What is Talampanel?

Category: Prescription Drugs

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A Multinational, Multicenter, Randomized, Double-Blind, Placebo-Controlled, Parallel-Group Study to Assess the Efficacy, Tolerability and Safety of Talampanel in Subjects With Amyotrophic Lateral Sclerosis (ALS)

Reported purpose & perceived effectiveness

Purpose
Patients
Patients with evaluations
Perceived effectiveness

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 2
Moderate 2
Mild 2
None 6

Commonly reported side effects and conditions associated with Talampanel

Side effect Patients
Dizziness 3
Excessive daytime sleepiness (somnolence) 2
Depression with increased dosage 1
Equilibrium problems 1
Fatigue 1
Lethargy 1

Show all 7 reported side effects

Why patients stopped taking Talampanel

Multiple reasons could be selected

Reason Patients
Did not seem to work 7
Course of treatment ended 5
Doctor's advice 2
Other 2
Side effects too severe 2
See all 13 patients who’ve stopped taking Talampanel

Duration

Stopped taking Talampanel

Duration Patients
1-3 months 1
3-6 months 1
6 months-1 year 1
1-2 years 10

Adherence


Always
Patients
9
75%
Usually
Patients
1
8%
Sometimes
Patients
1
8%
Never taken as prescribed
Patients
1
8%

Burden


Very hard to take
Patients
1
8%
Somewhat hard to take
Patients
1
8%
A little hard to take
Patients
3
25%
Not at all hard to take
Patients
7
58%

Cost per month


Cost per month
$200+
Patients
0
0%
Cost per month
$100-199
Patients
0
0%
Cost per month
$50-99
Patients
0
0%
Cost per month
$25-49
Patients
0
0%
Cost per month
< $25
Patients
7
58%
Cost per month
Not specified
Patients
5
42%
Last updated:

4 patient evaluations for Talampanel

12 members have decided to share their profiles only with other members of PatientsLikeMe.

afaithfulmale
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afaithfulmale
Sex: M
Data Quality: 0 stars
Bulbar: none
Arms: none
Chest: none
Legs: moderate
I have:
ALS

See afaithfulmale's full Talampanel history

May 15, 2010 (Started Jan 20, 2009)

  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Cost: < $25 monthly
Side effects: Dizziness

Apr 1, 2010 (Started Jan 20, 2009)

  • Effectiveness
    Slight (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Moderate (Dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Cost: < $25 monthly
Side effects: Dizziness

Mar 25, 2009 (Started Jan 20, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Mild (Dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Cost: < $25 monthly
Side effects: Dizziness

Jan 27, 2009 (Started Jan 20, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    Mild (Dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Cost: < $25 monthly
Side effects: Dizziness

  • 0 helpful marks
STEELER
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STEELER
Sex: M
Data Quality: 3 stars
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
I am: g
I have:
ALS

See STEELER's full Talampanel history

May 5, 2010 (Started Jan 14, 2009)

  • Effectiveness
    Can’t tell (for Other)
  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2009 mg Daily
Advice & Tips: TIVIA STOPED RESEARCH WAS INCONCLUSIVE !

  • 0 helpful marks
AcesHigh
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AcesHigh
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
I have:
ALS

See AcesHigh's full Talampanel history

Feb 9, 2010 (Started Mar 31, 2009)

  • Effectiveness
    None (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Clinical Trial showed no measurable effects.
Cost: < $25 monthly

Apr 20, 2009 (Started Mar 31, 2009)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: I am not yet up to the full daily dosage of Talampanel. I am only taking 4 pills a day. Will start 5 pills tomorrow and the final 6 pills next week.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 4 patient evaluations for Talampanel