Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
General health 528 104
ALS (Amyotrophic Lateral Sclerosis) 275 71
Multiple Sclerosis 52 19
Parkinson's Disease 23 2
Fibromyalgia 19 5
Increase effect of another treatment 15 4

Show all 88 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 0
Moderate 2
Mild 2
None 223

Commonly reported side effects and conditions associated with Vitamin E

Side effect Patients
Diarrhea 1
Hearing problems 1
Itching 1
Nausea 1

Dosages

Based on patients currently taking Vitamin E

Dosage Patients
400 intl units daily 45
daily 12
400 units daily 9
800 intl units daily 8
200 intl units daily 7
100 intl units daily 3
400 mg daily 3
100 units daily 2
400 intl units twice daily 2
800 daily 2

See all 28 dosages

Why patients stopped taking Vitamin E

Multiple reasons could be selected

Reason Patients
Other 102
Did not seem to work 81
Personal research 38
Doctor's advice 23
Expense 17
Course of treatment ended 7
Side effects too severe 4
Change in health plan coverage 3
See all 245 patients who’ve stopped taking Vitamin E

Duration

Currently taking Vitamin E

Duration Patients
1 - 6 months 7
6 months - 1 year 6
1 - 2 years 10
2 - 5 years 20
5 - 10 years 38
10 years or more 33

Stopped taking Vitamin E

Duration Patients
Less than 1 month 10
1 - 6 months 33
6 months - 1 year 47
1 - 2 years 64
2 - 5 years 52
5 - 10 years 23
10 years or more 16
Adherence
Adherence Evaluations
Always 138
Usually 60
Sometimes 11
Never taken as prescribed 18
Burden
Burden Evaluations
Very hard to take 4
Somewhat hard to take 5
A little hard to take 23
Not at all hard to take 195
Cost per month
Cost per month Evaluations
$200+ 1
$100-199 0
$50-99 3
$25-49 7
< $25 112
Not specified 104
Last updated:

45 patient evaluations for Vitamin E

167 members have decided to share their profiles only with other members of PatientsLikeMe.

colinmoss
2016 thumb
colinmoss
Sex: M
Data Quality: 1 star
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See colinmoss's full Vitamin E history

Oct 12, 2014 (Started Feb 28, 2002)

  • Effectiveness
    Major (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Mild (Diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5000 mg Daily
Advice & Tips: I have ALS with both upper and lower neurone damage yet my progression has been slow having survived 14 years from first symptoms and still have quality of life. The only side effect was occasional diahoria which I think was natures way of saying you have taken a bit too much. I would recommend people to take it as soon as possible after diagnosis. It needs to be natural vitamin-E. Look at Dr Carsten Hager and vitamin E on the internet to find out why I take it.
Cost: < $25 monthly

Jan 21, 2010 (Started Feb 28, 2002)

  • Effectiveness
    Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5000 mg Daily
Advice & Tips: Build up to the full dose over 2-3 weeks. The only side effect I have had is occasional diahorea which seems to be the body's way of telling you you have taken too much. I would advise plwMND to take it as early as possible (two thirds dose mid am and remaining 1/3 mid p.m)
Cost: < $25 monthly

  • 0 helpful marks
whatacall
67402 thumb
whatacall
Gender: F
Data Quality: 1 star
Pain: Little
Fatigue: Little
Sleep: Some
Stiffness: Little
function: Some
external_stress: Little
Stickman: little
Description:F56y
FM:5y Dx
I am: g
I have:
Fibromyalgia

See whatacall's full Vitamin E history

Jun 14, 2014 (Started Apr 15, 2007)

  • Effectiveness
    Slight (for Support heart health)
  • Effectiveness
    Moderate (for Support immune health)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

  • 0 helpful marks
Navy Nurse
3557 thumb
Navy Nurse
Sex: F
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: none
Legs: moderate
I have:
ALS

See Navy Nurse's full Vitamin E history

Jun 30, 2012 (Started Oct 18, 2001)

  • Effectiveness
    Can’t tell (for General health)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1200 intl units Daily

Aug 13, 2011 (Started Oct 18, 2001)

  • Effectiveness
    Slight (for General health)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1200 intl units Daily

Nov 17, 2010 (Started Oct 18, 2001)

  • Effectiveness
    Moderate (for General health)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1200 intl units Daily

  • 0 helpful marks
Last updated:
Showing 3 of 45 patient evaluations for Vitamin E