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Compare treatments, symptoms and experiences with people like you and take control of your health

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Share your experience, give and get support to improve your life and the lives of others

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Chart your health over time and contribute to research that can advance medicine for all

Member stories

“Our brother Stephen was living with ALS and we thought, ‘there has to be a better way.’ There is. By sharing our experiences, we can all contribute new data that can accelerate research and help create better treatments. Our experiences can actually change medicine… for good.”

Jamie & Ben Heywood
Co-founders, PatientsLikeMe

News

PatientsLikeMe Develops Patient and Scientific Advisory Boards 

Our first member-based team of advisors will give feedback on research initiatives and create new standards for working with patients, while three new scientific advisors will help further shape the Open Research Exchange. 

PatientsLikeMe and Actelion to Develop New Measure for non-Hodgkin's lymphoma MF-CTCL  

Members will share their experiences to help researchers better characterize the disease and develop treatment strategies. The collaboration will leverage the Open Research Exchange (ORE), an online hub for developing and sharing new health measures that better reflect patients’ experiences living with and managing disease.


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  • 250,000+ members
  • 2,000+ conditions
  • 50+ published research studies
  • 22 million data points about disease