Username,
Name
Title About Me Contact
member since
jacksgranny
Data Quality: 0 stars
  • Sex: Female
  • Age: 52y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
35229 thumb jacksgranny
jacksgranny
I am the mother of three children with special needs, two of my children have Epilepsy. Like every parent, I seek information that will empower me to make the best decisions on behalf of my kids, and help them to navigate through life. I try to help my kids to stay positive, so they can focus on their goals and dreams. I am inspired by my childrens' courage and their willingness to move forward despite the uncertainties and challenges they face. I am an Advocate. I am so happy to have found this site and I look forward to learning how others are coping with Epilepsy.

My oldest son age 27, was Dx at age 19 with Generalized Tonic Clonic seizures Idiopathic in nature. He suffers breakthrough seizures every 6 to 7 months. My 14 year old son was Dx at 2 and 1/2 years old with Complex Partial, Secondary Generalized, Left Temporal Occipital seizures also Idiopathic, his seizures are refractory. My 11 year old daughter has high functioning Autism, fortunately she has shown no sign of seizure disorder. Each of my children face unique challenges but always rise to meet them head on. They are my hero's, they inspire me and give me purpose.    

Email
First Symptom: 04/06
Dx: 05/08
JensDivesion
Data Quality: 0 stars
  • Sex: Female
  • Age: 42y
Condition: Diabetes Type 2 1 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: None
I am: Good
29050 thumb JensDivesion
JensDivesion
In 2005 my husband was diagnosed with Young Onset Parkinson's Disease and through my desire to be the best caregiver possible I forgot about me. I gained alot of weight, have a family history of diabetes which became my own issue through diagnosis May 2008. I have learned alot since then, lost weight, manage my disease and make sure my mental health status is strong in order to be an in-touch caregiver to my husband. Email
First Symptom: 04/90
angela a
Data Quality: 1 star
  • Sex: F
  • Age: 38y
  • Duration: 24 yrs
Quality of Life:
  • Mental: None
  • Physical: None
2 seizures
161 weeks ago
Portrait default thumb angela a
angela a
i get a small seizure and iam in eagaged to jamie magle i have 3 brothers and mom sandy,and a dad dave Email
member since
Atila
Data Quality: 0 stars
  • Sex: Male
  • Age: 50y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
3648 thumb Atila
Atila
I've been treating my anxiety and depression for years. I would be pleased to share my experience and doing my best for you. Email
member since
myssthyng
Data Quality: 0 stars
  • Sex: Female
  • Age: 48y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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myssthyng
Email
member since
mommytofour1970
Data Quality: 0 stars
  • Sex: Female
  • Age: 44y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: Good
25487 thumb mommytofour1970
mommytofour1970
I am a mommy to four boys ages 19, 16, 8, and 1 yr. old. My 16 yr. old was diagnosed with epilepsy about 2 1/2 yrs ago after he had a seizure on the bus coming home from school. This has been an absol. shock for our family and we have to work very hard on a everyday basis to try and deal with it. This has taken a real toll on our whole family and at times I feel so hopeless and helpless. Can really use all the support we can get right now. Email
First Symptom: 05/06
Dx: 05/06
jessicaseymore07
Sex: F
Data Quality: 1 star
Major Depressive Disorder
Depression: 4
Mania: 2
Emotional: 4
Anxiety: 4
Compulsion: 4
External Stress: Overwhelming
25 F
Function: Low
Distress: High
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jessicaseymore07
hi im a young mother of 3 my oldest just turn 4 in april and he has autism Email
member since
Brendan
Data Quality: 0 stars
  • Sex: Male
  • Age: 37y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
2409 thumb Brendan
Brendan
Son-in-law of PALS. Email
member since
Sissy2
Data Quality: 0 stars
  • Sex: Female
  • Age: 52y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Sissy2
Email
member since
passionforcaring
Data Quality: 0 stars
  • Sex: Female
  • Age: 61y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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passionforcaring
I'm a LPN and I have been in Home Health nursing for the past 18 years. I like getting to know the patient personally along with their family. Everyone needs support and the more you have the better for you. We have ALS in the family and it has greatly affected my life and the rest of the extended family's lives too. I just want to help.

Email
member since
Cheech
Data Quality: 0 stars
  • Sex: Female
  • Age: 57y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Cheech
I have been married to my PALS, Bear for 33 years. We are both 51 years old and have a wonderful 27 yr old daughter (LaRee) and her husband (Ryan). We all enjoy doing things together. I work part time for a non-profit organization that delivers food to families in crisis in our community. Email
member since
momofahero
Data Quality: 0 stars
  • Sex: Female
  • Age: 38y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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momofahero
my son, noah, was diagnosed with epilepsy when he was 2 years old. he has spent many, many days in the hospital. in the beginning of his diagnosis he was having about 20 seizures a day. after finally finding the right combination of medication, he was only having about 1-2 seizures a month. in october of 2009 he was hospitalized for uncontrollable seizers. he was having hundreds of seizures a day. he was put in a coma and on a ventilator which led to a frontal lobectomy. they took out part of his brain the size of an apple. he remains seizure free since his surgery! he turned 5 this past feb.

Email
member since
Aunt of 10
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Portrait default thumb Aunt of 10
Aunt of 10
Email
First Symptom: 03/78
Dx: 02/04
annelou
Sex: F
Data Quality: 0 stars
Pain: Some
Fatigue: Some
Sleep: Little
Stiffness: Little
function: All
external_stress: Some
Stickman: little
Description:F62y
FM:11y Dx
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annelou
I'm 58 but I don't act my age. I enjoy being around younger people, I'm very young at heart. I have a sweet granddaughter who is 4 and thinks of me as her best friend instead of a grandma. I married a man 5 yrs younger than me and he is the love of my life. I was diagnosed with Fibromyalgia about 7 yrs ago and my husband was recently diagnosed with Parkinson's Disease. I had to retire early because of my health. Since I turned 50, I've had these problems: Degenerative Discs, 2 Ruptured Discs, Depression, Neck fusion surgery, Bells Palsey 4x, Arthritis, Fibromyalgia, Gall Bladder surgery, IBS,

Hiatal Hernia, High Cholesterol, Pleurasy, Melanoma in back of my right eye, Brusitis, Hemroids, Shingles, Hypoglycemia and Sinusitis. I spend more times than I would like to admit in the ER.  My pain is so excruciating, it scares me. The pain seems to be on my right & left sides, middle of my chest and back and both arms and both legs. I've had the same tests done on my heart every time I go to the ER & everytime the tests come back normal. I've seen doctors & specialists & still the same results each time are normal, but the latest test has shown excessive fat on my liver. I'm still having on going tests taken all the time until they can find out what's wrong with me. I'm getting worried. I'm probably going to end up being some medical wonder with all the medical problems I've had. Maybe this is all happening to me so I can help others.

Email
member since
BeckyB
Data Quality: 0 stars
  • Sex:
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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BeckyB
Email
member since
Kristen B
Data Quality: 0 stars
  • Sex: Female
  • Age: 43y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
7970 thumb Kristen B
Kristen B
spouse My beautiful husband passed away Sunday Feb 8, 2009. No extreme measures, no feeding tubes, no in home nurses, nothing. He refused to prolong this way of life, where he could do little more than exist. He thought of us too. Didn't want to put us through that. I admire his decisions, so do my children 6, 10. Although not very well, he could walk, talk, eat up until he went into the hosp. Even then he was calm, saying I'm having trouble breathing but I want to wait till the kids get off to school. I didn't wait! He wrote he was done fighting and died peacefully a couple days later in the hosp.

In January 2008 my husband was diagnosed with ALS.  I don't know what to say except that it is the biggest nightmare of my life.  I'm scared and still can't believe any of this is happening.  Besides myself, my son (10) and daughter (6) need their father to watch them graduate from high school, then college, and then be there to watch them get married. I can't even imagine what my husband must be feeling.  It hit us so unexpectedly like a freight train and hasn't slowed down at all to let us step back and take it all in. You all are in my prayers, I am sorry you have to go through this.

Email
member since
Pastor Cheryl
Data Quality: 0 stars
  • Sex: Female
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb Pastor Cheryl
Pastor Cheryl
I am currently serving as Associate Pastor of a church in Richmond, Virginia. I am actively involved with my church's HIV/AIDS Positive Support Group. I was a special education teacher before God called me to go to seminary; I still teach special-needs students on a part-time basis. I have three children; my twin boys (age 11) both have cerebral palsy. My daughter is 13. Email
member since
DianeHedrick
Data Quality: 0 stars
  • Sex: Female
  • Age: 50y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
26874 thumb DianeHedrick
DianeHedrick
Wellness coach - past sufferer of Fibromyalgia Email
CRF
member since
CRF
Data Quality: 0 stars
  • Sex: Male
  • Age: 58y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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CRF
wife has ALS since 2008, but still works (office job) & drives... October 2009, stopped driving & works from home only, December, stopped working, on short term disability; May 2010 LTD & SSDI Email
herbdoc
Guest Clinician
Member since: 03/08
Portrait default thumb herbdoc
Linda Vear
O.M.D, L.Ac. Natural healing methods are my passion. I am a licensed Acupuncturist and practitioner of Oriental medicine with degrees in nutrition and herbology. I started my quest of alternative therapies in 1971 when my son was diagnosed with ADHD. Not wanting to use conventional drugs to treat him, his pediatrician suggested I keep a food journal to determine which foods caused his episodes. Preservatives proved to be the culprit, and elimination of packaged/processed foods changed everything. My goal in joining Patientslikeme is to share my knowledge and hopefully change people's lives for the better. Email
member since
Al'sEllen
Data Quality: 0 stars
  • Sex: Female
  • Age: 57y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Al'sEllen
Hi, My name is Ellen, my PAL is AL, he is my husband (25 years)and my best friend. We have 2 great kids, a daughter 25 and a son at home 17. I work full time as a teacher assistant (3-3rd grades) 50- 8 or 9 year olds... never a dull moment! Home... this year we will have a wedding, a High School graduation, off to college and oh yes ALS just to keep things interesting. We laugh alot, love alot, and live a blessed life. Email
member since
rh_cares_als
Data Quality: 0 stars
  • Sex: Female
  • Age: 49y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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rh_cares_als
Hello ....I am a CAL to a PAL with ALS. Although I'm devastated with the news of her diagnosis, I feel fortunate to be able to be there for and help in any way I can. Although Lynn is technically my niece (her mom and my husband are 16 years apart) we are only 5 years apart and we have boys the same same age. I'm looking to patientlikeme for tips and experiences that will help me help her. My goal - assist when assistance is required; step back when appropriate; make her comfortable emotionally and physically.....and try not to talk too much! Email
member since
married to a PALS
Data Quality: 0 stars
  • Sex: Female
  • Age: 44y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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married to a PALS
I lost my husband/PALS HokieBrian on 19Jun09. He fought a little over two years. Email
member since
bridgeslmt
Data Quality: 0 stars
  • Sex: Female
  • Age: 43y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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bridgeslmt
Licensed Massage Therapist with 20 years of experience. Totally new to this site and thought I might be able to help some people. As a medical massage therapist that has worked with a hospital for several years I have picked up some tricks from dr.'s, pt's, and patients. As a cancer survivor, I found life more managable when I help others up vs looking for someone to help me up! Positive attitude and some healthy habits will get me everywhere! I would love to chat with anyone who thinks I may be of assistance to them. Thanks all! FYI, I'm on FB too. http://www.facebook.com/home.php?s

If you get constant headaches..... Ask me for help.  I know tricks!  I was a huge migrane suffer-er for years.  I have huge amounts of sympathy!  

Email
COB
member since
COB
Data Quality: 0 stars
  • Sex: Male
  • Age: 64y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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COB
Email
member since
fuzzystonescare
Data Quality: 0 stars
  • Sex:
  • Age:
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: Very good
Portrait default thumb fuzzystonescare
fuzzystonescare
Email
First Symptom: 12/89
Dx: 12/89
SebastiaanM
Data Quality: 1 star
  • Sex: Male
  • Age: 24y
Condition: Asthma
Quality of Life:
  • Mental: None
  • Physical: None
I am: Good
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SebastiaanM
Email
member since
rossi
Data Quality: 0 stars
  • Sex: Female
  • Age: 48y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb rossi
rossi
Physician: Respiratory and Critical Care Medicine, Palliative Care Specialist: Long term nad Home mechanical Ventilation, Weaning from mechanical ventilation. Head ICU, Weaning facility, Dep. of home mechanical ventilation (Long term outpatient care , long term weaning in outpatient settings) Patients: Neuromuscular Diseases, ALS, COPD, post-ICU patients suffering from weaning failure Email
member since
Wulfsgaard
Data Quality: 0 stars
  • Sex: Male
  • Age: 34y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
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Wulfsgaard
Hello my name is Shaun. I take care of Gail Dahlquist who is family to me as well as one of my best friends. I came to become her caregiver after losing my job due to the rough economy I was layed off while on medical leave from a knee replacement. Gail and the family desperately needed extra help and luckily I was available. That was 2 years ago and I have enjoyed every day since then. I love taking care of Gail as she is not only one of the most intelligent individuals I have ever met but also the most caring. Sometimes I feel like it is actually Gail taking care of me :) Email
member since
Joy4cac
Data Quality: 0 stars
  • Sex: Female
  • Age: 72y
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Portrait default thumb Joy4cac
Joy4cac
I was the caregiver for my husband Charlie until his death April 15, 2009. His first symptom was July 2007 but he wasn't diagnosed until January 2009. He died of respiratory failure and muscle weakness due to ALS. He fought a courageous battle. My thoughts and prayers remain with all patients and caregivers. As I read comments on this site I realize that all of you are fighting a courageous battle. Some day there will be a cure for this relentless disease. Never give up! Email

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