Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Multiple Sclerosis and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from MS patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?

Age Proportion # of patients
<20 30
20s 1,145
30s 5,160
40s 8,785
50s 8,198
60s 3,569
70+ 502


Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,111
20-29 years 7,224
30-39 years 7,502
40-49 years 4,471
50-59 years 1,069
60-69 years 87
70+ years 11

Condition Types Proportion # of patients
Primary Progressive 2,038
Progressive Relapsing 968
Relapsing-Remitting 19,180
Secondary Progressive 3,260
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25,027
Not Diagnosed 1,054

These charts show data from MS patients who have completed their condition history
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