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- ALS including PLS and PMA
The PatientsLikeMe ALS/Motor Neuron Disease Community
Patient Spotlight
- Boo Boo
- Sex: F
- Data Quality: 3 stars
- ALS: 3 yrs
- Bulbar: moderate
- Arms: none
- Chest: none
- Legs: none
- See profile
- Boo Boo
- Female, 47 years, Carlisle, Cumbria
- I'm a happily retired Mail Order Manager... now enjoying unlimited golf, yoga and leisurely lunch... See Profile…
ALS, or amyotrophic lateral sclerosis, is a neurodegenerative disease caused by the degeneration of motor neurons. Around 3,000 to 5,000 new cases of ALS are diagnosed every year in the United States alone. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
4,263
total patients
140
Profiles
updated this week
99
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
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| Gender | |
| 41% | Females |
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| 59% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Riluzole (Rilutek) | 1020 patients |
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|---|---|---|
| CoQ10 | 532 patients |
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| Wheelchair (powered) | 512 patients |
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| Vitamin E | 475 patients |
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| Vitamin C (ascorbic acid) | 431 patients |
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Top Symptoms
| Fatigue | 2170 patients |
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|---|---|---|
| Fasciculations | 2057 patients |
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| Stiffness/Spasticity | 2011 patients |
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| Anxiety | 1508 patients |
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| Emotional lability | 1449 patients |
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Real-World Experiences
Patient Forum
- question for city dwelling power wheelchair users
- 703 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- Exciting New Profile Chart Upgrades in ALS Community
- January 20, 2010
- A Year in Review: PatientsLikeMe in 2009
- December 31, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
Patient Learning in Action
The first thing that I thought might be your problem is malnutrition. Man, you’re losing weight crazy fast. I think you better consider getting peg tube if you desire. They are easy to care for and are literally a life saver. What are your thoughts on this?
- ALS Community Member
PatientsLikeMe Research Updates
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PatientsLikeMe R&D team
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