240 patient evaluations for Glatiramer acetate

2,238 members have decided to share their profiles only with other members of PatientsLikeMe.

Jun 24, 2011 (Started Oct 08, 2010)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: $25-49 monthly

Oct 10, 2010 (Started Oct 08, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: For burden I put that it is not difficult at all, not because self injections aren't a little creepy, but because it is not hard for me to suck it up and do it anyway. I want to get better and I will do anything I can to help myself. The injections really aren't that bad, just a little sting (I will admit right now I take a deep breath, count and go on 3). :) So far I have NO SIDE EFFECTS, no bump, blister or anything :)
Cost: $25-49 monthly

  • 0 helpful marks

Jun 2, 2011 (Started Nov 01, 2010)

  • Effectiveness
    Slight (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Advice & Tips: I stopped taking Copaxone because I started taking LDN on October 12,2011

  • 0 helpful marks

Sep 2, 2011 (Started Feb 04, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Mar 1, 2011 (Started Aug 17, 2007)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (redness, injection site reaction, lumps and bumps)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Cost: $25-49 monthly
Side effects: injection site reaction, redness, lumps and bumps

Aug 23, 2008 (Started Aug 17, 2007)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (redness, injection site reaction, lumps and bumps)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Advice & Tips: It takes time to get used to the idea of having to do this everyday. It doesn't make you feel better. It is not like an aspirin for a headache. So it's more of a cerebral fight...you have to believe that you are benefing from it. There is no sure way to know, as MS is so diverse.
Cost: $25-49 monthly
Side effects: injection site reaction, redness, lumps and bumps

  • 0 helpful marks

Aug 26, 2011 (Started Aug 26, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (injection site bruising)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly
Side effects: injection site bruising

  • 0 helpful marks

Aug 24, 2011 (Started Mar 01, 2011)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: get your veins ballooned... because you have CCSVI... it was very ez with no problems... and even though one-third of people treated don't get symptom relief, like myself, it's still worth a shot and at least you will have better blood flow to your lesions among other things, and this is the main point in getting venoplasty...
Cost: < $25 monthly

Apr 16, 2011 (Started Mar 01, 2011)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Jan 10, 2003 (Started Jan 10, 2000)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: Copaxone didn't work for me at all. Taking a daily injection made me think I was helping myself, but really I was just fooling myself.
Cost: < $25 monthly

  • 0 helpful marks

Apr 15, 2010 (Started Oct 01, 2009)

  • Effectiveness
    None (for multiple sclerosis)
  • Side effects
    Severe (for Overall) (immediate post injection reaction (IPIR), injection site pain, injection site itching, injection site reaction, injection site redness)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: my advice is to find someone currently taking the treatment that your thinking of starting and asking your questions to them personally before beginning (doctors don't know first hand how it affects only the out come)

  • 0 helpful marks

Jul 29, 2011 (Started Aug 28, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (itching, nausea, bruising, lipodystrophy (lipoatrophy or loss of fatty tissue), redness, lumps and bumps, injection site pain, injection site itching, swelling)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 20 mg Daily
Advice & Tips: I've only tried the auto-ejector once and since that first time, it's been manual for me. I've been on this med for two years and I've done well on it - - that's enough of a motivator to continue with whatever inconvenience the daily injection poses.
Cost: < $25 monthly
Side effects: lipodystrophy (lipoatrophy or loss of fatty tissue), lumps and bumps, injection site itching, injection site pain, bruising, itching, nausea, redness, swelling

Aug 11, 2010 (Started Aug 28, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (itching, nausea, bruising, lipodystrophy (lipoatrophy or loss of fatty tissue), redness, lumps and bumps, injection site pain, injection site itching, swelling)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: Recent MRI shows no new or enhancing lesions. Before Copax and estriol, fresh attacks hit every 2-3 months. Free of attacks since 9/09. Hallelujah!
Cost: < $25 monthly
Side effects: lipodystrophy (lipoatrophy or loss of fatty tissue), lumps and bumps, injection site itching, injection site pain, bruising, itching, nausea, redness, swelling

Mar 26, 2010 (Started Aug 28, 2009)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Moderate (for Overall) (itching, nausea, bruising, lipodystrophy (lipoatrophy or loss of fatty tissue), redness, lumps and bumps, injection site pain, injection site itching, swelling)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 20 mg Daily
Advice & Tips: From what I understand, Copaxone takes 4 - 6 months to kick in. In my case I began taking it 8/09. One month after I began treatment I had another attack. But this flare-up was much milder than previous ones (they had been running every 2 - 3 months, putting me in bed for days). Since 9/09, I've had fatigue hit me pretty hard but my balance has recovered enough so that I'm walking without a cane and the fatigue has diminished enough so that I can walk roughly a mile. For a bit of perspective, in the late Fall I had to sleep for an hour after taking a shower in the a.m. Please keep in mind that I take this med with other pills.
Cost: < $25 monthly
Side effects: lipodystrophy (lipoatrophy or loss of fatty tissue), lumps and bumps, injection site itching, injection site pain, bruising, itching, nausea, redness, swelling

Oct 22, 2009 (Started Aug 28, 2009)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (for Overall) (itching, nausea, bruising, redness, lumps and bumps, injection site pain, injection site itching, swelling)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Advice & Tips: I did a bit of research on patients taking copaxone prior to beginning treatment and I decided to go with manual injection. Compared to the one instance I used the autoinjector (with the SS nurse during training), I believe this was the right choice for me as the manual injections seem less uncomfortable. That being said, I'm still keeping an eye on oral meds slated for FDA approval in the near future.
Cost: < $25 monthly
Side effects: lipodystrophy (lipoatrophy or loss of fatty tissue), lumps and bumps, injection site itching, injection site pain, bruising, itching, nausea, redness, swelling

  • 1 helpful mark

Jun 1, 2011 (Started Mar 25, 2011)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Severe (for Overall)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 20 mg Daily
Cost: $100-199 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 240 patient evaluations for Glatiramer acetate