116 patient evaluations for Topiramate

1,051 members have decided to share their profiles only with other members of PatientsLikeMe.

Mar 9, 2010 (Started Jan 09, 2005)

  • Effectiveness
    Moderate (for epilepsy)
  • Side effects
    Moderate (for Overall) (body hair loss)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 300 mg Daily
Advice & Tips: All Foods will Taste Different If you Drink Colas You might switch ti Dr Pepper for awhile
Side effects: body hair loss

  • 0 helpful marks

Mar 1, 2010 (Started Jul 08, 2009)

  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Mild (for Overall) (shivering, whole body shaking)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 25 mg Daily
Advice & Tips: When you 1st start taking it you may feel a little foggy for a week or two until it gets in your system. It does go away. This helped my nueropathy type symptoms, fire shooting through my toes etc. Tingly limbs etc. I would take @exact same time every day. It is very uncomfortable when it wears off. feels like you are having spasm all through your body, internal shaking. A good side effect of this medication is it will help control weight gain and you may even lose weight from it.
Side effects: whole body shaking, shivering

  • 0 helpful marks

Feb 27, 2010 (Started Feb 22, 2010)

  • Effectiveness
    None (for facial tics)
  • Side effects
    Severe (for Overall)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: 50 mg Daily
Advice & Tips: This prescription made me feel awful the first day. My symptoms seemed to worsen when taking the prescription. By the six day it was obvious to me that I would not take it another day and stopped it at once without contacting the neurologist.

  • 0 helpful marks

Feb 25, 2010 (Started Feb 11, 2010)

  • Effectiveness
    Moderate (for tremor(s))
  • Side effects
    Severe (for Overall) (mood swings)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Did not expect to experience any nasty side effects on 50mg per day. But, after only being on it from Feb. 11-25 it became apparent it can cause severe mood swings (anger to crying spells). The doctor has given me orders to stop taking it immediately.
Cost: < $25 monthly
Side effects: mood swings

Feb 24, 2010 (Started Feb 11, 2010)

  • Effectiveness
    Moderate (for tremor(s))
  • Side effects
    Moderate (for Overall) (mood swings)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Just came to the realization Topiramate (Topomax) may be causing some mood swings, increased anxiety and slight increase in depression.
Cost: < $25 monthly
Side effects: mood swings

  • 0 helpful marks

Feb 19, 2010 (Started Sep 20, 2006)

  • Effectiveness
    Major (for epilepsy)
  • Side effects
    Moderate (for Overall) (memory loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily
Advice & Tips: I have been taking Topamax since 2007 and I noticed many side effects that I was told about by my Neurologist. First was the tingling in my hands, feet and face. These symptoms went away after I took the medication for over a year. I also noticed a decrease in my number of seizures a year. I also had a decrease in tiredness. With this med you need to get proper sleep, and watch your diet. You can not over exert yourself. Especially in warm weather.. I have had a lot of success on this med and am very happy. I will continue to stay on it as long as I can..
Cost: < $25 monthly
Side effects: memory loss

  • 1 helpful mark

Jan 13, 2010 (Started Nov 16, 2009)

  • Effectiveness
    None (for left side tingling)
  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Moderate (for Overall) (sleepiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Currently it makes me very sleeply. I fell asleep at my job today and it was very hard to drive home. I had to open up the window and play the music a little loud.
Side effects: sleepiness

  • 0 helpful marks

Sep 25, 2009 (Started Aug 24, 2009)

  • Effectiveness
    Can't tell (for migraine headaches)
  • Side effects
    Moderate (for Overall)
  • Adherence
    Sometimes
  • Burden
    Not at all hard to take
Advice & Tips: I only took this medication for a few days. Once I realized that the side effects listed were the same problems I was having, like cog fog, I stopped taking it.
Cost: < $25 monthly

  • 0 helpful marks

Dec 31, 2009 (Started Oct 10, 2002)

  • Effectiveness
    Major (for pain)
  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Advice & Tips: if I do not take this meds my head feels like it is going to short circut!
Cost: < $25 monthly

  • 0 helpful marks

Dec 5, 2009 (Started Sep 22, 2010)

  • Effectiveness
    Moderate (for Bipolar Disorder and Migraine Headaches)
  • Side effects
    Moderate (for Overall) (brain fog, weight loss, word fishing, headaches, feet tingling, hands tingling, difficulty with orgasm)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: Was awful to start with, got alot worse in my depression an felt suicidal trough all dosage adjustments. Had also really bad cognitive problems like finding words and thinking was impossible. Felt like I was lobotomized. But then it stabilized and has workd wonders for my mood, migraine and weight as well. Not so strong antimania-effect as it supposed to be... have been having hypomania ever since I started and have also had one psychotic manic episode. Rather have that then depression though.
Side effects: brain fog, weight loss, word fishing, difficulty with orgasm, hands tingling, feet tingling, headaches

  • 0 helpful marks

Nov 16, 2009 (Started May 27, 2009)

  • Effectiveness
    Slight (for headaches)
  • Side effects
    Severe (for Overall) (head tingling, nausea, mood swings, tremor in hands, brain fog, word fishing, feet tingling, hands tingling, bad taste in mouth)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Daily
Advice & Tips: Don't take this med if you can avoid it!!!
Cost: < $25 monthly
Side effects: feet tingling, hands tingling, head tingling, nausea, mood swings, word fishing, tremor in hands, bad taste in mouth, brain fog, brain fog

  • 0 helpful marks
Last updated:
Showing 10 of 116 patient evaluations for Topiramate