What is Fingolimod?

Category: Prescription Drugs

Most popular types: Gilenya

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Fingolimod is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS relapses, or periods of time with worsening of symptoms.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple Sclerosis 833 590
Relapse MS (exacerbation) 30 26
Fever/chills 3 0
Participate in clinical trial 2 2
Blurry vision 1 0
Depressed mood 1 1

Show all 23 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 86
Moderate 57
Mild 122
None 335

Commonly reported side effects and conditions associated with Fingolimod

Side effect Patients
Fatigue 23
Headaches 23
Elevated liver enzymes 15
Nausea 14
Low white blood cell count (leukopenia) 11
Elevated blood pressure 9

Show all 187 reported side effects

Dosages

Based on patients currently taking Fingolimod

Dosage Patients
0.5 mg daily 111
1 capsule(s) daily 20
0.05 mg daily 5
5 mg daily 5
0.5 mg m,w,f 2
1 cap(s) daily 2
1 mg daily 2
25 mg daily 2
0.5 mg weekly 1
0.25 mg daily 1

See all 18 dosages

Why patients stopped taking Fingolimod

Multiple reasons could be selected

Reason Patients
Side effects too severe 98
Doctor's advice 86
Did not seem to work 70
Other 49
Personal research 10
Expense 6
Course of treatment ended 3
Change in health plan coverage 2
See all 226 patients who’ve stopped taking Fingolimod

Duration

Currently taking Fingolimod

Duration Patients
1 - 6 months 10
6 months - 1 year 6
1 - 2 years 26
2 - 5 years 62
5 - 10 years 57

Stopped taking Fingolimod

Duration Patients
Less than 1 month 29
1 - 6 months 58
6 months - 1 year 52
1 - 2 years 49
2 - 5 years 36
5 - 10 years 2
Adherence
Adherence Evaluations
Always 542
Usually 30
Sometimes 4
Never taken as prescribed 24
Burden
Burden Evaluations
Very hard to take 11
Somewhat hard to take 9
A little hard to take 33
Not at all hard to take 547
Cost per month
Cost per month Evaluations
$200+ 31
$100-199 21
$50-99 28
$25-49 64
< $25 300
Not specified 156

What people switch to and from

Patients started taking Fingolimod after stopping:

Treatment Patients
Glatiramer acetate (Copaxone) 54
Natalizumab (Tysabri) 38
Interferon beta-1a SubQ injection (Rebif) 35
Dimethyl fumarate (Tecfidera) 28
Interferon beta-1a IM Injection (Avonex) 28

Show all 16 treatments patients report switching from

Patients stopped taking Fingolimod and switched to:

Treatment Patients
Dimethyl fumarate (Tecfidera) 16
Natalizumab (Tysabri) 16
Teriflunomide (Aubagio) 11
Alemtuzumab (Lemtrada) 5
Rituximab (Rituxan) 5

Show all 10 treatments patients report switching to

Last updated:

39 patient evaluations for Fingolimod

426 members have decided to share their profiles only with other members of PatientsLikeMe.

Trans-am
4275 thumb
Trans-am
Sex: M
Data Quality: 3 stars
Relapse: Severe
Sensation: None
Overall: Mild
Cognition: mild
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: none
Walking: mild
I am: b
I have:
MS

See Trans-am's full Fingolimod history

Mar 27, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    Mild (Hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Its one pill everyday, easier than having to give myself a shot, I can take pill with me anywhere. Consistency is the key, same time every day.
Cost: < $25 monthly

  • 0 helpful marks
cleonard
16690 thumb
cleonard
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See cleonard's full Fingolimod history

Jan 5, 2017 (Started Dec 15, 2013)

  • Effectiveness
    Moderate (for Relapse MS (exacerbation))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Cfox1957
78327 thumb
Cfox1957
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: vg
I have:
MS

See Cfox1957's full Fingolimod history

Sep 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Jun 9, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

May 13, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can’t tell (for Multiple Sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: every morning, I have my coffee and my pill
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 39 patient evaluations for Fingolimod