Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Multiple Sclerosis and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from MS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?

  • 34,237patients have this condition
  • 310new patients joined this month
  • 33,604say MS is their primary condition

Age
Age Proportion # of patients
<20 31
20s 1,195
30s 5,206
40s 8,673
50s 7,988
60s 3,365
70+ 468

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,073
20-29 years 7,130
30-39 years 7,421
40-49 years 4,422
50-59 years 1,060
60-69 years 88
70+ years 11

Types
Condition Types Proportion # of patients
Primary Progressive 1,992
Progressive Relapsing 946
Relapsing-Remitting 18,889
Secondary Progressive 3,191
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 24,763
Not Diagnosed 1,041

These charts show data from MS patients who have completed their condition history
Last updated: