The PatientsLikeMe ALS/Motor Neuron Disease Community
Patient Spotlight
- reneejkm
- Sex: F
- Data Quality: 3 stars
- ALS: 5 yrs
- Wheelchair Feeding tube
- Mouth/throat: moderate
- Arms: severe
- Chest: none
- Legs: moderate
- See profile
- reneejkm
- Female, 57 years, Prairie View , IL
- I’m married with three sons. Before I retired, I was a tax preparer for 14 years. Before that, I ... See Profile…
ALS, or amyotrophic lateral sclerosis, is a neurodegenerative disease caused by the degeneration of motor neurons. Around 3,000 to 5,000 new cases of ALS are diagnosed every year in the United States alone. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
4,067
total patients
144
Profiles
updated this week
105
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
|---|---|---|---|---|---|---|
| Age | ||||||
|
|
|
|
|
|
|
| Gender | |
| 41% | Females |
|---|---|
| 59% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Riluzole (Rilutek) | 985 patients |
|
|---|---|---|
| CoQ10 | 528 patients |
|
| Wheelchair (powered) | 496 patients |
|
| Vitamin E | 474 patients |
|
| Vitamin C | 430 patients |
|
Top Symptoms
| Fatigue | 2070 patients |
|
|---|---|---|
| Fasciculations | 1970 patients |
|
| Stiffness/Spasticity | 1921 patients |
|
| Anxiety | 1430 patients |
|
| Emotional lability | 1387 patients |
|
Real-World Experiences
Patient Forum
- Infidelity and Depressed
- 894 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- Charting the course of PLS and PMA
- August 11, 2009
- FALS Patients Like You: An Interview with Samperio
- July 8, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
Patient Learning in Action
The first thing that I thought might be your problem is malnutrition. Man, you’re losing weight crazy fast. I think you better consider getting peg tube if you desire. They are easy to care for and are literally a life saver. What are your thoughts on this?
- ALS Community Member
PatientsLikeMe Research Updates
Take a minute to read recently published reports from the
PatientsLikeMe R&D team
What are others saying about PatientsLikeMe?
- Tune in to Twitter
- Find us In the News
- Read patient Testimonials