Username,
Name
Title About Me Contact
member since
Brendan
Data Quality: 0 stars
  • Sex: Male
  • Age: 37y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
2409 thumb Brendan
Brendan
Son-in-law of PALS. Email
member since
Sissy2
Data Quality: 0 stars
  • Sex: Female
  • Age: 51y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
6573 thumb Sissy2
Sissy2
Email
member since
passionforcaring
Data Quality: 0 stars
  • Sex: Female
  • Age: 61y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
4823 thumb passionforcaring
passionforcaring
I'm a LPN and I have been in Home Health nursing for the past 18 years. I like getting to know the patient personally along with their family. Everyone needs support and the more you have the better for you. We have ALS in the family and it has greatly affected my life and the rest of the extended family's lives too. I just want to help.

Email
member since
Cheech
Data Quality: 0 stars
  • Sex: Female
  • Age: 57y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
2276 thumb Cheech
Cheech
I have been married to my PALS, Bear for 33 years. We are both 51 years old and have a wonderful 27 yr old daughter (LaRee) and her husband (Ryan). We all enjoy doing things together. I work part time for a non-profit organization that delivers food to families in crisis in our community. Email
member since
DrPete
Data Quality: 0 stars
  • Sex: Male
  • Age: 48y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
11426 thumb DrPete
DrPete
I am a caregiver offering alternative medicine for pain-management for those who have lost all hope on conventional medicine. My clients are those who have been turned away by chiropractic, physical therapy, and even physicians or surgeons because nothing more can be done about their chronic pain. My clients are experiencing unbelievable results and dramatically improving their quality of life! If you know of anyone who has lost all hope because their chronic pain gets no relief, please refer them to me, as I may be able to offer a solution. I believe I can reduce about any soft-tissue pain.

I have extensive anatomy and physiology background including cadaver work, so I know what we look like from inside out.  I have pharmaceutical experience so I am familiar with many drugs and their action/adverse effects, etc.  I am a fitness trainer, so I can offer exercises to help alleviate pain.  My overall credentials are PhD (Doctor of Philosophy in Organic Chemistry), MMP, RMT, PFS; MMP for Medical Massage Practitioner, RMT for Registered Massage Therapist, PFS for Personal Fitness Specialist.

Sciatica: Nerve Pain

Female client presented with the most severe pain ever felt in gluteal region with pain also shooting down the leg.  Client could not find a comfortable position to sit, lay, or stand.  Client was not able to sleep any appreciable length of time.  While client admitted to contemplating going to doctor or chiropractor, she felt neither would offer a sound drug-free solution.  She was familiar with my medical massage services and decided I may be able to help.  Indeed, within only 2-3 sessions, her pain was considerably relieved.  She continued to visit for the next few weeks to ensure pain stayed away.  Client claimed greater than 90% relief within a very short time.  Client now visits for maintenance treatments to avoid another flare-up of sciatica.

Sports Injury: Shoulder/Upper Back

A young football player underwent an injury to his shoulder/upper back about six months prior.  While the pain was initially quite pronounced (about a 5-6 on pain-scale!), it had subsided to a level 3-4 but was a nagging type of pain that was always there.  He reported having physical therapy done along with muscle relaxants and pain medication and there was no change in the pain.  Upon the advice of his uncle (a client of mine), he visisted my office for treatment.  After a 1-hour session, client reported NO PAIN! - something he had not been able to find prior to visiting my office.  Thus, sports injuries are a type of pain that can be treated successfully at my office.  Please call to inquire about pain and whether you may be helped at my office.

Stroke: Severe nerve pain

Gentleman presented with excruciating pain in the soles of his feet (An 8 on a pain scale from 0-10).  All this came about soon after he suffered a stroke about 3 years prior with no let-up in the pain.  The pain was there even when he was not standing or putting pressure on his feet.  He had tried most everything he was prescribed by his doctor without ANY relief.  He had also tried chiropractic and physical therapy without success.  He tried a $200 pair of shoes recommended to him by his chiropractor without relief.  Finally, on the recommendation of his sister (a client of mine), he visited my office.  After treating him for about an hour with soft-tissue manipulation (medical massage), he reported a pain level of about 1-2.  He was able to walk with very little pain.  He was also able to raise his heels to stand on the balls of his feet - something he had not been able to do since the pain came on 3 years prior!  Thus, nerve pain due to a variety of causes, can be treated at my office.  Please call to inquire if your nerve pain can be treated.

Dupuytren's Contracture (DC): Severe hand deformity

Client presented with a hand condition diagnosed within the last 3-4 months as DC.  On only one hand (though, very slight formation was evident on the other), painful nodules along each of the corresponding metacarpals had formed with some of them feeling painful.  (Note: DC is normally not too painful; however, pain was beginning to set in this particular case.)  Below, are the typical treatments for DC.  I have developed a rather effective non-surgical procedure that makes the nodules almost practically unnoticeable and that was the case for this particular client.  Client was advised to make this a regular treatment for the DC since it will minimize the progress of the disease significantly.  Should you or anyone you know been diagnosed with DC, please visit my office for an effective (based on client feedback) non-surgical and non-drug approach.

Treatment options for Dupuytren's contracture may include:

Nonsurgical options
Nonsurgical therapies include:

  • Steroid injections.
  • Radiation therapy.
  • Needle aponeurotomy.

Surgery

Releasing cords of tissue (subcutaneous fasciotomy).

Partial tissue removal (partial fasciectomy).

  • Complete tissue removal (complete fasciectomy) with skin grafting.
  • Finger amputation.

All surgeries carry risks of bleeding and infection. Be sure to discuss any concerns with your doctor.

Email
member since
momofahero
Data Quality: 0 stars
  • Sex: Female
  • Age: 37y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
23677 thumb momofahero
momofahero
my son, noah, was diagnosed with epilepsy when he was 2 years old. he has spent many, many days in the hospital. in the beginning of his diagnosis he was having about 20 seizures a day. after finally finding the right combination of medication, he was only having about 1-2 seizures a month. in october of 2009 he was hospitalized for uncontrollable seizers. he was having hundreds of seizures a day. he was put in a coma and on a ventilator which led to a frontal lobectomy. they took out part of his brain the size of an apple. he remains seizure free since his surgery! he turned 5 this past feb.

Email
member since
Aunt of 10
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Portrait default thumb Aunt of 10
Aunt of 10
Email
First Symptom: 03/78
Dx: 02/04
annelou
Sex: F
Data Quality: 0 stars
Pain: Some
Fatigue: Some
Sleep: Little
Stiffness: Little
function: All
external_stress: Some
Stickman: little
Description:F62y
FM:10y Dx
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annelou
I'm 58 but I don't act my age. I enjoy being around younger people, I'm very young at heart. I have a sweet granddaughter who is 4 and thinks of me as her best friend instead of a grandma. I married a man 5 yrs younger than me and he is the love of my life. I was diagnosed with Fibromyalgia about 7 yrs ago and my husband was recently diagnosed with Parkinson's Disease. I had to retire early because of my health. Since I turned 50, I've had these problems: Degenerative Discs, 2 Ruptured Discs, Depression, Neck fusion surgery, Bells Palsey 4x, Arthritis, Fibromyalgia, Gall Bladder surgery, IBS,

Hiatal Hernia, High Cholesterol, Pleurasy, Melanoma in back of my right eye, Brusitis, Hemroids, Shingles, Hypoglycemia and Sinusitis. I spend more times than I would like to admit in the ER.  My pain is so excruciating, it scares me. The pain seems to be on my right & left sides, middle of my chest and back and both arms and both legs. I've had the same tests done on my heart every time I go to the ER & everytime the tests come back normal. I've seen doctors & specialists & still the same results each time are normal, but the latest test has shown excessive fat on my liver. I'm still having on going tests taken all the time until they can find out what's wrong with me. I'm getting worried. I'm probably going to end up being some medical wonder with all the medical problems I've had. Maybe this is all happening to me so I can help others.

Email
member since
BeckyB
Data Quality: 0 stars
  • Sex:
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
158 thumb BeckyB
BeckyB
Email
First Symptom: 08/80
Dx: 09/80
jscmom2
Data Quality: 1 star
  • Sex: F
  • Age: 50y
  • Duration: 34 yrs
Quality of Life:
  • Mental: None
  • Physical: None
0 seizures
169 weeks ago
29566 thumb jscmom2
jscmom2
I have two children. One girl, 11 years old and a boy, 10 years old. I have been married for 13 years. We have two dogs and a cat. I love to watch horror movies. I have been doing a medical transcription course at home for 3 years. I work at an Elementary School as a Food Server/sub. cook. Life is good and couldn't ask for anything better. Email
member since
Kristen B
Data Quality: 0 stars
  • Sex: Female
  • Age: 43y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
7970 thumb Kristen B
Kristen B
spouse My beautiful husband passed away Sunday Feb 8, 2009. No extreme measures, no feeding tubes, no in home nurses, nothing. He refused to prolong this way of life, where he could do little more than exist. He thought of us too. Didn't want to put us through that. I admire his decisions, so do my children 6, 10. Although not very well, he could walk, talk, eat up until he went into the hosp. Even then he was calm, saying I'm having trouble breathing but I want to wait till the kids get off to school. I didn't wait! He wrote he was done fighting and died peacefully a couple days later in the hosp.

In January 2008 my husband was diagnosed with ALS.  I don't know what to say except that it is the biggest nightmare of my life.  I'm scared and still can't believe any of this is happening.  Besides myself, my son (10) and daughter (6) need their father to watch them graduate from high school, then college, and then be there to watch them get married. I can't even imagine what my husband must be feeling.  It hit us so unexpectedly like a freight train and hasn't slowed down at all to let us step back and take it all in. You all are in my prayers, I am sorry you have to go through this.

Email
member since
birdy212
Data Quality: 0 stars
  • Sex: Female
  • Age: 65y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb birdy212
birdy212
I am a carer to my husband Ian who was diagnosed with MSA in aug 2006. In december 2006 he was forced to retire from work. He is now in a wheelchair.An update on Ian is that he now has a peg line in and is mostly confined to bed now. Email
member since
Pastor Cheryl
Data Quality: 0 stars
  • Sex: Female
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb Pastor Cheryl
Pastor Cheryl
I am currently serving as Associate Pastor of a church in Richmond, Virginia. I am actively involved with my church's HIV/AIDS Positive Support Group. I was a special education teacher before God called me to go to seminary; I still teach special-needs students on a part-time basis. I have three children; my twin boys (age 11) both have cerebral palsy. My daughter is 13. Email
member since
DianeHedrick
Data Quality: 0 stars
  • Sex: Female
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
26874 thumb DianeHedrick
DianeHedrick
Wellness coach - past sufferer of Fibromyalgia Email
CRF
member since
CRF
Data Quality: 0 stars
  • Sex: Male
  • Age: 58y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
9933 thumb CRF
CRF
wife has ALS since 2008, but still works (office job) & drives... October 2009, stopped driving & works from home only, December, stopped working, on short term disability; May 2010 LTD & SSDI Email
herbdoc
Guest Clinician
Member since: 03/08
Portrait default thumb herbdoc
Linda Vear
O.M.D, L.Ac. Natural healing methods are my passion. I am a licensed Acupuncturist and practitioner of Oriental medicine with degrees in nutrition and herbology. I started my quest of alternative therapies in 1971 when my son was diagnosed with ADHD. Not wanting to use conventional drugs to treat him, his pediatrician suggested I keep a food journal to determine which foods caused his episodes. Preservatives proved to be the culprit, and elimination of packaged/processed foods changed everything. My goal in joining Patientslikeme is to share my knowledge and hopefully change people's lives for the better. Email
member since
Al'sEllen
Data Quality: 0 stars
  • Sex: Female
  • Age: 56y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Al'sEllen
Hi, My name is Ellen, my PAL is AL, he is my husband (25 years)and my best friend. We have 2 great kids, a daughter 25 and a son at home 17. I work full time as a teacher assistant (3-3rd grades) 50- 8 or 9 year olds... never a dull moment! Home... this year we will have a wedding, a High School graduation, off to college and oh yes ALS just to keep things interesting. We laugh alot, love alot, and live a blessed life. Email
member since
rh_cares_als
Data Quality: 0 stars
  • Sex: Female
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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rh_cares_als
Hello ....I am a CAL to a PAL with ALS. Although I'm devastated with the news of her diagnosis, I feel fortunate to be able to be there for and help in any way I can. Although Lynn is technically my niece (her mom and my husband are 16 years apart) we are only 5 years apart and we have boys the same same age. I'm looking to patientlikeme for tips and experiences that will help me help her. My goal - assist when assistance is required; step back when appropriate; make her comfortable emotionally and physically.....and try not to talk too much! Email
member since
married to a PALS
Data Quality: 0 stars
  • Sex: Female
  • Age: 44y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
418 thumb married to a PALS
married to a PALS
I lost my husband/PALS HokieBrian on 19Jun09. He fought a little over two years. Email
member since
bridgeslmt
Data Quality: 0 stars
  • Sex: Female
  • Age: 43y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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bridgeslmt
Licensed Massage Therapist with 20 years of experience. Totally new to this site and thought I might be able to help some people. As a medical massage therapist that has worked with a hospital for several years I have picked up some tricks from dr.'s, pt's, and patients. As a cancer survivor, I found life more managable when I help others up vs looking for someone to help me up! Positive attitude and some healthy habits will get me everywhere! I would love to chat with anyone who thinks I may be of assistance to them. Thanks all! FYI, I'm on FB too. http://www.facebook.com/home.php?s

If you get constant headaches..... Ask me for help.  I know tricks!  I was a huge migrane suffer-er for years.  I have huge amounts of sympathy!  

Email
COB
member since
COB
Data Quality: 0 stars
  • Sex: Male
  • Age: 64y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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COB
Email
member since
Kathryn
Data Quality: 0 stars
  • Sex: Female
  • Age: 42y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
157 thumb Kathryn
Kathryn
I care for my husband, Jeff Repetto (Bluffy), 44, since his diagnosis in August of 2003. He has progressed very quickly. He is now using a feeding tube, on a vent, and can only communicate by raising one eye for yes. His other eye is closed most of the time. He is now almost locked in. We've been through almost everything, so we have lots of useful information to share. The one thing I always say, no question is too stupid. Email
member since
fuzzystonescare
Data Quality: 0 stars
  • Sex:
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: Very good
Portrait default thumb fuzzystonescare
fuzzystonescare
Email
member since
Dr.Lea
Data Quality: 0 stars
  • Sex: Female
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
21147 thumb Dr.Lea
Dr.Lea
As a chiropractic physician, I am trained to look at the big picture. I don't treat symptoms, I treat the whole person. As you become stronger and healthier, the symptoms fall off. Otherwise, it's just a wild goose chase-one symptom gone, another one appears or even an old one RE-appears! For tons of information: http://feelawesomewellness.com/Health_Concerns.html My free newsletter: http://feelawesomewellness.com/FREE_Newsletter_.html You are always welcome to email with any questions: Dr.Lea@FeelAwesomeWellness.com To your Awesome Health!! Dr. Lea Kabala DC Email
First Symptom: 12/89
Dx: 12/89
SebastiaanM
Data Quality: 1 star
  • Sex: Male
  • Age: 24y
Condition: Asthma
Quality of Life:
  • Mental: None
  • Physical: None
I am: Good
33005 thumb SebastiaanM
SebastiaanM
Email
member since
rossi
Data Quality: 0 stars
  • Sex: Female
  • Age: 48y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb rossi
rossi
Physician: Respiratory and Critical Care Medicine, Palliative Care Specialist: Long term nad Home mechanical Ventilation, Weaning from mechanical ventilation. Head ICU, Weaning facility, Dep. of home mechanical ventilation (Long term outpatient care , long term weaning in outpatient settings) Patients: Neuromuscular Diseases, ALS, COPD, post-ICU patients suffering from weaning failure Email
member since
Wulfsgaard
Data Quality: 0 stars
  • Sex: Male
  • Age: 34y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
30719 thumb Wulfsgaard
Wulfsgaard
Hello my name is Shaun. I take care of Gail Dahlquist who is family to me as well as one of my best friends. I came to become her caregiver after losing my job due to the rough economy I was layed off while on medical leave from a knee replacement. Gail and the family desperately needed extra help and luckily I was available. That was 2 years ago and I have enjoyed every day since then. I love taking care of Gail as she is not only one of the most intelligent individuals I have ever met but also the most caring. Sometimes I feel like it is actually Gail taking care of me :) Email
member since
Joy4cac
Data Quality: 0 stars
  • Sex: Female
  • Age: 71y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb Joy4cac
Joy4cac
I was the caregiver for my husband Charlie until his death April 15, 2009. His first symptom was July 2007 but he wasn't diagnosed until January 2009. He died of respiratory failure and muscle weakness due to ALS. He fought a courageous battle. My thoughts and prayers remain with all patients and caregivers. As I read comments on this site I realize that all of you are fighting a courageous battle. Some day there will be a cure for this relentless disease. Never give up! Email
member since
doxie_gma
Data Quality: 0 stars
  • Sex: Female
  • Age: 68y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
1721 thumb doxie_gma
doxie_gma
Hi Everyone, I'm retired, have been married for 44 years and have three children and five grandchildren to my credit! Our youngest (Mizlara) has been diagnosed with MS. She is so smart and funny and it makes me mad to think she has this to deal with. We do share a favorite part of our lives and that's raising our doxie's. Our immediate family consists of seven doxie's with puppies and puppy siblings spread throughout our family and friends! Pretty crazy time when we are all together. That's pretty much me in a nut shell. Thanks you for letting me become a part of your group. Email
member since
Kidneydonor1998
Data Quality: 0 stars
  • Sex: Female
  • Age: 52y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb Kidneydonor1998
Kidneydonor1998
Kidney donor I donated a kidney in 1998 to my sister....she was diagnosed in 1967 with PDK, but did not have any complications until 1997. she and I both are doing well...she has had two slight complications, but overall, she is great! If you are considering giving a kidney , trust me, it will change your life in such a positive way.....my life has been golden since the surgery!! I work, play tennis, workout, drink alcohol on occasion, and live a more than wonderful life! I have not had one single problem resulting from giving the kidney. Give the gift of life and live yours to the fullest! Email

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