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Title About Me Contact
JDO
member since
JDO
Data Quality: 0 stars
  • Sex: Female
  • Age: 43y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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JDO
Update... My mom passed away March 23, 2009. I'm so very sad...... ====================================================== A little bit about me. I am 36 years old, married to my high school sweet heart, and have a five year old daughter and a 2 year old son. My mother was recently diagnosed with ALS. (August 20th 2008). I am hoping this site will give us some support as we go through this journey with her. Email
member since
CareJoe
Data Quality: 0 stars
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  • Mental: Unreported
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CareJoe
Email
academiasalad
Guest Researcher
Member since: 11/09
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James Carroll
Fellow Royal Society of Medicine Assoc Member Institute Physics Editor Photomedicine & Laser Surgery Literature watch Acknowledged authority on Low Level Laser Therapy (LLLT) CEO THOR Photomedicine ltd http://www.thorlaser.com Co-author with Harvard Medical School on LLLT mechanism and biphasic dose response http://www.thorlaser.com/downloads/research/Biphasic-Dose-Response-in-Low-Level-Light-Therapy-Harvard.pdf Special interest: beam measurement and dose rate effects of light on tissue repair, inflammation a

Fellow Royal Society of Medicine
Assoc Member Institute Physics
Editor Photomedicine & Laser Surgery Literature watch
Acknowledged authority on Low Level Laser Therapy (LLLT)
CEO THOR Photomedicine ltd
Co-author with Harvard Medical School on LLLT mechanism and biphasic dose response
http://www.thorlaser.com/downloads/research/Biphasic-Dose-Response-in-Low-Level-Light-Therapy-Harvard.pdf
Special interest: beam measurement and dose rate effects of light on tissue repair, inflammation and nerve conduction.
In the last 5 years I have held committee and / or board positions with the World Association for Laser Therapy, the North American Association for Laser Therapy and the Biomedical Optics Society as well as chairing and / or speaking at almost all international conferences on LLLT.

I am being a researcher here on patients like me. We have a treatment for other forms of chronic pain and some of our customers claim that it works for fibromyalgia so i joined here to see if patients here have tried it. It seems not. 

The Lancet recently published a favourable review of LLLT for neck pain. One of the mechanisms established for LLLT pain relief is that is down regulates DRG, the dorsal horn and the sympathetic ganglia. The Lancet abstract is available here. http://blog.thorlaser.com/?p=379

Email
member since
Danese88
Data Quality: 0 stars
  • Sex: Female
  • Age: 45y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Danese88
Married to Vikings23 or Michael Sweet as known to me for over 21 years, we have three children and two grandchildren.

I have been dealing with the issue of Parkinson's since my Brother inlaw was diagnosed in 1998 and then my Husband in 2002. It can be tough dealing with the disease but we can not know what they go through and just be there to be a support and keep your heart open and express your feelings.

Email
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MikeSweetJr
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  • Physical: Unreported
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MikeSweetJr
Email
member since
aston
Data Quality: 0 stars
  • Sex: Female
  • Age: 37y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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aston
My spouse has ALS and we have a 2 year old son. we are making the best of what we have to live with. our son is a on going smile for his father evey Day. I love both of them. here is a web site that will tell you more about are family. I thank god that we both have great familys that will so eveything they can for us http://www.christopherstonefund.org/ Email
member since
care for mom
Data Quality: 0 stars
  • Sex: Female
  • Age: 51y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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care for mom
I am Jackie i am here to help with care and support for my mom Lois. She has bulbar ALS.God Bless all the patients and families battling this. Email
member since
sbercier
Data Quality: 0 stars
  • Sex: Female
  • Age: 40y
Condition: 4 additional condition(s)
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: Very good
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sbercier
psychologist hi i am just about finished learing the bipolar swing. i have finally completed my training to be a professional--well almost--i used to have a very serious bout of rapid-cylcle bp...and also hallucinations and delusions...but now i don't and have done alot of work to get here. aftern 9 years of therapy, self-psychoeducation, and med stability, i am now at a place where i can live my life without too many problems. Email
member since
dania12
Data Quality: 0 stars
  • Sex: Female
  • Age: 58y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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dania12
Physiologist Ph.D., Reiki mastrer-teacher, Translator, science vulgarisation author, life coach, alternative therapist, At home now because of Fibromyalgia, i am autonomous searcher: mainly in neurology, pain management and alternative therapies, NUTRITION! Also, my own cobaye to do tests on myself with new foods or supplements too! I am hypersensitive so not using lot meds/or chemicals. ...was BIO Tutor/searcher for = anatomy, physiology, nutrition, ecology, pedagogy, courses designs, at University Laval and Tele-university by distance, Quebec. I graduated Bac. Biology and Master Education from University Laval but Ph.D.Physiology and Bac. Languages by Somerset Un. Illminster, UK & Louisiana, Usa Email
member since
april77
Data Quality: 0 stars
  • Sex: Female
  • Age: 37y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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april77
Email
member since
Springy
Data Quality: 0 stars
  • Sex: Female
  • Age: 31y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Springy
Good friend of patient with FM I'm here to help support my very close friend wendoodles through her journey with this horrible condition. I am a member of PLM on the MS side, and wen has been there for me! I actually suggested to her that she sign up here, because everyone is so welcoming and helpful! I'm glad she did! And to anyone else, if you are looking for support, please don't hesitate to write and I will do what I can for you! It's good to have people to talk/yell/vent and cry to :o) Email
member since
HIVchaplain
Data Quality: 0 stars
  • Sex: Female
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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HIVchaplain
Rev. Deborah E. Lake, author of Your Neighbor Has AIDS and executive director of the Chicago based Sankofa Way, works to provide leadership and space for all people to unite and find new and effective ways to create world-wide change.

While a chaplain at the Ruth Rothstein CORE Center, RUSH University Medical Center both in Chicago Lake provided spiritual care to people living with HIV/AIDS, mental illness and trauma and their families. She began the support group Body & Soul to help men and women find their spiritual connection while living with HIV/AIDS. “I saw the great need for non-denominational spiritual care for people of African descent. I also saw that this need was not being met in any consistent way.”  

Lake has an M.Div. from Union Theological Seminary, 2 years training in Clinical Pastoral Education, post-degree training in trauma, and domestic violence. She is also a Red Cross certified trainer for HIV/AIDS prevention. She offers trainings, workshops, and community forums to address bigotry, and produces radio and television programs to help shape discussions about social challenges while including ethical and spiritual concerns. Lake is an expert in providing spiritual care in secular settings that does not breech the separation of church and state.

Rev. Lake's website

Connect through my Blog

Sankofa Way Website

Visit me on Facebook


Email
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bareattention
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  • Mental: Unreported
  • Physical: Unreported
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bareattention
Other than being my Daddy's daughter I am a person in my own right. I'm here for my Daddy, to share his journey and be a part of his self-transformation. I am also interested in hearing how you are experiencing the MS journey. Feel free to tell me your story, I like collecting stories.

Sociology student, fascinated by the marvelous mysteries of man (and womyn). Currently studying about the nature of disease and healing from a sociological perspective, through psycho-analytical theory.

I think people are interesting. I think the world is interesting. I think being cynical and critical about things makes them more interesting. I think living is a great virtue, I think sometimes it's easy to forget that, and we fall into a pattern of existing. I think it's important to learn to live with MS. I'm here to learn more about it. I look forward to learning from whoever wishes to share with me.

 

Email
member since
incurable-adviser
Data Quality: 0 stars
  • Sex: Male
  • Age: 54y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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incurable-adviser
Medical Researcher-alternative My Name Daniel B. Orijuela, 49 years old, Male, Residing at No.6 Recto St., Batasan Hills, Freedom park, Quezon City. Former Government Employee in Tondo general hospital in Position as Medical Technologist II, OIC in Anatomical Department,(Histophatology, Cytology,) sub-section bacteriology, My daily routine section is Clinical Department (Blood Chemistry, Serology & Bld Banking, Hematology, Clinical microscopy,) years of experience 9 years. Presently I'm working as Electro Medical Consultant. My website:http://incurable-solution.synthasite.com for more information about me & my work. Email
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lcaron
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  • Mental: Unreported
  • Physical: Unreported
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lcaron
owner Email
member since
nstapp86
Data Quality: 0 stars
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  • Mental: Unreported
  • Physical: Unreported
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nstapp86
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Rachael's sidekick
Data Quality: 0 stars
  • Sex: Female
  • Age: 24y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Rachael's sidekick
I am me, i am also Rachael's care giver and friend. Email
member since
alwaysbubbly
Data Quality: 0 stars
  • Sex: Female
  • Age: 31y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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alwaysbubbly
I believe i have M.S. but not sure yet. Hello everybody, To tell you about myself, I just got married 9 months ago, and boy is it fun, and exciting and different....as well as a learning curve! lol I love making people laugh, and just socialing. Im very out going. very goal oriented. My mom had M.S and so does her mom, I also had a 2nd cousin that died at the age of 26 from M.S. I believe I might have it also. I havent gotten diagnoised yet, but my symptoms are on going. I look forward to meeting a good amount of you lol! It would be hard to meet all of you :) but not impossible! Email
member since
bipolar_babe1980
Data Quality: 0 stars
  • Sex: Female
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  • Mental: Unreported
  • Physical: Unreported
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bipolar_babe1980

Having bipolar disorder & just trying to maintain & deal & cope w/things, sometimes just little everday things is exhausting to me & even pretty scary at times! As of right now my bipolar is now unmanaged b/c I no longer have any insurance. Bipolar disorder has changed me as a person & affected me & my life & the people around me in very negative ways & sometimes I get scared b/c I think that one day I won't be able to handle this anymore & that I will do something really bad! I'm constantly at war w/myself & my mind is constantly running away w/me! I'm angry & moody & hard to take, I guess most people who suffer from bipolar disorder are right? I'm paranoid & I can't trust anyone, not even myself or my own thoughts & that makes me feel so far away from everything & everyone sometimes. I never know how I will feel or what kind of mood I will be in or if I will just get triggered into an episode or if I will feel like just ending my own life! Suicide is always in my head, always in my thoughts & I get so scared when I think that one day I won't be able to handle this anymore...it's not ok to have suicidal thoughts most of the time or to keep it open as an option, that makes me very sad! Crazy, disturbing, paranoid thoughts seem to drop into my mind from somewhere else & that makes me want to flip out & just go off on someone! My episodes can get violent & dangerous & that scares me too! It's like this disorder is some type of worm just eating away at my brain! I get manic & then crash into depression & disappointments & that drives me mad! I hate this & until there is a cure the thought of having to try to manage this for the rest of my life just wears me out, it's exhausting!!!

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ladyziggs
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  • Mental: Unreported
  • Physical: Unreported
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ladyziggs
dau Email
member since
maoxiong
Data Quality: 0 stars
  • Sex: Female
  • Age: 47y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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maoxiong
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member since
Bevy
Data Quality: 0 stars
  • Sex: Female
  • Age: 60y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Bevy
MS Email
member since
FGS3
Data Quality: 0 stars
  • Sex: Male
  • Age: 62y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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FGS3
Email
member since
Blanczz226
Data Quality: 0 stars
  • Sex: Female
  • Age: 28y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Blanczz226
Hello.. My name is Blanca. I have a wonderful little boy named Brandon John, he is my pride and joy. I am currently attending college and am persuing a carreer as a court reporter. I'm about half way through the program, and hopefully (with the grace of god) i'll be licensed within 2 years. :::crosses fingers:::. I'm here to support my wonderful mother-in-law who was diagnosed with MS in 2002. We all love her dearly!!!



Myrna and Brandon

He loves his grandmaHoney!

My Pride and Joy
Email
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burnett2112
Data Quality: 0 stars
  • Sex: Female
  • Age: 40y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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burnett2112
My name is Patty and I am a married mother of 4 children. My sixth is due on Christmas Eve. We lost our 5th child last year at 5 months old to Sudden Infant Death Syndrome. I am primary caregiver to my father who has ALS. He's only recently been diagnosed, so we are just at the beginning of our journey. My life is already my family so I pray that I can find the strength to get through this with my dad as a team. Email
member since
DelilahTov
Data Quality: 0 stars
  • Sex: Female
  • Age: 66y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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DelilahTov
Spouse of an ALS patient There is no lullaby when you wake up to a nightmare of an ALS diagnosis. My husband, Jerry was diagnosed with ALS in November 2006. We are committed to working as a team, along with our children, something we have been doing for our time together. We are all determined to focus on the demands this dreadful disease places upon us. Email
member since
rick47
Data Quality: 0 stars
  • Sex:
  • Age: 67y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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rick47
I'm retired from the Air Force. I have 3 beautiful daughters, and an amazing son who is autistic. My girlfriend (PLM debraread) was diagnosed with PD on June 2006. I'd like to connect with other spouses and caregivers, and hope to learn from thier experiences. Email
member since
Fancy
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  • Mental: Unreported
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Fancy
Care partner Email
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KrssyE
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  • Mental: Unreported
  • Physical: Unreported
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KrssyE
KrissyE Email
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Anton33
Data Quality: 0 stars
  • Sex: Male
  • Age: 40y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Anton33
My long time girlfriend was diagnosed with MS in 96. It has been a tough road for her but a journey that she has weathered well. Her strength has also given me strength. So it has been my pleasure to walk down this road beside her and help where I can. Email

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