What is Charcot Marie Tooth Disease?

Charcot-Marie-Tooth disease is an inherited disorder of nerves. It is characterized by loss of muscle tissue and touch sensation, predominantly in the feet and legs but also in the hands and arms in the advanced stages of disease. Subtypes are categorized by the genetic mutation.

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What is it like to have Charcot Marie Tooth?

Common symptoms How bad it is What people are taking for it
Severity
Severe
Moderate
Mild
None
Oxazepam, Clonazepam
Ibuprofen, Codeine-Acetaminophen, Amitriptyline
Temazepam, SleepWell supplement, Zolpidem
Motorized scooter/chair, Lift chair, Occupational therapy
Temazepam

What do patients take to treat Charcot Marie Tooth and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations
(Spinal traction, Pelvic Floor Therapy, Soft Tissue Massage, Balance and gait training)
2
(Sensory Integration Therapy, Outpatient Occupational Therapy, Home occupational therapy)
0

These charts show data from Charcot Marie Tooth patients' latest treatment evaluations

Who has Charcot Marie Tooth at PatientsLikeMe?

<20 20s 30s 40s 50s 60s 70+
Current Age
Distribution of females vs. males
Gender
54% Females
46% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 years 31
20-29 years 10
30-39 years 6
40-49 years 7
50-59 years 5
60-69 years 1
70+ years 0
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 66
Not Diagnosed 4

These charts show data from Charcot Marie Tooth patients who have completed their condition history