What is Baclofen Intrathecal pump?

Category: Prescription Drugs

Most popular types: Lioresal MedTronic SynchroMed II Programmable Infusion Pump

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Baclofen intrathecal is a muscle relaxant and antispastic that is administered directly into the spinal fluid via a pump, implanted under the skin.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Stiffness/Spasticity 93 51
Multiple Sclerosis 10 7
Muscle spasms 10 5
ALS (Amyotrophic Lateral Sclerosis) 3 1
Improve mobility 3 1
Chronic pain 2 0

Show all 27 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 5
Moderate 14
Mild 12
None 40

Commonly reported side effects and conditions associated with Baclofen Intrathecal pump

Side effect Patients
Sleepiness 3
Weakness in legs 3
Fatigue 2
Kink in the catheter 2
Urinary retention 2
Dizziness with nausea 1

Show all 16 reported side effects

Dosages

Based on patients currently taking Baclofen Intrathecal pump

Dosage Patients
0.05 mg daily 2
daily 2
0.05 mg five times daily 1
3.503 mcg daily 1
10 mg daily 1
20 mg daily 1
25 mg daily 1
43.19 mcg daily 1
46 mcg daily 1
70 mcg daily 1

See all 22 dosages

Why patients stopped taking Baclofen Intrathecal pump

Multiple reasons could be selected

Reason Patients
Other 7
Side effects too severe 5
Did not seem to work 4
Doctor's advice 4
Personal research 4
See all 19 patients who’ve stopped taking Baclofen Intrathecal pump

Duration

Currently taking Baclofen Intrathecal pump

Duration Patients
1 - 6 months 1
1 - 2 years 3
2 - 5 years 5
5 - 10 years 9
10 years or more 7

Stopped taking Baclofen Intrathecal pump

Duration Patients
Less than 1 month 3
1 - 6 months 1
6 months - 1 year 6
1 - 2 years 3
2 - 5 years 3
5 - 10 years 1
10 years or more 2
Adherence
Adherence Evaluations
Always 63
Usually 3
Sometimes 2
Never taken as prescribed 3
Burden
Burden Evaluations
Very hard to take 2
Somewhat hard to take 6
A little hard to take 16
Not at all hard to take 47
Cost per month
Cost per month Evaluations
$200+ 2
$100-199 0
$50-99 0
$25-49 5
< $25 26
Not specified 38

What people switch to and from

Patients started taking Baclofen Intrathecal pump after stopping:

Treatment Patients
Baclofen (Mylan-Baclofen) 3
Tizanidine (Zanaflex) 2
Last updated:

15 patient evaluations for Baclofen Intrathecal pump

50 members have decided to share their profiles only with other members of PatientsLikeMe.

gregster68
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gregster68
Data Quality: 1 star
  • Sex: M
  • Age: 48y
  • Organ: Heart
Quality of life:
  • Mental: Mild
  • Physical: Mild
  1. Heart : 2y Waiting
I have:
Heart Transplant

See gregster68's full Baclofen Intrathecal pump history

Apr 15, 2016 (Started Jul 30, 2006)

  • Effectiveness
    Major (for Stiffness/Spasticity)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 590 mcg Daily
Advice & Tips: Medicine is dispensed automatically via an internal pump.  It gets refilled about every 12 weeks
Cost: < $25 monthly

  • 0 helpful marks
Cruiser
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Cruiser
Sex: F
Data Quality: 0 stars
Bulbar: mild
Arms: none
Chest: none
Legs: moderate
I am: vg
I have:
PLS

See Cruiser's full Baclofen Intrathecal pump history

Mar 28, 2015 (Started Feb 20, 2009)

  • Effectiveness
    Major (for The pump was implanted because I was unable to take the pill. It gave me severe headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: The pump has been great. I will have the meds increased my next visit because I have been feeling increased stiffness. I go to the Mayo Clinic which is 1 1/2hrs. away, but it's worth the trip. I have to go every three mos. I go to the ALS clinic every 6 mos. It is covered by my insurance

  • 0 helpful marks
RachelB
6960 thumb
RachelB
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: vg
I have:
MS

See RachelB's full Baclofen Intrathecal pump history

Dec 1, 2014 (Started Aug 01, 2012)

  • Effectiveness
    Major (for Stiffness/Spasticity)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 81 mcg One time
Advice & Tips: Don't be afraid to have your pump increased as needed

  • 0 helpful marks
Last updated:
Showing 3 of 15 patient evaluations for Baclofen Intrathecal pump