What is Fingolimod?

Category: Prescription Drugs

Most popular types: Gilenya

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Fingolimod is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS relapses, or periods of time with worsening of symptoms.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple sclerosis 871 627
Fever/chills 3 0
Participate in clinical trial 2 2
Amyotrophic lateral sclerosis 1 1
Balance problems 1 1

Show all 21 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe
93
Moderate
66
Mild
130
None
349

Commonly reported side effects and conditions associated with Fingolimod

Side effect Patients
Headaches 25
Fatigue 24
Elevated liver enzymes 15
Nausea 14
Hair loss 11
Low white blood cell count (leukopenia) 11

Show all 194 reported side effects

Dosages

Based on patients currently taking Fingolimod

Dosage Patients
0.5 mg daily 106
1 capsule(s) daily 13
5 mg daily 7
0.05 mg daily 6
1 mg daily 5
0.5 mg m,w,f 3
1 cap(s) daily 3
1 tablet(s) daily 3
0.5 mg weekly 1
0.5 mg every other day 1

See all 15 dosages

Why patients stopped taking Fingolimod

Multiple reasons could be selected

Reason Patients
Side effects too severe 106
Doctor's advice 95
Did not seem to work 78
Other 56
Personal research 11
Expense 7
Course of treatment ended 4
Change in health plan coverage 3
See all 249 patients who've stopped taking Fingolimod

Duration

Currently taking Fingolimod

Duration Patients
Less than 1 month 1
1 - 6 months 4
6 months - 1 year 5
1 - 2 years 17
2 - 5 years 61
5 - 10 years 63
10 years or more 3

Stopped taking Fingolimod

Duration Patients
Less than 1 month 31
1 - 6 months 62
6 months - 1 year 53
1 - 2 years 55
2 - 5 years 44
5 - 10 years 4
Adherence
Adherence Evaluations
Always 579
Usually 31
Sometimes 4
Never taken as prescribed 24
Burden
Burden Evaluations
Very hard to take 11
Somewhat hard to take 9
A little hard to take 38
Not at all hard to take 580
Cost per month
Cost per month Evaluations
$200+ 30
$100-199 22
$50-99 28
$25-49 66
< $25 318
Not specified 174

What people switch to and from

Patients started taking Fingolimod after stopping:

Treatment Patients
Glatiramer acetate (Copaxone) 62
Natalizumab (Tysabri) 42
Interferon beta-1a SubQ injection (Rebif) 39
Interferon beta-1a IM Injection (Avonex) 36
Dimethyl fumarate (Tecfidera) 32

Show all 18 treatments patients report switching from

Patients stopped taking Fingolimod and switched to:

Treatment Patients
Dimethyl fumarate (Tecfidera) 20
Natalizumab (Tysabri) 20
Teriflunomide (Aubagio) 14
Glatiramer acetate (Copaxone) 7
Rituximab (Rituxan) 7

Show all 14 treatments patients report switching to

Last updated:

39 patient evaluations for Fingolimod

Sep 21, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Moderate (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Mar 27, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Its one pill everyday, easier than having to give myself a shot, I can take pill with me anywhere. Consistency is the key, same time every day.
Cost: < $25 monthly

  • 0 helpful marks

Jan 5, 2017 (Started Dec 15, 2013)

  • Effectiveness
    Moderate (for relapse MS (exacerbation))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Sep 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Jun 9, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

May 13, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: every morning, I have my coffee and my pill
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 39 patient evaluations for Fingolimod