What is PALS & CALS Support Group?

Category: Psychotherapy

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PALS (people with ALS) and CALS (caregivers for people with ALS) Support Group is a peer support group intended to provide a community and network of support for these two groups of people.

Reported purpose & perceived effectiveness

Purpose
Patients
Patients with evaluations
Perceived effectiveness
Patients
Patients with evaluations
Patients
Patients with evaluations
0
Perceived effectiveness
Purpose
Patients
Patients with evaluations
0
Perceived effectiveness

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 0
Moderate 0
Mild 0
None 2

Commonly reported side effects and conditions associated with PALS & CALS Support Group

Side effect Patients

Dosages

Based on patients currently going to PALS & CALS Support Group

Dosage Patients
120 min monthly 1

Why patients stopped taking PALS & CALS Support Group

Multiple reasons could be selected

Reason Patients
Other 1
See all 1 patient who’ve stopped going to PALS & CALS Support Group

Duration

Currently going to PALS & CALS Support Group

Duration Patients
2 years or more 1

Stopped going to PALS & CALS Support Group

Duration Patients
2 years or more 1

Adherence


Always
Patients
1
50%
Usually
Patients
1
50%
Sometimes
Patients
0
0%
Never taken as prescribed
Patients
0
0%

Burden


Very hard to take
Patients
0
0%
Somewhat hard to take
Patients
2
100%
A little hard to take
Patients
0
0%
Not at all hard to take
Patients
0
0%

Cost per month


Cost per month
$200+
Patients
0
0%
Cost per month
$100-199
Patients
0
0%
Cost per month
$50-99
Patients
0
0%
Cost per month
$25-49
Patients
0
0%
Cost per month
< $25
Patients
1
50%
Cost per month
Not specified
Patients
1
50%
Last updated:

1 patient evaluation for PALS & CALS Support Group

2 members have decided to share their profiles only with other members of PatientsLikeMe.

klmom
7530 thumb
klmom
Sex: F
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: n
I have:
ALS

See klmom's full PALS & CALS Support Group history

Oct 31, 2009 (Started Nov 30, 2001)

  • Effectiveness
    Moderate (for An event)
  • side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 90 min Monthly

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for PALS & CALS Support Group