What is Fingolimod?

Category: Prescription Drugs

Most popular types: Gilenya

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Fingolimod is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS relapses, or periods of time with worsening of symptoms.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple sclerosis 879 632
Fever/chills 3 0
Participate in clinical trial 2 2
Amyotrophic lateral sclerosis 1 1
Balance problems 1 1

Show all 21 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 94
Moderate 66
Mild 129
None 354

Commonly reported side effects and conditions associated with Fingolimod

Side effect Patients
Headaches 25
Fatigue 24
Elevated liver enzymes 14
Nausea 14
Heart rate low (bradycardia) 12
Hair loss 11

Show all 148 reported side effects

Dosages

Based on patients currently taking Fingolimod

Dosage Patients
0.5 mg daily 89
0.05 mg daily 10
1 capsule(s) daily 10
5 mg daily 7
1 mg daily 4
1 cap(s) daily 3
0.5 mg m,w,f 2
1 tablet(s) daily 2
0.5 mg weekly 1
0.5 g daily 1

See all 17 dosages

Why patients stopped taking Fingolimod

Multiple reasons could be selected

Reason Patients
Side effects too severe 110
Doctor's advice 97
Did not seem to work 80
Other 58
Personal research 12
Expense 8
Course of treatment ended 4
Change in health plan coverage 3
See all 257 patients who've stopped taking Fingolimod

Duration

Currently taking Fingolimod

Duration Patients
6 months - 1 year 7
1 - 2 years 2
2 - 5 years 53
5 - 10 years 71
10 years or more 3

Stopped taking Fingolimod

Duration Patients
Less than 1 month 32
1 - 6 months 63
6 months - 1 year 53
1 - 2 years 57
2 - 5 years 47
5 - 10 years 5
Adherence
Adherence Evaluations
Always 583
Usually 30
Sometimes 4
Never taken as prescribed 26
Burden
Burden Evaluations
Very hard to take 11
Somewhat hard to take 9
A little hard to take 37
Not at all hard to take 586
Cost per month
Cost per month Evaluations
$200+ 31
$100-199 22
$50-99 28
$25-49 64
< $25 324
Not specified 174

What people switch to and from

Patients started taking Fingolimod after stopping:

Treatment Patients
Glatiramer acetate (Copaxone) 62
Natalizumab (Tysabri) 44
Interferon beta-1a SubQ injection (Rebif) 41
Interferon beta-1a IM Injection (Avonex) 36
Dimethyl fumarate (Tecfidera) 32

Show all 18 treatments patients report switching from

Patients stopped taking Fingolimod and switched to:

Treatment Patients
Dimethyl fumarate (Tecfidera) 20
Natalizumab (Tysabri) 19
Teriflunomide (Aubagio) 15
Rituximab (Rituxan) 8
Glatiramer acetate (Copaxone) 7

Show all 13 treatments patients report switching to

Last updated:

38 patient evaluations for Fingolimod

Sep 21, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Moderate (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Mar 27, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Its one pill everyday, easier than having to give myself a shot, I can take pill with me anywhere. Consistency is the key, same time every day.
Cost: < $25 monthly

  • 0 helpful marks

Jan 5, 2017 (Started Dec 15, 2013)

  • Effectiveness
    Moderate (for relapse MS (exacerbation))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Sep 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Jun 9, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

May 13, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: every morning, I have my coffee and my pill
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 38 patient evaluations for Fingolimod