Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Multiple Sclerosis and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
1,087
How many evaluations
586
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
Type
Prescription Drug
How many have tried
762
How many evaluations
281
Treatment name(s)

(Ampyra, Fampyra)
Type
Prescription Drug
How many have tried
677
How many evaluations
419
Treatment name(s)

(Antegren, Tysabri)
Type
Prescription Drug
How many have tried
636
How many evaluations
432
Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
Type
Prescription Drug
How many have tried
575
How many evaluations
351
Treatment name(s)

(Rebif, Rebif Rebidose)
Type
Prescription Drug
How many have tried
522
How many evaluations
290
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
433
How many evaluations
283
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
Type
Prescription Drug
How many have tried
395
How many evaluations
249
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
Type
Prescription Drug
How many have tried
319
How many evaluations
125
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
Type
Prescription Drug
How many have tried
228
How many evaluations
146
See all 712 treatments
Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Multiple Sclerosis

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Copaxone)
How many have tried
1087
Perceived effectiveness
Side effects
Injection site reaction Injection site itching 155 more
How many evaluations
586
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
How many have tried
762
Perceived effectiveness
Side effects
Drowsiness Fatigue 78 more
How many evaluations
281
Treatment name(s)

(Ampyra, Fampyra)
How many have tried
677
Perceived effectiveness
Side effects
Insomnia Dizziness 79 more
How many evaluations
419
Treatment name(s)

(Antegren, Tysabri)
How many have tried
636
Perceived effectiveness
Side effects
Headaches Fatigue 109 more
How many evaluations
432
Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
How many have tried
575
Perceived effectiveness
Side effects
Headaches Fatigue 149 more
How many evaluations
351
Treatment name(s)

(Rebif, Rebif Rebidose)
How many have tried
522
Perceived effectiveness
Side effects
Flu like symptoms Headaches 132 more
How many evaluations
290
Treatment name(s)

(Tecfidera)
How many have tried
433
Perceived effectiveness
Side effects
Flushing Facial flushing 130 more
How many evaluations
283
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
How many have tried
395
Perceived effectiveness
Side effects
Flu like symptoms Fever/chills 114 more
How many evaluations
249
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
How many have tried
319
Perceived effectiveness
Side effects
Jittery feeling Anxious mood 40 more
How many evaluations
125
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
How many have tried
228
Perceived effectiveness
Side effects
Flu like symptoms Injection site reaction 66 more
How many evaluations
146
See all 712 treatments
Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 32
20s 1,217
30s 5,521
40s 9,653
50s 9,040
60s 3,948
70+ 553

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,166
20-29 years 7,397
30-39 years 7,681
40-49 years 4,628
50-59 years 1,099
60-69 years 92
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,252
Progressive Relapsing 1,097
Relapsing-Remitting 20,752
Secondary Progressive 3,561
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25,685
Not Diagnosed 1,084

These charts show data from MS patients who have completed their condition history
Last updated: