Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
1,066
Tried for
Multiple Sclerosis (1064) Stiffness/Spasticity (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
Type
Prescription Drug
How many have tried
735
Tried for
Multiple Sclerosis (644) Stiffness/Spasticity (285)
2 more
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Treatment name(s)

(Ampyra, Fampyra)
Type
Prescription Drug
How many have tried
679
Tried for
Multiple Sclerosis (671) Stiffness/Spasticity (7)
2 more
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Treatment name(s)

(Antegren, Tysabri)
Type
Prescription Drug
How many have tried
614
Tried for
Multiple Sclerosis (611) Stiffness/Spasticity (4)
1 more
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Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
Type
Prescription Drug
How many have tried
589
Tried for
Multiple Sclerosis (589)
Check to add this treatment to your profile
Treatment name(s)

(Rebif, Rebif Rebidose)
Type
Prescription Drug
How many have tried
490
Tried for
Multiple Sclerosis (488) Stiffness/Spasticity (10)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
467
Tried for
Multiple Sclerosis (467)
Check to add this treatment to your profile
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
Type
Prescription Drug
How many have tried
378
Tried for
Multiple Sclerosis (378) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
Type
Prescription Drug
How many have tried
302
Tried for
Multiple Sclerosis (265) Fatigue (130)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
Type
Prescription Drug
How many have tried
223
Tried for
Multiple Sclerosis (223) Fatigue (2)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (574 evaluations)
Side effects
Injection site reaction Injection site pain 153 more
How many evaluations
578
Tried for
Multiple Sclerosis (1064) Stiffness/Spasticity (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
Perceived effectiveness
for Multiple Sclerosis (169 evaluations)
Side effects
Drowsiness Fatigue 78 more
How many evaluations
272
Tried for
Multiple Sclerosis (644) Stiffness/Spasticity (285)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra, Fampyra)
Perceived effectiveness
for Multiple Sclerosis (307 evaluations)
Side effects
Insomnia Dizziness 82 more
How many evaluations
435
Tried for
Multiple Sclerosis (671) Stiffness/Spasticity (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Antegren, Tysabri)
Perceived effectiveness
for Multiple Sclerosis (416 evaluations)
Side effects
Headaches Fatigue 114 more
How many evaluations
420
Tried for
Multiple Sclerosis (611) Stiffness/Spasticity (4)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
Perceived effectiveness
for Multiple Sclerosis (358 evaluations)
Side effects
Headaches Fatigue 148 more
How many evaluations
362
Tried for
Multiple Sclerosis (589)
Check to add this treatment to your profile
Treatment name(s)

(Rebif, Rebif Rebidose)
Perceived effectiveness
for Multiple Sclerosis (270 evaluations)
Side effects
Flu like symptoms Headaches 130 more
How many evaluations
272
Tried for
Multiple Sclerosis (488) Stiffness/Spasticity (10)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (303 evaluations)
Side effects
Flushing Facial flushing 137 more
How many evaluations
301
Tried for
Multiple Sclerosis (467)
Check to add this treatment to your profile
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
Perceived effectiveness
for Multiple Sclerosis (240 evaluations)
Side effects
Flu like symptoms Fever/chills 113 more
How many evaluations
240
Tried for
Multiple Sclerosis (378) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
Perceived effectiveness
for Multiple Sclerosis (67 evaluations)
Side effects
Jittery feeling Anxious mood 37 more
How many evaluations
119
Tried for
Multiple Sclerosis (265) Fatigue (130)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
Perceived effectiveness
for Multiple Sclerosis (134 evaluations)
Side effects
Flu like symptoms Injection site reaction 63 more
How many evaluations
134
Tried for
Multiple Sclerosis (223) Fatigue (2)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 32
20s 1,226
30s 5,593
40s 9,868
50s 9,296
60s 4,095
70+ 572

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,190
20-29 years 7,460
30-39 years 7,763
40-49 years 4,673
50-59 years 1,123
60-69 years 95
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,308
Progressive Relapsing 1,136
Relapsing-Remitting 21,168
Secondary Progressive 3,630
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25,938
Not Diagnosed 1,093

These charts show data from MS patients who have completed their condition history
Last updated: