Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple myeloma 327 68
Amyotrophic lateral sclerosis 58 26
Multiple sclerosis 27 19
Support immune health 4 1
Hodgkin's lymphoma 3 3

Show all 28 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 22
Moderate 31
Mild 24
None 70

Commonly reported side effects and conditions associated with Stem Cell Transplant

Side effect Patients
Fatigue 15
Diarrhea 10
Nausea 9
Hair loss 7
Decreased appetite 4
Headaches 4

Show all 60 reported side effects

Dosages

Based on patients currently having Stem Cell Transplant

Dosage Patients
as needed 2
every 8 weeks 1
monthly 1
Adherence
Adherence Evaluations
Always 91
Usually 2
Sometimes 13
Never taken as prescribed 41
Burden
Burden Evaluations
Very hard to take 33
Somewhat hard to take 37
A little hard to take 28
Not at all hard to take 49
Cost per month
Cost per month Evaluations
$200+ 43
$100-199 3
$50-99 1
$25-49 1
< $25 23
Not specified 76

What people switch to and from

Patients started having Stem Cell Transplant after stopping:

Treatment Patients
Glatiramer acetate (Copaxone) 1
Mitoxantrone (Novantrone) 1
Last updated:

11 patient evaluations for Stem Cell Transplant

Jan 4, 2018 (Started Feb 20, 2017)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (headaches)
  • Adherence
    Always
  • Burden
    Very hard to take
Advice & Tips: I received 3 rounds but don't think it was effective. It was a very expensive procedure and required additional travel expenses, which had become increasingly difficult for my condition.

Aug 6, 2017 (Started Feb 20, 2017)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Very hard to take
Dosage: Every 3 months
Advice & Tips: I live in the U.S. but go to Israel for this. It's a long and expensive trip. I cannot tell whether I have seen any improvement from it, but I also have not had any side effect. The headache was temporary and was gone by the 3rd day. So far I have received two treatments and plan to get one more.

  • 4 helpful marks

Dec 5, 2013 (Started Dec 02, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: Daily
Cost: $200+ monthly

  • 0 helpful marks

Feb 11, 2013 (Started Jan 28, 2013)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: It is time for my second week update. i had the Precision Stem stem cell transplant two weeks ago. I am afraid all my gains have disappeared already. I again require a cane to maintain balance and I am using a pillow on the couch to sit on so that I have a higher starting height when I get out of the seated position. Now that the improvements are gone I am even more sure that I did indeed have a temporary increase in strength in my legs. But with such a short period it is really hard to say if it was in fact due to the transplant. So now the question is will the procedure lead to any kind of stabilization. In my case this should be relatively easy to determine. To date except for the period I was on NP001 my FRS curve has almost perfectly followed the average progression 'shape' as you can see on PLM.
Cost: $200+ monthly

Feb 4, 2013 (Started Jan 28, 2013)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Advice & Tips: 1 week post procedure evaluation: Objective Observations: Before procedure was 100% dependent on cane, after procedure I do not need to use the cane. Before procedure could not climb stairs without cane. After procedure I am able to climb stair without cane. Before procedure had difficulty raising myself from a seated position on my couch. Required the use of two cushions which add about 5 inches of height to the seat in order to get in and out of seated position. After procedure no longer need cushions. I have minimal trouble getting in and out of seated position. Subjective Observations: Legs feel significantly stronger, I still only have a small fraction of my original strength but I am walking much better and don't need a cane anymore. I still take it if I go outside (which is rare) just to be safe. I am able to turn myself better in bed. However, I am in a different bed because we are renovating our master bathroom for accessibility. My grip strength seems to be a little better. It seems easier to put my socks on. All improvements have been gradual over the course of the week. For instance a couple days after the procedure I kept forgetting to grab my cane, then a couple days after that I just stopped using it altogether. Every night it just seems a little easier to turn in bed, and to get out of be.

  • 10 helpful marks
Last updated:
Showing 3 of 11 patient evaluations for Stem Cell Transplant