What is Riluzole?

Category: Prescription Drugs

Most popular types: Rilutek Riluzole (oral film) Teglutik (oral solution)

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Riluzole is a drug used to treat amyotrophic lateral sclerosis (ALS). Riluzole does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Amyotrophic lateral sclerosis 2,177 1,095
Primary lateral sclerosis 54 36
Progressive muscular atrophy 43 36
General health 14 9
Stiffness/spasticity 8 3
Muscle twitching (fasciculations) 7 4

Show all 21 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 87
Moderate 106
Mild 159
None 803

Commonly reported side effects and conditions associated with Riluzole

Side effect Patients
Fatigue 52
Nausea 38
Elevated liver enzymes 21
Tiredness 18
Stomach pain 13
Abdominal pain 9

Show all 140 reported side effects

Dosages

Based on patients currently taking Riluzole

Dosage Patients
50 mg twice daily 180
100 mg daily 76
50 mg daily 20
100 mg twice daily 14
daily 3
10 mg daily 1
30 g twice daily 1
50 mg five times daily 1
2,500 mg twice daily 1

Why patients stopped taking Riluzole

Multiple reasons could be selected

Reason Patients
Side effects too severe 238
Did not seem to work 205
Expense 92
Doctor's advice 80
Other 68
Personal research 56
Change in health plan coverage 16
Course of treatment ended 14
See all 552 patients who've stopped taking Riluzole

Duration

Currently taking Riluzole

Duration Patients
Less than 1 month 1
1 - 6 months 13
6 months - 1 year 21
1 - 2 years 81
2 - 5 years 105
5 - 10 years 48
10 years or more 31

Stopped taking Riluzole

Duration Patients
Less than 1 month 88
1 - 6 months 168
6 months - 1 year 75
1 - 2 years 102
2 - 5 years 98
5 - 10 years 22
10 years or more 4
Adherence
Adherence Evaluations
Always 958
Usually 93
Sometimes 27
Never taken as prescribed 77
Burden
Burden Evaluations
Very hard to take 34
Somewhat hard to take 100
A little hard to take 189
Not at all hard to take 832
Cost per month
Cost per month Evaluations
$200+ 115
$100-199 48
$50-99 82
$25-49 128
< $25 422
Not specified 360

What people switch to and from

Patients started taking Riluzole after stopping:

Treatment Patients
Intravenous Immunoglobulin (IVIG) (Gammaglobulin (IVIg)) 1
Lunasin (Lunasin Duke Virtual Trial) 1
Prednisone (Deltasone) 1

Patients stopped taking Riluzole and switched to:

Treatment Patients
Baclofen (Mylan-Baclofen) 2
Edaravone (Radicava) 1
Last updated:

111 patient evaluations for Riluzole

Feb 15, 2018 (Started Dec 15, 2017)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily

  • 0 helpful marks

Jan 15, 2018 (Started Jan 01, 2002)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: It is impossible to evaluate the effectiveness for oneself. However, statistical studies do show it extends life expectancy. I would start ASAP after diagnosis.
Cost: < $25 monthly

  • 0 helpful marks

May 31, 2017 (Started Sep 08, 2015)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Aug 14, 2016 (Started Sep 08, 2015)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Advice & Tips: How could you even begin to evaluate such a subjective drug.
Cost: < $25 monthly

Apr 27, 2016 (Started Sep 08, 2015)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Cost: < $25 monthly

Nov 26, 2015 (Started Sep 08, 2015)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Cost: < $25 monthly

Nov 6, 2015 (Started Sep 08, 2015)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Advice & Tips: I am not sure of what effects I am looking for but I feel no different than when I was not taking the drug. The only thing that does come to mind is that maybe don't cramp up as much.

  • 0 helpful marks
Last updated:
Showing 3 of 111 patient evaluations for Riluzole