Primary Progressive Aphasia

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Primary Progressive Aphasia?

Primary Progressive Aphasia (PPA) is a type of dementia that may occur in individuals under the age of 65, it is a deficit of language functions. Due to brain cell degeneration, PPA affects speaking, comprehension of conversational speech, reading and writing.

What is it like to have Primary Progressive Aphasia?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Primary Progressive Aphasia and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)
Type
Other
How many have tried
1
How many evaluations
1
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)
Type
Other
How many have tried
1
How many evaluations
1
Treatment name(s)

(Bio Organics CoQ10 Capules, CoQ10 Liquid, CoQ10 Plus) 20 more
Type
Supplement
How many have tried
1
How many evaluations
0
Treatment name(s)

(Cipralex, Es Pramcit, Esipram) 6 more
Type
Prescription Drug
How many have tried
1
How many evaluations
3
Treatment name(s)

(APO-Lorazepam, Ativan, Ativan SL) 7 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)
Type
Supplement
How many have tried
1
How many evaluations
0
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
1
How many evaluations
1
See all 16 treatments
Data from patients with Primary Progressive Aphasia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Primary Progressive Aphasia

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
How many have tried
1
Perceived effectiveness
Side effects
Weight gain
How many evaluations
1
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
Optimism
How many evaluations
1
Treatment name(s)

(Bio Organics CoQ10 Capules, CoQ10 Liquid, CoQ10 Plus) 20 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Cipralex, Es Pramcit, Esipram) 6 more
How many have tried
1
Perceived effectiveness
Side effects
Dilated pupil(s)
How many evaluations
3
Treatment name(s)

(APO-Lorazepam, Ativan, Ativan SL) 7 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
How many have tried
1
Perceived effectiveness
Side effects
Weight loss
How many evaluations
1
See all 16 treatments
Data from patients with Primary Progressive Aphasia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Primary Progressive Aphasia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 1
40s 7
50s 6
60s 8
70+ 6

Gender

Distribution of females vs. males

38% Females
63% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 3
40-49 years 1
50-59 years 1
60-69 years 2
70+ years 2

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 14
Not Diagnosed 4

These charts show data from Primary Progressive Aphasia patients who have completed their condition history
Last updated: