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The PatientsLikeMe ALS/Motor Neuron Disease Community

Patient Spotlight
SirIsaac
SirIsaac
Sex: M
Data Quality: 3 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
See profile
SirIsaac
Male, 65 years, Coudersport, PA
My name is Kirk. I live with my wonderful wife of 45yrs who takes care of me. We have 2 childre... See Profile…

ALS, or amyotrophic lateral sclerosis, is a neurodegenerative disease caused by the degeneration of motor neurons. Around 3,000 to 5,000 new cases of ALS are diagnosed every year in the United States alone. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!

Who Will You Find?

4,760 total patients
204 Profiles updated this week
72 New patients this month

<20 20- 29 30- 39 40- 49 50- 59 60- 69 70+
Age
0% 2% 8% 22% 31% 27% 9%
Gender
42% Females
58% Males

What Are Patients Sharing?

Real-World Data
Top Treatments
Riluzole (Rilutek) 1088 patients 100.0 percent
CoQ10 547 patients 50.2757352941177 percent
Wheelchair (powered) 538 patients 49.4485294117647 percent
Vitamin E 497 patients 45.6801470588235 percent
Vitamin C (ascorbic acid) 438 patients 40.2573529411765 percent
Top Symptoms
Fatigue 2391 patients 100.0 percent
Fasciculations 2281 patients 95.3994144709327 percent
Stiffness/Spasticity 2231 patients 93.3082392304475 percent
Anxiety 1668 patients 69.7616060225847 percent
Emotional lability 1636 patients 68.4232538686742 percent
Real-World Experiences
Patient Forum
Fighting ALS, one gadget at a time
282 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
Flickr-ing PatientsLikeMeInMotionTM
August 30, 2010
Personalized Medicine: Making It All About You
July 29, 2010
More…

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What Can You Learn?

Your Health Profile

By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.

Sample ALS/Motor Neuron Disease outcome chart
Patient Learning in Action
The first thing that I thought might be your problem is malnutrition. Man, you’re losing weight crazy fast. I think you better consider getting peg tube if you desire. They are easy to care for and are literally a life saver. What are your thoughts on this?
- ALS Community Member
Sample ALS/Motor Neuron Disease outcome chart

More on Learning »

PatientsLikeMe Research Updates

Take a minute to read recently published reports from the
PatientsLikeMe R&D team

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