mood 49 more
How many evaluations
50
Tried for
Epilepsy (102)
Check to add this treatment to your profile
Treatment name(s)

(Trileptal)
Perceived effectiveness
for Epilepsy (28 evaluations)
Side effects
Dizziness Depressed mood 25 more
How many evaluations
30
Tried for
Epilepsy (81) Depressed mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Dilantin)
Perceived effectiveness
for Epilepsy (41 evaluations)
Side effects
Drowsiness Insomnia 29 more
How many evaluations
43
Tried for
Epilepsy (77)

Data from patients with Epilepsy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Epilepsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 495
20s 1,452
30s 2,054
40s 2,089
50s 1,455
60s 530
70+ 104

Gender

Distribution of females vs. males

67% Females
33% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,799
20-29 years 798
30-39 years 453
40-49 years 251
50-59 years 78
60-69 years 23
70+ years 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,339
Not Diagnosed 183

These charts show data from Epilepsy patients who have completed their condition history
Last updated: