What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Topamax Sprinkle Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,199 493
Epilepsy 726 402
Headaches 185 88
Fibromyalgia 122 79
Cluster headaches 105 54
Pain 75 33

Show all 243 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe
258
Moderate
362
Mild
287
None
388

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 97
Memory problems 56
Brain fog 54
Hands tingling 53
Word fishing 52
Feet tingling 48

Show all 421 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 73
50 mg twice daily 45
100 mg twice daily 43
50 mg daily 33
25 mg twice daily 32
200 mg daily 31
25 mg daily 29
200 mg twice daily 18
400 mg daily 15
150 mg daily 13

See all 43 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 404
Did not seem to work 269
Doctor's advice 220
Other 109
Expense 39
Personal research 34
Course of treatment ended 31
Change in health plan coverage 12
See all 768 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 1
1 - 6 months 23
6 months - 1 year 36
1 - 2 years 54
2 - 5 years 112
5 - 10 years 115
10 years or more 72

Stopped taking Topiramate

Duration Patients
Less than 1 month 140
1 - 6 months 206
6 months - 1 year 109
1 - 2 years 104
2 - 5 years 137
5 - 10 years 61
10 years or more 18
Adherence
Adherence Evaluations
Always 1102
Usually 136
Sometimes 22
Never taken as prescribed 35
Burden
Burden Evaluations
Very hard to take 49
Somewhat hard to take 95
A little hard to take 182
Not at all hard to take 969
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 12
$50-99 35
$25-49 105
< $25 599
Not specified 525

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 14
Sumatriptan (Imitrex) 13
Lamotrigine (Lamictal) 11
Propranolol (Inderal) 10
Divalproex sodium (Depakote) 8

Show all 50 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 16
Divalproex sodium (Depakote) 15
Lamotrigine (Lamictal) 12
Amitriptyline (Elavil) 8
Zonisamide (Zonegran) 7

Show all 47 treatments patients report switching to

Last updated:

115 patient evaluations for Topiramate

Feb 2, 2017 (Started Jul 01, 2014)

  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    Mild (carbonated drinks taste flat)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 250 mg Twice daily
Advice & Tips: I'd tell them it makes soda, beer, & champagne taste funny but to me it's worth it. I went from nearly constant migraines to almost none!
Cost: < $25 monthly

  • 0 helpful marks

Dec 16, 2016 (Started Jun 30, 2016)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Severe (paresthesia)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 50 mg Three times daily
Cost: < $25 monthly

  • 0 helpful marks

Dec 12, 2016 (Started Jan 01, 2005)

  • Effectiveness
    Major (for epilepsy)
  • Effectiveness
    Major (for cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: I was Actually put on Topamax for my epilepsy. Controlling my headaches was the best side effect from a medication that I ever experienced. But I still find that getting a good nights sleep and trying my best to eat healthy helps a lot.
Cost: < $25 monthly
Side effects: fingers tingling

Jan 7, 2011 (Started Jan 01, 2005)

  • Effectiveness
    Can't tell (for epilepsy)
  • Effectiveness
    Moderate (for cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Side effects: fingers tingling

Mar 1, 2010 (Started Jan 01, 2005)

  • Effectiveness
    Major (for epilepsy)
  • Effectiveness
    Major (for cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Topamax has been a very good for me. When I first went onit it was just to controll seizures, but then I started having cluster headaches it was increased . I do my very best not to miss a dose of medication. I also try to get to know the people at the pharmacy(they know me by name) it helps me when I hve any probs.
Side effects: fingers tingling

  • 0 helpful marks
Last updated:
Showing 3 of 115 patient evaluations for Topiramate