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Username,
Name
Title About Me Contact
First Symptom: 08/04
mono111
Data Quality: 1 star
  • Sex: Female
  • Age: 28y
Condition: Idiopathic Hypersomnia
Quality of Life:
  • Mental: Mild
  • Physical: None
I am: Neutral
Portrait_default_thumb mono111
mono111
Email
member since
dhollanderpepijn
Data Quality: 0 stars
  • Sex: Male
  • Age: 27y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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dhollanderpepijn
i'm pepijn dhollander, now 20 years old, my mother has ALS BULBAIRE symptoms sinds august 2007 and she was diagnosed by dr algoed from ghent in december 2007 annelies my sister has also an account on Patientslikeme.com i'm a student in informatics, in ghent and the reason why i joined is to read others there experience and to tell my experiences and feelings, to clean my mind thnx and respect and support for all the relatives and patients with ALS Email
sjjrxprn
Guest Clinician
Member since: 04/10
43458-thumb sjjrxprn
Shannon Johnson
Pharmacist I have twelve years experience as a pharmacist with the last five as a pharmacy director specializing in clinical pharmacy (inpatient acute care), clinical information systems, safe medication practice, and quality improvement. I've also taught been a pharmacy Instructor for Advanced Practice Nursing. Email
member since
MOMINFLORIDA
Data Quality: 0 stars
  • Sex: Female
  • Age: 73y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
4125-thumb MOMINFLORIDA
MOMINFLORIDA
We are the parents of four children, the youngest a son age 38 with als. We moved to central Florida almost 6 yesrs ago before our sons dx. We try to be as supportive as we can to him and his family, but distance doesn't let us do all we would like to do. He is still working light duty and his progression is slow. Time will tell if we move back North. We want to do what is best for him and his family. One thing we have learned. We are not in charge on this earth Email
First Symptom: 07/78
Dx: 07/78
sitelle
Data Quality: 1 star
  • Sex: Female
  • Age: 70y
Condition: Osteopenia 5 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: None
I am: Bad
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sitelle

SInce my friend's death, I started caring a litte about my health. Discoverd significant problems, with bone frailty (I have hip prothesis) and curved rachis. With 6 crushed vertebrae, and diverse fractures.

I underwent thyroid ablation, soon after Tchernobyl. It was pre-cancerous.

I also suffer from broke hip and hip prothesis

I also suffer from blood disorder called myelodysplasis symptoms

Email
member since
Queenie4444
Data Quality: 0 stars
  • Sex: Female
  • Age: 48y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Queenie4444
My husband is 48 and was diagnosed with PD in September 2007. We have two children ages 5 and 8. Email
First Symptom: 01/83
Dx: 12/90
bipolarmom5
Sex: F
Data Quality: 1 star
Bipolar I
Depression: 1
Mania: 0
Emotional: 2
Anxiety: 2
Compulsion: 0
External Stress: Severe
Rx Therapy
43 F
Function: Moderate
Distress: Low
22791-thumb bipolarmom5
bipolarmom5
I am a bipolar mom to 5 kids. I am going through some major changes in my life right now. My husband and I are in the middle of a divorce right now that, at times, is less than friendly. My 4 young children are having a very hard time with this. My soon to be ex does not handle himself as a parent around the kids and that has cause alot of emotional problems for them. My oldest son in moving in with his girlfriend and I am quite sure she is pregnent. My youngest child is starting starting school this year which leaves me open to try new things in my life. I have NO clue what I am going to do!

I just thought that I might share a little about myself. I was dx in 1990. I was in college and became very depressed. The Dean sent me to a counseling center in town. Just before Christmas break I became suicidal. My counselor put me in the hospital. While I was there the doctor told me that I am Bipolar. He handed me a bottle of Lithium and said these everyday and you will be fine. I was in the hospital for a month. When I went back to school I had a very hard time. I never saw a doctor or had my levels checked. So 4 months later I was back in the hospital again for depression. I stayed there for a month also. This time I came home to my mom's and did much better. I still was not stable but better than before. My moods still swung alot and in turn I made some very poor choices. Before I knew it I was pregnant with my first child. He is now 16 and I would not change the events that brought him in any way. In a way, he changed me. He made me pull myself together and get help.

I have had alot of problems with my meds. I have really searched for meds that will work. I have been on just about everything out there. (At lest that is how it feels.) A year ago I was in the hospital for 3 and a half weeks. I was very depressed and suicidal. I had not had a good doctor in almost a year and it has really hurt me. While I was in the hospital I was set up with a great doctor. I have been seeing since. He is very helpful. He listens to me and tells me what he thinks and how to handle the problem. We have finally found the right meds for me and I have done very well this year.

I have 5 wonderful kids that I love so much but when I am sick I know that it has to be hard on them. My husband does the best he can. I know that it is hard for him to completely understand what it is like for me. Just like I will never know what it is like to not be this way. I do, sometimes, worry about my kids. I don't want any of them to have to deal with this illness like I have. My 8yo son is ADHD and I worry most about him. He is a very emotional child. I just hope that if one of my kids do have a problem, I will be able to see the signs and help them as soon as possible. Maybe that would help them to get on the right mrds from the start so things could be a little more "normal" for them

I try to talk to anyone who has any questions about me, my illness or my life. I think the more we know, the better we can handle the problem. I don't think anyone benefits for we just "push it under the rug." We have to deal with it the best we can and try to help others understand it the best they can.

Email
member since
bobv_in_Maryland
Data Quality: 0 stars
  • Sex: Male
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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bobv_in_Maryland
Pres., Rockville Roadies Multiple Sclerosis Project Inc. Bob: Mid 40's; Caregiver; Working in the biotech industry for over 20 yrs. Also founder of RRMS Inc, an all-volunteer nonprofit that serves the MS community in over 20 states. Susie (wife), has MS since 1996. Susie: Mid 40's; Self employed since 2000. VP of nonprofit mentioned above. MS since 1996; Currently use a scooter to get around. Love to swim and lift weights (with Bob). Have experienced slight creep in EDSS score over the last 10 yrs. Email
member since
jacksgranny
Data Quality: 0 stars
  • Sex: Female
  • Age: 51y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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jacksgranny
I am the mother of three children with special needs, two of my children have Epilepsy. Like every parent, I seek information that will empower me to make the best decisions on behalf of my kids, and help them to navigate through life. I try to help my kids to stay positive, so they can focus on their goals and dreams. I am inspired by my childrens' courage and their willingness to move forward despite the uncertainties and challenges they face. I am an Advocate. I am so happy to have found this site and I look forward to learning how others are coping with Epilepsy.

My oldest son age 27, was Dx at age 19 with Generalized Tonic Clonic seizures Idiopathic in nature. He suffers breakthrough seizures every 6 to 7 months. My 14 year old son was Dx at 2 and 1/2 years old with Complex Partial, Secondary Generalized, Left Temporal Occipital seizures also Idiopathic, his seizures are refractory. My 11 year old daughter has high functioning Autism, fortunately she has shown no sign of seizure disorder. Each of my children face unique challenges but always rise to meet them head on. They are my hero's, they inspire me and give me purpose.    

Email
First Symptom: 04/06
Dx: 05/08
JensDivesion
Data Quality: 0 stars
  • Sex: Female
  • Age: 41y
Condition: Diabetes Type 2 1 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: None
I am: Good
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JensDivesion
In 2005 my husband was diagnosed with Young Onset Parkinson's Disease and through my desire to be the best caregiver possible I forgot about me. I gained alot of weight, have a family history of diabetes which became my own issue through diagnosis May 2008. I have learned alot since then, lost weight, manage my disease and make sure my mental health status is strong in order to be an in-touch caregiver to my husband. Email
First Symptom: 04/90
angela a
Data Quality: 1 star
  • Sex: F
  • Age: 37y
  • Duration: 24 yrs
Quality of Life:
  • Mental: None
  • Physical: None
2 seizures
127 weeks ago
Portrait_default_thumb angela a
angela a
i get a small seizure and iam in eagaged to jamie magle i have 3 brothers and mom sandy,and a dad dave Email
member since
Atila
Data Quality: 0 stars
  • Sex: Male
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
3648-thumb Atila
Atila
I've been treating my anxiety and depression for years. I would be pleased to share my experience and doing my best for you. Email
member since
set me free38
Data Quality: 0 stars
  • Sex: Female
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait_default_thumb set me free38
set me free38
Support and seek information Email
member since
myssthyng
Data Quality: 0 stars
  • Sex: Female
  • Age: 47y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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myssthyng
Email
member since
mommytofour1970
Data Quality: 0 stars
  • Sex: Female
  • Age: 44y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: Good
25487-thumb mommytofour1970
mommytofour1970
I am a mommy to four boys ages 19, 16, 8, and 1 yr. old. My 16 yr. old was diagnosed with epilepsy about 2 1/2 yrs ago after he had a seizure on the bus coming home from school. This has been an absol. shock for our family and we have to work very hard on a everyday basis to try and deal with it. This has taken a real toll on our whole family and at times I feel so hopeless and helpless. Can really use all the support we can get right now. Email
First Symptom: 05/06
Dx: 05/06
jessicaseymore07
Sex: F
Data Quality: 1 star
Major Depressive Disorder
Depression: 4
Mania: 2
Emotional: 4
Anxiety: 4
Compulsion: 4
External Stress: Overwhelming
25 F
Function: Low
Distress: High
32895-thumb jessicaseymore07
jessicaseymore07
hi im a young mother of 3 my oldest just turn 4 in april and he has autism Email
member since
Brendan
Data Quality: 0 stars
  • Sex: Male
  • Age: 36y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
2409-thumb Brendan
Brendan
Son-in-law of PALS. Email
member since
Sissy2
Data Quality: 0 stars
  • Sex: Female
  • Age: 51y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Sissy2
Email
member since
passionforcaring
Data Quality: 0 stars
  • Sex: Female
  • Age: 61y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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passionforcaring
I'm a LPN and I have been in Home Health nursing for the past 18 years. I like getting to know the patient personally along with their family. Everyone needs support and the more you have the better for you. We have ALS in the family and it has greatly affected my life and the rest of the extended family's lives too. I just want to help.

Email
member since
Cheech
Data Quality: 0 stars
  • Sex: Female
  • Age: 56y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
2276-thumb Cheech
Cheech
I have been married to my PALS, Bear for 33 years. We are both 51 years old and have a wonderful 27 yr old daughter (LaRee) and her husband (Ryan). We all enjoy doing things together. I work part time for a non-profit organization that delivers food to families in crisis in our community. Email

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