What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Topamax Sprinkle Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,223 514
Epilepsy 731 405
Headaches 185 89
Fibromyalgia 123 80
Cluster headaches 107 58
Pain 75 33

Show all 247 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 265
Moderate 369
Mild 296
None 402

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 98
Decreased appetite 59
Memory problems 57
Hands tingling 56
Brain fog 55
Word fishing 53

Show all 420 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 55
100 mg twice daily 46
50 mg twice daily 40
50 mg daily 33
25 mg twice daily 31
25 mg daily 25
200 mg twice daily 24
200 mg daily 21
400 mg daily 15
150 mg daily 14

See all 42 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 413
Did not seem to work 270
Doctor's advice 227
Other 109
Expense 39
Personal research 35
Course of treatment ended 31
Change in health plan coverage 12
See all 781 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 2
1 - 6 months 15
6 months - 1 year 37
1 - 2 years 50
2 - 5 years 116
5 - 10 years 97
10 years or more 63

Stopped taking Topiramate

Duration Patients
Less than 1 month 141
1 - 6 months 207
6 months - 1 year 113
1 - 2 years 105
2 - 5 years 141
5 - 10 years 62
10 years or more 18
Adherence
Adherence Evaluations
Always 1129
Usually 141
Sometimes 23
Never taken as prescribed 39
Burden
Burden Evaluations
Very hard to take 48
Somewhat hard to take 97
A little hard to take 186
Not at all hard to take 1001
Cost per month
Cost per month Evaluations
$200+ 20
$100-199 12
$50-99 35
$25-49 105
< $25 611
Not specified 549

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 16
Sumatriptan (Imitrex) 13
Lamotrigine (Lamictal) 11
Propranolol (Inderal) 10
Divalproex sodium (Depakote) 8

Show all 51 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 16
Divalproex sodium (Depakote) 15
Lamotrigine (Lamictal) 13
Botulinum Toxin Type A (Botox) 7
Zonisamide (Zonegran) 7

Show all 50 treatments patients report switching to

Last updated:

117 patient evaluations for Topiramate

May 12, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for borderline personality disorder)
  • Side effects
    Mild (dry mouth, feeling hot/overheating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: < $25 monthly

May 10, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for borderline personality disorder)
  • Side effects
    Moderate (dry mouth, feeling hot/overheating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Weight loss is an awesome side effect... Not extreme but hell... I shed amor 10 to 15 in the first 2 to 3 months.. And ive since then pretty much maintained by normal weight...
Cost: < $25 monthly

Jun 4, 2017 (Started May 26, 2017)

  • Effectiveness
    Slight (for post-traumatic stress disorder)
  • Effectiveness
    Slight (for moodiness)
  • Effectiveness
    Slight (for borderline personality disorder)
  • Side effects
    Mild (dry mouth, feeling hot/overheating)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: No weight gain so far
Cost: < $25 monthly

  • 0 helpful marks

Feb 15, 2018 (Started Dec 20, 2017)

  • Effectiveness
    Moderate (for essential tremor)
  • Side effects
    Severe (hives (urticaria))
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 25 mg Twice daily
Advice & Tips: Hives is just bad luck. I liked the medication, but my hands broke out in hives and my face was starting to break out as well. The questionnaire is asking about terminated treatments and then asks how often I take it currently. Terminates=/=current. I never take it currently, but when I did take it, there was no difficulty.

  • 0 helpful marks

Sep 19, 2017 (Started Jul 09, 2012)

  • Effectiveness
    None (for post-traumatic stress disorder)
  • Effectiveness
    None (for migraine headaches)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Jul 1, 2015 (Started Jul 09, 2012)

  • Effectiveness
    None (for post-traumatic stress disorder)
  • Effectiveness
    None (for migraine headaches)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 25 mg Daily
Cost: < $25 monthly

Aug 29, 2010 (Started Jul 09, 2012)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Side effects
    Mild
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Advice & Tips: 1. I feel groggy for about 12+ hours after taking this medication. I usually have to resort to taking Caffeine pills as a small "pick-me-up". 2. No unexpected benefits 3. Too sleepy to function to full capability.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 117 patient evaluations for Topiramate