Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms How bad it is What people are taking for it
Modafinil, Donepezil, Omega 3 Fish Oil
Naps, Armodafinil, Modafinil
Amantadine, Handicap/Disability Parking Permit, Modafinil
Tizanidine, Walking Stick/Cane, Baclofen
Gabapentin, Ibuprofen, Hydrocodone-Acetaminophen
Bupropion, Duloxetine, Fluoxetine
Fluoxetine, Escitalopram, Lamotrigine
Oxybutynin, Tolterodine, Solifenacin
Polyethylene Glycol 3350, Stool Softener, Fiber supplement
Amitriptyline, Zolpidem, Trazodone
Listen to Music, Sertraline, Meditation
Sildenafil, Tadalafil, Vardenafil
Alprazolam, Clonazepam, Lorazepam

What do patients take to treat Multiple Sclerosis and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations



(Avonex Pen, Avonex Prefilled Syringe, Avonex)


(Rebif Rebidose, Rebif)


(Antegren, Tysabri)


(Uribeta, Extavia, Betaferon, Betaseron)


(Miorel, Gabalon, Mylan Baclofen, Kemstro)


(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS, MS Phase 3 Study Fingolimod FREEDOMS II)


(Wockhardt Methylprednisolone, Urbason solubile, Advantan, Medrol)


(Low Dose Naltrexone (LDN), ReVia)


(Alertec, Modavigil, Modiodal, Provigil)




(Pulmison, Pronizon, Deltasone, Encorton)


(Holistic Vitamin D, Rexall Vitamin D, Genestra D-Mulsion 1000, Webber Vitamin D)




These charts show data from MS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?

  • 33,456 patients have this condition
  • 247 new patients joined this month
  • 32,837 say MS is their primary condition

Age Proportion # of patients
<20 35
20s 1,251
30s 5,233
40s 8,530
50s 7,586
60s 3,103
70+ 407


Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,033
20-29 years 7,017
30-39 years 7,281
40-49 years 4,327
50-59 years 1,035
60-69 years 82
70+ years 10

Condition Types Proportion # of patients
Primary Progressive 1,938
Progressive Relapsing 898
Relapsing-Remitting 18,399
Secondary Progressive 3,078
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 24,313
Not Diagnosed 1,019

These charts show data from MS patients who have completed their condition history
Last updated: