ASD (Autism Spectrum Disorder)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is ASD (Autism Spectrum Disorder)?

Autism spectrum disorders are neural development disorders characterized by impaired social interaction and communication, restricted and repetitive behavior, with varying developmental and intellectual disabilities. These signs begin before a child is three years old.

What is it like to have ASD (Autism Spectrum Disorder)?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat ASD (Autism Spectrum Disorder) and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Home occupational therapy, Outpatient Occupational Therapy)
Type
Physical Therapy
How many have tried
19
Treatment name(s)
Type
Physical Therapy
How many have tried
16
Type
Lifestyle Modification
How many have tried
8
Treatment name(s)

(Apo-Risperidone, Arketin, Buzon) 6 more
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Abilify, Abilify Discmelt, Amirozole) 1 more
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
5
Tried for
Pain (4) Fatigue (1)
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (4)
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (3) Insomnia (1)
Treatment name(s)

(Actan, Flunil, Fluxene) 15 more
Type
Prescription Drug
How many have tried
4
Tried for
Depressed mood (4)
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)

Data from patients with ASD (Autism Spectrum Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for ASD (Autism Spectrum Disorder)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Treatment name(s)

(Home occupational therapy, Outpatient Occupational Therapy)
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (4 evaluations)
Side effects
Confusion Ritual or repeated behaviors 1 more
How many evaluations
4
Treatment name(s)
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (1 evaluation)
Side effects
How many evaluations
1
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Treatment name(s)

(Apo-Risperidone, Arketin, Buzon) 6 more
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (1 evaluation)
Side effects
How many evaluations
1
Treatment name(s)

(Abilify, Abilify Discmelt, Amirozole) 1 more
Perceived effectiveness
for ASD (Autism Spectrum Disorder) (3 evaluations)
Side effects
Agitation with restlessness Night sweats
How many evaluations
4
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Perceived effectiveness
for Pain (5 evaluations)
Side effects
Muscle and joint pain Nausea
How many evaluations
8
Tried for
Pain (4) Fatigue (1)
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Cognitive confusion Daytime sleepiness 1 more
How many evaluations
1
Tried for
Anxious mood (4)
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Perceived effectiveness
for Anxious mood (4 evaluations)
Side effects
How many evaluations
4
Tried for
Anxious mood (3) Insomnia (1)
Treatment name(s)

(Actan, Flunil, Fluxene) 15 more
Perceived effectiveness
for Depressed mood (3 evaluations)
Side effects
How many evaluations
3
Tried for
Depressed mood (4)
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (4)

Data from patients with ASD (Autism Spectrum Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has ASD (Autism Spectrum Disorder) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 279
20s 126
30s 146
40s 150
50s 66
60s 9
70+ 3

Gender

Distribution of females vs. males

53% Females
47% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 262
20-29 years 14
30-39 years 11
40-49 years 3
50-59 years 1
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 380
Not Diagnosed 80

These charts show data from Autism patients who have completed their condition history
Last updated: