What is Mycophenolic acid?

Category: Prescription Drugs

Most popular types: Myfortic

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Mycophenolic acid is an immunosuppressant agent, it is used to prevent organ rejection in allogeneic renal transplants. Off-label it is used for moderate–severe psoriasis; proliferative lupus nephritis; myasthenia gravis; prevention and treatment of graft-versus-host disease.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 71 18
Transplant rejection prevention 55 21
Kidney Transplant 22 4
Kidney transplant rejection and organ removal 3 1
GVHD (Graft Versus Host Disease) 2 1
Support immune health 2 0

Show all 17 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 6
Moderate 5
Mild 13
None 8

Commonly reported side effects and conditions associated with Mycophenolic acid

Side effect Patients
Diarrhea 5
Nausea and vomiting 3
Diarrhea chronic 2
Forgetfulness 2
Very low white blood cell count 2
Anxious mood 1

Show all 25 reported side effects

Dosages

Based on patients currently taking Mycophenolic acid

Dosage Patients
720 mg daily 4
360 mg twice daily 3
540 mg twice daily 2
180 mg daily 1
500 mg twice daily 1
1,080 mg daily 1
1,440 mg daily 1
720 mg twice daily 1
1,440 mg twice daily 1

Why patients stopped taking Mycophenolic acid

Multiple reasons could be selected

Reason Patients
Doctor's advice 4
Side effects too severe 4
Other 3
Did not seem to work 2
Course of treatment ended 1
Personal research 1
See all 8 patients who’ve stopped taking Mycophenolic acid

Duration

Currently taking Mycophenolic acid

Duration Patients
1 - 6 months 1
1 - 2 years 3
2 - 5 years 5
5 - 10 years 4
10 years or more 2

Stopped taking Mycophenolic acid

Duration Patients
Less than 1 month 1
6 months - 1 year 1
1 - 2 years 1
2 - 5 years 5
Adherence
Adherence Evaluations
Always 29
Usually 2
Sometimes 1
Never taken as prescribed 0
Burden
Burden Evaluations
Very hard to take 4
Somewhat hard to take 4
A little hard to take 5
Not at all hard to take 19
Cost per month
Cost per month Evaluations
$200+ 1
$100-199 1
$50-99 3
$25-49 1
< $25 16
Not specified 10

What people switch to and from

Patients started taking Mycophenolic acid after stopping:

Treatment Patients
Mycophenolate mofetil (CellCept) 2
Azathioprine (Imuran) 1
Methotrexate (Metoject) 1
Prednisone (Deltasone) 1
Sirolimus (Rapamune) 1

Patients stopped taking Mycophenolic acid and switched to:

Treatment Patients
Mycophenolate mofetil (CellCept) 1
Last updated:

5 patient evaluations for Mycophenolic acid

26 members have decided to share their profiles only with other members of PatientsLikeMe.

hunnybird
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hunnybird
Data Quality: 1 star
  • Sex: F
  • Age: 55y
  • Organ: Kidney
Quality of life:
  • Mental: None
  • Physical: None
  1. Kidney : 7y Transplanted
I have:
Kidney Transplant

See hunnybird's full Mycophenolic acid history

Jun 16, 2011 (Started Jun 06, 2009)

  • Effectiveness
    Major (for Transplant rejection prevention)
  • Side effects
    Moderate (Cloudy thinking, Forgetfulness, Diarrhea)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 720 mg Daily
Cost: < $25 monthly
Side effects: Cloudy thinking, Forgetfulness, Diarrhea

  • 0 helpful marks
dazzler57
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dazzler57
Data Quality: 1 star
  • Sex: F
  • Age: 59y
  • Organ: Kidney
Quality of life:
  • Mental: Moderate
  • Physical: Mild
  1. Kidney : 13y Transplanted
I have:
Kidney Transplant

See dazzler57's full Mycophenolic acid history

Jan 1, 2011 (Started Feb 01, 2010)

  • Effectiveness
    Slight (for Transplant rejection prevention)
  • Effectiveness
    Slight (for Kidney transplant rejection and organ removal)
  • Side effects
    Severe (Sick to my stomach, Diarrhea)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 720 mg Daily
Advice & Tips: I am having extreme difficulty with this medication. In the middle of 2010, it attacked my uterus giving me so much bleeding and pain I had to have it removed. Doctors say that is not a side effect of this medication, I beg to differ. I still have much trouble with it causing extreme puking and Diarrhea always beginning with these rotten egg burps. My doctors say there is nothing else they can give me. I need to look into other doctors now. No benefits for this medication for me. It impacts my life badly.
Cost: $200+ monthly
Side effects: Sick to my stomach, Diarrhea

  • 0 helpful marks
Pedro0703
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Pedro0703
Data Quality: 1 star
  • Sex: F
  • Age: 37y
  • Organ: Kidney(3)
Quality of life:
  • Mental: None
  • Physical: None
  1. Kidney : 35y Transplanted
  2. Kidney : 23y Transplanted
  3. Kidney : 13y Transplanted
I have:
Kidney Transplant

See Pedro0703's full Mycophenolic acid history

Jun 28, 2010 (Started Aug 01, 2008)

  • Effectiveness
    Major (for Transplant rejection prevention)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 180 mg Daily
Advice & Tips: I was switched to Myfortic because I was taking cellcelpt and a biopsy showed cellcept colitis, it was aweful. I was taking 1000mg of that twice a day. Now on the myfortic, my Nephrologist started me on a low dose and it turns out that my labs stayed great on that low dose, so now I take 1 tab of 180mg twice a day and I have less pills. I have had no problems with this drug.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 5 patient evaluations for Mycophenolic acid