What is Charcot Marie Tooth?

Charcot-Marie-Tooth disease is an inherited disorder of nerves. It is characterized by loss of muscle tissue and touch sensation, predominantly in the feet and legs but also in the hands and arms in the advanced stages of disease. Subtypes are categorized by the genetic mutation.

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What do patients take to treat Charcot Marie Tooth and its symptoms?

Commonly prescribed and frequently used treatments

Treatment name Efficacy Overall rating of side effects # of Evaluations
Physical Therapy (PT)
(Recumbent Stepper, Outpatient PT, PRRT, Pelvic Floor Therapy)
0
Occupational therapy
(Sensory Integration Therapy, Outpatient Occupational Therapy, Home occupational therapy)
0

These charts show data from Charcot Marie Tooth patients' latest treatment evaluations

Who has Charcot Marie Tooth at PatientsLikeMe?

<20 20-29 30-39 40-49 50-59 60-69 70+
Current Age
Distribution of females vs. males
Gender
57% Females
43% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 yrs 26
20-29 yrs 5
30-39 yrs 2
40-49 yrs 4
50-59 yrs 3
60-69 yrs 0
70+ yrs 0
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 42
Not Officially Diagnosed 4

These charts show data from Charcot Marie Tooth patients who have completed their condition history