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Brand Names: Rilutek

What is Riluzole? Riluzole is the first drug to be approved for the treatment of ALS. Riluzole does not cure the disease or improve symptoms, but may extend the survival of patients by approximately three months. Riluzole appears to be more effective in patients with bulbar-onset than for those with limb-onset. Read more...Click to read more below

See more information, including instructions, precautions, side effects, and interactions.


Reasons Taken

789 patients in the community are taking or have taken Riluzole.

Reason # Patients Percentage of patients
Slow my ALS progress 705 92%
disease-related symptoms 17 2%
Other 14 1%
Don't know 8 1%
Stiffness/spasticity 6 <1%
General health 5 <1%
Fasciculations 3 <1%
Fatigue 3 <1%
Bulbar symptoms 1 <1%
Anxiety 1 <1%
Pain 1 <1%

Dosages

Based on the patients currently taking Riluzole.

Top 10 (Show all)

All (Show Top 10)

  0 mg day 1 mg day 2 mg day 5 mg day 20 mg day 25 mg day 30 mg day 40 mg day 50 mg day 60 mg day 75 mg day 80 mg day 100 mg day 100 day 125 mg day 150 mg day 200 mg day 300 mg day 500 mg day 512 mg day
  80 Number of Patients: 80 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 5 Number of Patients: 5 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 67 Number of Patients: 67 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 480 Number of Patients: 480 1 Number of Patients: 1 1 Number of Patients: 1 6 Number of Patients: 6 11 Number of Patients: 11 4 Number of Patients: 4 2 Number of Patients: 2 1 Number of Patients: 1  

Duration

How long current patients have been taking Riluzole or how long patients were taking Riluzole before stopping.

Currently taking Riluzole

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
5
25
42
87
115
156

Stopped taking Riluzole

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
13
21
20
18
15
25
Why Patients Stopped Taking Riluzole (multiple reasons could be selected)
Reason # Patients Percentage of patients
Side effects too severe 52 46% Side effects too severe: 46%
Did not seem to work 31 27% Did not seem to work: 27%
Other 17 15% Other: 15%
Doctor's advice 14 12% Doctor's advice: 12%
Personal research 12 11% Personal research: 11%
Expense 10 9% Expense: 9%
Not indicated 10 9% Not indicated: 9%
Course of treatment ended 1 1% Course of treatment ended: 1%

Patient Reported Evaluations

Results from 13 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Moderate 15% 2
Can't tell 85% 11

Slow my ALS progress

Side-effects (as an overall problem)

Severe 15% 2
Moderate 8% 1
Mild 0% 0
None 77% 10

Top reported side-effects include: Nausea, Fatigue, weakness in lips

Summary results are based on 13 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 13)

  • Boo Boo
    Mouth/throat: mild
    Arms: none
    Chest: none
    Legs: none
    See profile
  • Boo Boo
  • by Boo Boo
    Jun 16, 2007
  • EfficacyCan't tell
  • Side-effectsSevere
  • Slow my ALS progress

  • SIONZ
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    See profile
  • SIONZ
  • by SIONZ
    Aug 19, 2008
  • EfficacyCan't tell
  • Side-effectsNone
  • Slow my ALS progress

See all evaluation results for Riluzole



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