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The PatientsLikeMe ALS/Motor Neuron Disease Community

Patient Spotlight
MikeFromFinland
MikeFromFinland
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Feeding tube
Mouth/throat: mild
Arms: moderate
Chest: none
Legs: moderate
MikeFromFinland
Male, 32 years, Finland
Hello my name is Mikko and I'm living in Arctic Circle Lapland, Finland...very same place where S... See Profile…

ALS, or amyotrophic lateral sclerosis, is a neurodegenerative disease caused by the degeneration of motor neurons. Around 3,000 to 5,000 new cases of ALS are diagnosed every year in the United States alone. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!

Who Will You Find?

4,066 total patients
145 Profiles updated this week
105 New patients this month

<20 20- 29 30- 39 40- 49 50- 59 60- 69 70+
Age
0% 3% 8% 22% 30% 27% 9%
Gender
41% Females
59% Males

What Are Patients Sharing?

Real-World Data
Top Treatments
Riluzole (Rilutek) 984 patients 100.0 percent
CoQ10 528 patients 53.6585365853659 percent
Wheelchair (powered) 496 patients 50.4065040650407 percent
Vitamin E 474 patients 48.1707317073171 percent
Vitamin C 430 patients 43.6991869918699 percent
Top Symptoms
Fatigue 2069 patients 100.0 percent
Fasciculations 1969 patients 95.1667472208797 percent
Stiffness/Spasticity 1921 patients 92.8467858869019 percent
Anxiety 1430 patients 69.115514741421 percent
Emotional lability 1387 patients 67.0372160463992 percent
Real-World Experiences
Patient Forum
Infidelity and Depressed
950 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
Charting the course of PLS and PMA
August 11, 2009
FALS Patients Like You: An Interview with Samperio
July 8, 2009
More…

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What Can You Learn?

Your Health Profile

By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.

Sample ALS/Motor Neuron Disease outcome chart
Patient Learning in Action
The first thing that I thought might be your problem is malnutrition. Man, you’re losing weight crazy fast. I think you better consider getting peg tube if you desire. They are easy to care for and are literally a life saver. What are your thoughts on this?
- ALS Community Member
Sample ALS/Motor Neuron Disease outcome chart

More on Learning »

PatientsLikeMe Research Updates

Take a minute to read recently published reports from the
PatientsLikeMe R&D team

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