What is Charcot Marie Tooth Disease?
Charcot-Marie-Tooth disease is an inherited disorder of nerves. It is characterized by loss of muscle tissue and touch sensation, predominantly in the feet and legs but also in the hands and arms in the advanced stages of disease. Subtypes are categorized by the genetic mutation.
What is it like to have Charcot Marie Tooth?
| Common symptoms | How bad it is | What people are taking for it |
|---|---|---|
|
||
| Anxious mood | Oxazepam, Clonazepam | |
| Pain | Ibuprofen, Codeine-Acetaminophen, Amitriptyline | |
| Insomnia | Temazepam, SleepWell supplement, Zolpidem | |
| Fatigue | Motorized scooter/chair, Lift chair, Occupational therapy | |
| Depressed mood | Temazepam | |
What do patients take to treat Charcot Marie Tooth and its symptoms?
| Treatments reported by members | Perceived effectiveness | Overall rating of side effects | # of Evaluations |
|---|---|---|---|
|
Physical Therapy (PT)
(Spinal traction, Pelvic Floor Therapy, Soft Tissue Massage, Balance and gait training)
|
2 | ||
|
Occupational therapy
(Sensory Integration Therapy, Outpatient Occupational Therapy, Home occupational therapy)
|
0 |
These charts show data from Charcot Marie Tooth patients' latest treatment evaluations
Who has Charcot Marie Tooth at PatientsLikeMe?
- 95 patients have this condition
- 0 New patients joined this month
- 70 say Charcot Marie Tooth is their primary condition
| <20 | 20s | 30s | 40s | 50s | 60s | 70+ |
|---|---|---|---|---|---|---|
| Current Age | ||||||
| Gender | |
| 54% | Females |
|---|---|
| 46% | Males |
| Age at first symptom | # of patients | Proportion |
|---|---|---|
| 0-19 years | 31 | |
| 20-29 years | 10 | |
| 30-39 years | 6 | |
| 40-49 years | 7 | |
| 50-59 years | 5 | |
| 60-69 years | 1 | |
| 70+ years | 0 |
These charts show data from Charcot Marie Tooth patients who have completed their condition history
Updating results…