Hypogammaglobulinemia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Hypogammaglobulinemia?

Hypogammaglobulinemia is an immune disorder characterized by a reduction in all types of gamma globulins, including antibodies that help fight infection. It may be congenital (present at birth), related to medication; it may be due to a kidney or gastrointestinal condition, cancer or severe burns.

Common symptoms reported by people with Hypogammaglobulinemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Hypogammaglobulinemia

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Gammagard)
Type
Prescription Drug
How many have tried
11
Tried for
Hypogammaglobulinemia (11)
Check to add this treatment to your profile
Treatment name(s)

(Hizentra)
Type
Prescription Drug
How many have tried
3
Tried for
Hypogammaglobulinemia (3)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Synthroid)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
Fatigue (1)

Data from patients with Hypogammaglobulinemia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Hypogammaglobulinemia

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Gammagard)
Perceived effectiveness
for Hypogammaglobulinemia (6 evaluations)
Side effects
Headaches Bone Pain 14 more
How many evaluations
6
Tried for
Hypogammaglobulinemia (11)
Check to add this treatment to your profile
Treatment name(s)

(Hizentra)
Perceived effectiveness
for Hypogammaglobulinemia (2 evaluations)
Side effects
Nausea sometimes Pressure headaches
How many evaluations
2
Tried for
Hypogammaglobulinemia (3)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Synthroid)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
How many evaluations
1
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Anxious mood
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Depressed mood
How many evaluations
1
Tried for
Fatigue (1)

Data from patients with Hypogammaglobulinemia, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Hypogammaglobulinemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 19
20s 11
30s 20
40s 47
50s 65
60s 36
70+ 9

Gender

Distribution of females vs. males

83% Females
17% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 33
20-29 years 10
30-39 years 13
40-49 years 20
50-59 years 13
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 120
Not Diagnosed 3

These charts show data from Hypogammaglobulinemia patients who have completed their condition history
Last updated: