What is Heat avoidance?

Category: Lifestyle Modifications

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See also: Cooling Vest

Many individuals with MS are sensitive to heat and their symptoms become worse in a hot environment. For these individuals, heat appears to decrease the ability of damaged nerves to conduct electrical impulses, resulting in increased symptoms.

Reported purpose & perceived effectiveness


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 9
Moderate 8
Mild 7
None 33

Commonly reported side effects and conditions associated with Heat avoidance

Side effect Patients
Fatigue 11
Avoidance of the sun 10
Difficulty doing chores 6
Anxious mood 4
Tremor in hands 4
Loneliness 2

Show all 13 reported side effects

Dosages

Based on patients currently using Heat avoidance

Dosage Patients
daily 33
as needed 8
all the time (24/7) 5
yearly 1

Why patients stopped taking Heat avoidance

Multiple reasons could be selected

Reason Patients
Other 1
See all 1 patient who’ve stopped using Heat avoidance

Duration

Currently using Heat avoidance

Duration Patients
1-2 years 2
2 years or more 47

Stopped using Heat avoidance

Duration Patients
2 years or more 1

Adherence


Always
Patients
29
51%
Usually
Patients
25
44%
Sometimes
Patients
3
5%
Never taken as prescribed
Patients
0
0%

Burden


Very hard to take
Patients
13
23%
Somewhat hard to take
Patients
21
37%
A little hard to take
Patients
10
18%
Not at all hard to take
Patients
13
23%

Cost per month


Cost per month
$200+
Patients
2
4%
Cost per month
$100-199
Patients
0
0%
Cost per month
$50-99
Patients
1
2%
Cost per month
$25-49
Patients
1
2%
Cost per month
< $25
Patients
23
40%
Cost per month
Not specified
Patients
30
53%
Last updated:

17 patient evaluations for Heat avoidance

57 members have decided to share their profiles only with other members of PatientsLikeMe.

Sapphyr
7883 thumb
Sapphyr
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: severe
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: vg
I have:
MS

See Sapphyr's full Heat avoidance history

Aug 24, 2015 (Started Aug 15, 1997)

  • Effectiveness
    Major (for Heat intolerance)
  • side effects
    Severe (Difficulty doing chores)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: Find something vaguely sociable to do when avoiding the heat - I play the guitar and other listen :) ...as if they have a choice!
Side effects: Difficulty doing chores

Jul 20, 2010 (Started Aug 15, 1997)

  • Effectiveness
    Major (for Heat intolerance)
  • side effects
    Moderate (Difficulty doing chores)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: As needed
Side effects: Difficulty doing chores

Dec 14, 2008 (Started Aug 15, 1997)

  • Effectiveness
    Moderate (for Heat intolerance)
  • side effects
    Mild (Difficulty doing chores)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed
Advice & Tips: Not being able to tolerate temperatures over 24C affected my ability to enjoy fully our holidays with our children as I shifted my day such that I want out in the early in the morning and in the evening. Being alone to go to the markets and do the shopping before my family woke was not a problem! :)
Side effects: Difficulty doing chores

  • 0 helpful marks
tazbaby4eva
13191 thumb
tazbaby4eva
Sex: F
Data Quality: 0 stars
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: b
I have:
MS

See tazbaby4eva's full Heat avoidance history

Jan 18, 2013 (Started Jun 01, 2008)

  • Effectiveness
    Major (for Fatigue)
  • side effects
    Severe (Makes me very edgy)
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Daily
Advice & Tips: The heat is very touch and go with MS

  • 0 helpful marks
Hope_In_Christ
34553 thumb
Hope_In_Christ
Data Quality: 1 star
  • Gender: F
  • Age: 28
Condition: Central Sensitivity Syndrome 7 additional condition(s)
Quality of life:
  • Mental: Mild
  • Physical: Mild
I am: b
I have:
Central Sensitivity Syndrome

See Hope_In_Christ's full Heat avoidance history

Jun 23, 2011 (Started Feb 01, 2011)

  • Effectiveness
    Major (for CRPS I (Complex regional pain syndrome type I))
  • Effectiveness
    Major (for Swelling in right foot)
  • Effectiveness
    Major (for Heat rashes)
  • Effectiveness
    Major (for Chest and face flushing)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: As needed

  • 0 helpful marks
Last updated:
Showing 3 of 17 patient evaluations for Heat avoidance