The PatientsLikeMe ALS/Motor Neuron Disease Community
Patient Spotlight
- DannyD
- Sex: M
- Data Quality: 2 stars
- ALS: 12 yrs
- Bi-Pap
- Mouth/throat: none
- Arms: mild
- Chest: mild
- Legs: moderate
- See profile
- DannyD
- Male, 51 years, Leander, TX
- Danny Dandignac is a retired paramedic of 23 years and lives with his wife and 2 boys in Leander,... See Profile…
ALS, or amyotrophic lateral sclerosis, is a neurodegenerative disease caused by the degeneration of motor neurons. Around 3,000 to 5,000 new cases of ALS are diagnosed every year in the United States alone. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
4,008
total patients
152
Profiles
updated this week
82
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
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| Gender | |
| 41% | Females |
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| 59% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Riluzole (Rilutek) | 982 patients |
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|---|---|---|
| CoQ10 Coenzyme Q10 | 529 patients |
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| Wheelchair (powered) | 492 patients |
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| Vitamin E | 471 patients |
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| Vitamin C | 426 patients |
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Top Symptoms
| Fatigue | 2048 patients |
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|---|---|---|
| Fasciculations | 1952 patients |
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| Stiffness/Spasticity | 1902 patients |
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| Anxiety | 1427 patients |
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| Emotional lability | 1372 patients |
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Real-World Experiences
Patient Forum
- Scientists Find A Way To Slow Lou Gehrig's Disease
- 586 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- Charting the course of PLS and PMA
- August 11, 2009
- FALS Patients Like You: An Interview with Samperio
- July 8, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
Patient Learning in Action
The first thing that I thought might be your problem is malnutrition. Man, you’re losing weight crazy fast. I think you better consider getting peg tube if you desire. They are easy to care for and are literally a life saver. What are your thoughts on this?
- ALS Community Member
PatientsLikeMe Research Updates
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PatientsLikeMe R&D team
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