What is Belimumab?

Category: Prescription Drugs

Most popular types: Benlysta

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Belimumab is a medication used for the treatment of systemic lupus erythematosus. It works by decreasing the activity of a certain type of cell in the immune system so the body’s overall autoimmune response is lowered. It is administered through an intravenous (IV) infusion.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Systemic lupus erythematosus 190 104
Autoimmune hemolytic anemia 1 0
CNS lupus 1 1
Mixed connective tissue disease 1 1
Psoriasis 1 0

Show all 6 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 14
Moderate 27
Mild 33
None 30

Commonly reported side effects and conditions associated with Belimumab

Side effect Patients
Fatigue 11
Headaches 10
Nausea 10
Diarrhea 5
Fever 4
Tiredness 4

Show all 68 reported side effects

Dosages

Based on patients currently taking Belimumab

Dosage Patients
200 mg weekly 13
120 mg every 4 weeks 4
400 mg every 4 weeks 4
800 mg monthly 3
800 mg every 4 weeks 2
1 intl units monthly 1
1 other monthly 1
1 mg every 4 weeks 1
1 other every 4 weeks 1
10 mg every 2 weeks 1

See all 17 dosages

Why patients stopped taking Belimumab

Multiple reasons could be selected

Reason Patients
Did not seem to work 22
Side effects too severe 16
Doctor's advice 15
Other 9
Expense 8
Course of treatment ended 5
Personal research 2
Change in health plan coverage 1
See all 59 patients who've stopped taking Belimumab

Duration

Currently taking Belimumab

Duration Patients
1 - 6 months 6
6 months - 1 year 5
1 - 2 years 11
2 - 5 years 17
5 - 10 years 3

Stopped taking Belimumab

Duration Patients
Less than 1 month 15
1 - 6 months 15
6 months - 1 year 11
1 - 2 years 7
2 - 5 years 9
5 - 10 years 2
Adherence
Adherence Evaluations
Always 94
Usually 2
Sometimes 3
Never taken as prescribed 5
Burden
Burden Evaluations
Very hard to take 16
Somewhat hard to take 19
A little hard to take 33
Not at all hard to take 36
Cost per month
Cost per month Evaluations
$200+ 14
$100-199 2
$50-99 5
$25-49 6
< $25 35
Not specified 42

What people switch to and from

Patients started taking Belimumab after stopping:

Treatment Patients
Methotrexate (Apo-Methotrexate) 13
Prednisone (Deltasone) 11
Mycophenolate mofetil (CellCept) 9
Azathioprine (Imuran) 6
Hydroxychloroquine (Plaquenil) 5

Show all 12 treatments patients report switching from

Patients stopped taking Belimumab and switched to:

Treatment Patients
Rituximab (Rituxan) 5
Hydroxychloroquine (Plaquenil) 3
Prednisone (Deltasone) 3
Mycophenolate mofetil (CellCept) 2
Abatacept (Orencia) 1

Show all 14 treatments patients report switching to

Last updated:

2 patient evaluations for Belimumab

Jul 24, 2013 (Started Aug 30, 2012)

  • Effectiveness
    Slight (for systemic lupus erythematosus)
  • Side effects
    Mild (headaches, nausea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 580 mg Monthly

Oct 1, 2012 (Started Aug 30, 2012)

  • Effectiveness
    Can't tell (for systemic lupus erythematosus)
  • Side effects
    Moderate (headaches, nausea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 580 mg Monthly

  • 0 helpful marks

Nov 22, 2012 (Started Sep 01, 2012)

  • Effectiveness
    Major (for systemic lupus erythematosus)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 798 mg Monthly
Advice & Tips: Awesome medicine. Cleared upy rashes in a heart beat and gave me all my energy back!!! i am only stopping temporarily due to hip surgery complications!!!! Burden due to time taken off work for the treatment-plan on at least 2-3 hours for infusion-- but, well worth it!!! But, very expensive. My insurance covered it all-- but it costs aprox 15,000 and that's what my insurance actually paid too
Cost: < $25 monthly

  • 3 helpful marks
Last updated:
Showing 2 of 2 patient evaluations for Belimumab