Updating results…
What is MS (Multiple Sclerosis)?
Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.
What is it like to have MS?
| Common symptoms | How bad it is | What people are taking for it |
|---|---|---|
|
||
| Brain fog | Modafinil, Donepezil, Ginkgo Biloba | |
| Excessive daytime sleepiness (somnolence) | Naps, Armodafinil, Modafinil | |
| Fatigue | Amantadine, Handicap/Disability Parking Permit, Modafinil | |
| Stiffness/Spasticity | Tizanidine, Walking Stick/Cane, Baclofen | |
| Bladder problems | Oxybutynin, Tolterodine, Solifenacin | |
| Pain | Gabapentin, Ibuprofen, Hydrocodone-Acetaminophen | |
| Depressed mood | Duloxetine, Bupropion, Fluoxetine | |
| Mood swings | Fluoxetine, Escitalopram, Lamotrigine | |
| Bowel problems | Polyethylene Glycol 3350, Stool Softener, Fiber supplement | |
| Insomnia | Amitriptyline, Zolpidem, Trazodone | |
| Emotional lability | Listen to Music, Sertraline, Citalopram | |
| Anxious mood | Alprazolam, Clonazepam, Lorazepam | |
| Sexual dysfunction | Sildenafil, Tadalafil, Vardenafil | |
What do patients take to treat MS and its symptoms?
| Treatments reported by members | Perceived effectiveness | Overall rating of side effects | # of Evaluations |
|---|---|---|---|
|
Glatiramer acetate
(Copaxone)
|
1493 | ||
|
Interferon beta-1a IM Injection
(Avonex Pen, Avonex Prefilled Syringe, Avonex)
|
848 | ||
| 773 | |||
|
Natalizumab
(Tysabri, Antegren)
|
580 | ||
|
Interferon beta-1b SubQ Injection
(Extavia, Betaseron, Betaferon, Uribeta)
|
426 | ||
|
Baclofen
(DOM-Baclofen, Stelax, Mylan Baclofen, Spinax)
|
200 | ||
|
Methylprednisolone
(Wockhardt Methylprednisolone, Medrol DosePak, Medrol, Advantan)
|
174 | ||
|
Naltrexone
(ReVia, Low Dose Naltrexone (LDN))
|
171 | ||
| 163 | |||
|
Fingolimod
(Gilenya)
|
137 | ||
|
Modafinil
(Modavigil, Modiodal, Alertec, Provigil)
|
102 | ||
|
Prednisone
(Pulmison, Prednisone Intensol, Encorton, Deltasone)
|
76 | ||
|
Vitamin D
(Twin Labs Vitamin D, Country Life Vitamin D, Biocare Vitamin D, Vitacost Vitamin D)
|
65 | ||
|
Mitoxantrone
(Novantrone)
|
57 | ||
| 51 |
These charts show data from MS patients' latest treatment evaluations
Who has MS at PatientsLikeMe?
- 31,455 patients have this condition
- 228 New patients joined this month
- 30,915 say MS is their primary condition
| <20 | 20s | 30s | 40s | 50s | 60s | 70+ |
|---|---|---|---|---|---|---|
| Current Age | ||||||
| Gender | |
| 80% | Females |
|---|---|
| 20% | Males |
| Age at first symptom | # of patients | Proportion |
|---|---|---|
| 0-19 years | 1,922 | |
| 20-29 years | 6,677 | |
| 30-39 years | 6,969 | |
| 40-49 years | 4,128 | |
| 50-59 years | 988 | |
| 60-69 years | 71 | |
| 70+ years | 9 |
| Condition Types | # of patients | Proportion |
|---|---|---|
| Primary Progressive | 1,768 | |
| Progressive Relapsing | 807 | |
| Relapsing-Remitting | 17,161 | |
| Secondary Progressive | 2,834 |
| Diagnosis status | # of patients | Proportion |
|---|---|---|
| Not Diagnosed | 976 | |
| Diagnosed | 23,196 |
These charts show data from MS patients who have completed their condition history