What is Charcot Marie Tooth?
Charcot-Marie-Tooth disease is an inherited disorder of nerves. It is characterized by loss of muscle tissue and touch sensation, predominantly in the feet and legs but also in the hands and arms in the advanced stages of disease. Subtypes are categorized by the genetic mutation.
What do patients take to treat Charcot Marie Tooth and its symptoms?
Commonly prescribed and frequently used treatments
| Treatment name | Efficacy | Overall rating of side effects | # of Evaluations |
|---|---|---|---|
|
Physical Therapy (PT)
(Recumbent Stepper, Outpatient PT, PRRT, Pelvic Floor Therapy)
|
0 | ||
|
Occupational therapy
(Sensory Integration Therapy, Outpatient Occupational Therapy, Home occupational therapy)
|
0 |
These charts show data from Charcot Marie Tooth patients' latest treatment evaluations
Who has Charcot Marie Tooth at PatientsLikeMe?
- 57 patients have this condition
- 3 New patients joined this month
- 38 say Charcot Marie Tooth is their primary condition
| <20 | 20-29 | 30-39 | 40-49 | 50-59 | 60-69 | 70+ |
|---|---|---|---|---|---|---|
| Current Age | ||||||
| Gender | |
| 57% | Females |
|---|---|
| 43% | Males |
| Age at first symptom | # of patients | Proportion |
|---|---|---|
| 0-19 yrs | 26 | |
| 20-29 yrs | 5 | |
| 30-39 yrs | 2 | |
| 40-49 yrs | 4 | |
| 50-59 yrs | 3 | |
| 60-69 yrs | 0 | |
| 70+ yrs | 0 |
| Diagnosis status | # of patients | Proportion |
|---|---|---|
| Diagnosed | 42 | |
| Not Officially Diagnosed | 4 |
These charts show data from Charcot Marie Tooth patients who have completed their condition history