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What is it like to have NMO?

Common Symptoms	Patients' Latest Severity	My Current Severity
	Severity Severe Moderate Mild None
Bladder problems	25 (15%) patients experienced severe severity 42 (25%) patients experienced moderate severity 48 (29%) patients experienced mild severity 51 (31%) patients experienced no severity	None Mild Moderate Severe
Bowel problems	15 (9%) patients experienced severe severity 32 (19%) patients experienced moderate severity 65 (39%) patients experienced mild severity 54 (33%) patients experienced no severity	None Mild Moderate Severe
Brain fog	6 (4%) patients experienced severe severity 28 (17%) patients experienced moderate severity 66 (40%) patients experienced mild severity 66 (40%) patients experienced no severity	None Mild Moderate Severe
Emotional lability	5 (3%) patients experienced severe severity 15 (9%) patients experienced moderate severity 59 (36%) patients experienced mild severity 87 (52%) patients experienced no severity	None Mild Moderate Severe
Excessive daytime sleepiness (somnolence)	13 (8%) patients experienced severe severity 33 (20%) patients experienced moderate severity 56 (34%) patients experienced mild severity 64 (39%) patients experienced no severity	None Mild Moderate Severe
Mood swings	9 (5%) patients experienced severe severity 23 (14%) patients experienced moderate severity 77 (46%) patients experienced mild severity 57 (34%) patients experienced no severity	None Mild Moderate Severe
Sexual dysfunction	25 (15%) patients experienced severe severity 36 (22%) patients experienced moderate severity 32 (19%) patients experienced mild severity 73 (44%) patients experienced no severity	None Mild Moderate Severe
Stiffness/Spasticity	27 (16%) patients experienced severe severity 53 (32%) patients experienced moderate severity 53 (32%) patients experienced mild severity 33 (20%) patients experienced no severity	None Mild Moderate Severe

What do patients take to treat NMO and its symptoms?

Commonly prescribed and frequently used treatments

	Efficacy	Overall rating of side effects	# of Evaluations
Mycophenolate (CellCept)	4 (33%) experienced major efficacy 3 (25%) experienced moderate efficacy 0 (0%) experienced slight efficacy 1 (8%) experienced no efficacy 4 (33%) could not tell	1 (8%) experienced severe side effects 3 (25%) experienced moderate side effects 4 (33%) experienced mild side effects 4 (33%) experienced no side effects	12
Rituximab (Mabthera, Rituxan)	6 (50%) experienced major efficacy 1 (8%) experienced moderate efficacy 1 (8%) experienced slight efficacy 2 (17%) experienced no efficacy 2 (17%) could not tell	2 (17%) experienced severe side effects 1 (8%) experienced moderate side effects 4 (33%) experienced mild side effects 5 (42%) experienced no side effects	12
Azathioprine (Imurek, Imurel, Azasan, Azapress)	3 (27%) experienced major efficacy 1 (9%) experienced moderate efficacy 1 (9%) experienced slight efficacy 1 (9%) experienced no efficacy 5 (45%) could not tell	1 (9%) experienced severe side effects 5 (45%) experienced moderate side effects 2 (18%) experienced mild side effects 3 (27%) experienced no side effects	11
Plasmapheresis	4 (67%) experienced major efficacy 0 (0%) experienced moderate efficacy 1 (17%) experienced slight efficacy 0 (0%) experienced no efficacy 1 (17%) could not tell	0 (0%) experienced severe side effects 1 (17%) experienced moderate side effects 3 (50%) experienced mild side effects 2 (33%) experienced no side effects	6
Prednisone (Encorton, Deltasone, Pronizon)	2 (40%) experienced major efficacy 1 (20%) experienced moderate efficacy 1 (20%) experienced slight efficacy 1 (20%) experienced no efficacy 0 (0%) could not tell	3 (60%) experienced severe side effects 1 (20%) experienced moderate side effects 0 (0%) experienced mild side effects 1 (20%) experienced no side effects	5
Methylprednisolone (Urbason solubile, Methylprednisolon AL, Advantan, Wockhardt Methylprednisolone)	2 (50%) experienced major efficacy 0 (0%) experienced moderate efficacy 0 (0%) experienced slight efficacy 1 (25%) experienced no efficacy 1 (25%) could not tell	0 (0%) experienced severe side effects 0 (0%) experienced moderate side effects 3 (75%) experienced mild side effects 1 (25%) experienced no side effects	4

These charts show data from NMO patients' latest treatment evaluations

Who has NMO at PatientsLikeMe?

349 patients have this condition
3 New patients joined this month
334 say NMO is their primary condition

<20	20-29	30-39	40-49	50-59	60-69	70+
Current Age
6 patients	18 patients	51 patients	57 patients	47 patients	15 patients	7 patients

Distribution of females vs. males
Gender
77%	Females
23%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 yrs	11	11
20-29 yrs	30	30
30-39 yrs	55	55
40-49 yrs	38	38
50-59 yrs	21	21
60-69 yrs	3	3
70+ yrs	2	2

Types
Condition Types	# of patients	Proportion
Asian Optic-Spinal MS	2	2
Monophasic NMO	5	5
NMO Spectrum Disorder	10	10
Relapsing NMO	51	51

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	159	159
Not Officially Diagnosed	30	30

These charts show data from NMO patients who have completed their condition history

Find patients just like you Patients with NMO

Where do I talk to patients with NMO?

NMO (Neuromyelitis Optica) Room

**463** members
1k+ posts | 426 topics

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