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Learn from others

Compare treatments, symptoms and experiences with people like you and take control of your health

Connect with people like you

Share your experience, give and get support to improve your life and the lives of others

Track your health

Chart your health over time and contribute to research that can advance medicine for all

Member stories

“Our brother Stephen was living with ALS and we thought, ‘there has to be a better way.’ There is. By sharing our experiences, we can all contribute new data that can accelerate research and help create better treatments. Our experiences can actually change medicine… for good.”

Jamie & Ben Heywood
Co-founders, PatientsLikeMe


PatientsLikeMe and Actelion to Develop New Measure for non-Hodgkin's lymphoma MF-CTCL 

Members will share their experiences to help researchers better characterize the disease and develop treatment strategies. The collaboration will leverage the Open Research Exchange (ORE), an online hub for developing and sharing new health measures that better reflect patients’ experiences living with and managing disease.

PatientsLikeMe and CATCH To Accelerate Testing and Adoption of New Disease Diagnostics and Phenotypes 

The Center for Assessment Technology and Continuous Health, which is based at MGH and collaborates with various groups at MIT, is focused on discovering news ways to quantitatively measure the human condition in health and disease. 

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  • 250,000+ members
  • 2,000+ conditions
  • 50+ published research studies
  • 7 million+ treatment & symptom reports