What is Carbamazepine?

Category: Prescription Drugs

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Carbamazepine is an anticonvulsant used to treat partial and mixed seizure patterns, generalized tonic-clonic seizures and trigeminal neuralgia. It may also be used to treat resistant schizophrenia, alcohol withdrawal, restless leg syndrome and post traumatic stress disorder.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Epilepsy 741 381
Trigeminal neuralgia 97 49
Trigeminal Neuralgia 84 58
Bipolar Disorder 70 32
Pain 44 10
Seizures (grand mal or tonic-clonic) 28 26

Show all 145 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 118
Moderate 186
Mild 176
None 175

Commonly reported side effects and conditions associated with Carbamazepine

Side effect Patients
Fatigue 37
Dizziness 32
Sleepiness 23
Drowsiness 21
Tiredness 18
Excessive daytime sleepiness (somnolence) 17

Show all 277 reported side effects

Dosages

Based on patients currently taking Carbamazepine

Dosage Patients
200 mg twice daily 19
400 mg daily 15
200 mg daily 13
400 mg twice daily 10
300 mg daily 6
1,000 mg daily 5
200 mg three times daily 4
600 mg daily 4
800 mg daily 3
100 mg/5 mL daily 2

See all 32 dosages

Why patients stopped taking Carbamazepine

Multiple reasons could be selected

Reason Patients
Side effects too severe 218
Did not seem to work 205
Doctor's advice 174
Other 93
Course of treatment ended 29
Personal research 26
Expense 19
Change in health plan coverage 14
See all 529 patients who’ve stopped taking Carbamazepine

Duration

Currently taking Carbamazepine

Duration Patients
1 - 6 months 8
6 months - 1 year 9
1 - 2 years 16
2 - 5 years 19
5 - 10 years 28
10 years or more 33

Stopped taking Carbamazepine

Duration Patients
Less than 1 month 107
1 - 6 months 95
6 months - 1 year 53
1 - 2 years 71
2 - 5 years 87
5 - 10 years 66
10 years or more 66
Adherence
Adherence Evaluations
Always 519
Usually 92
Sometimes 18
Never taken as prescribed 26
Burden
Burden Evaluations
Very hard to take 46
Somewhat hard to take 66
A little hard to take 113
Not at all hard to take 430
Cost per month
Cost per month Evaluations
$200+ 23
$100-199 18
$50-99 33
$25-49 54
< $25 278
Not specified 249

What people switch to and from

Patients started taking Carbamazepine after stopping:

Treatment Patients
Divalproex sodium (Depakote) 14
Phenytoin (Dilantin) 10
Lithium Carbonate (Lithium Carbonate ER) 7
Lamotrigine (Lamictal) 5
Levetiracetam (Keppra) 5

Show all 32 treatments patients report switching from

Patients stopped taking Carbamazepine and switched to:

Treatment Patients
Lamotrigine (Lamictal) 12
Topiramate (Topamax) 7
Oxcarbazepine (Trileptal) 6
Levetiracetam (Keppra) 5
Divalproex sodium (Depakote) 4

Show all 27 treatments patients report switching to

Last updated:

68 patient evaluations for Carbamazepine

498 members have decided to share their profiles only with other members of PatientsLikeMe.

vateresa
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vateresa
Sex: F
Data Quality: 3 stars
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
I am: vg
I have:
ALS

See vateresa's full Carbamazepine history

Nov 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for Epilepsy)
  • Side effects
    Mild (Unrefreshing or poor sleep)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: This medicine worked in reducing my front lobe seizures, but at night, I was still seizing so switched to another drug, Trileptal (Oxcarbazepine) which has worked extremely well for over a year. =No seizures
Cost: < $25 monthly

  • 0 helpful marks
Just 4 You
40007 thumb
Just 4 You
Data Quality: 2 stars
  • Gender: M
  • Age: 54y
  • Duration: 52 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: Mild
0 seizures
13 weeks ago
I am: vg
I have:
Epilepsy

See Just 4 You's full Carbamazepine history

Sep 23, 2016 (Started Jan 01, 1970)

  • Effectiveness
    Major (for Epilepsy)
  • Side effects
    Moderate (Weight gain, Erectile dysfunction)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 800 mg Twice daily
Advice & Tips: This drug is NOT for the big seizures, but the mild ones.
Cost: < $25 monthly

  • 0 helpful marks
Fluff4brains
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Fluff4brains
Data Quality: 1 star
  • Gender: M
  • Age: 50
Condition: Glioblastoma 6 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Moderate
I am: b
I have:
Glioblastoma

See Fluff4brains's full Carbamazepine history

Mar 14, 2015 (Started Jan 15, 2015)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Moderate (Numbness in hands, Poor lip closure, Dizziness/walking like I'm drunk)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Twice daily

  • 0 helpful marks
Last updated:
Showing 3 of 68 patient evaluations for Carbamazepine