What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Topamax Sprinkle Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,240 525
Epilepsy 732 407
Headaches 185 89
Fibromyalgia 124 80
Cluster headaches 108 60
Pain 75 34

Show all 239 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 267
Moderate 374
Mild 302
None 412

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 99
Decreased appetite 61
Hands tingling 57
Memory problems 57
Brain fog 55
Word fishing 53

Show all 331 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 52
100 mg twice daily 45
50 mg twice daily 40
50 mg daily 32
200 mg daily 29
25 mg daily 23
25 mg twice daily 20
200 mg twice daily 18
150 mg daily 15
300 mg daily 11

See all 39 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 416
Did not seem to work 272
Doctor's advice 229
Other 110
Expense 39
Personal research 36
Course of treatment ended 31
Change in health plan coverage 12
See all 786 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 1
1 - 6 months 15
6 months - 1 year 20
1 - 2 years 42
2 - 5 years 112
5 - 10 years 103
10 years or more 60

Stopped taking Topiramate

Duration Patients
Less than 1 month 143
1 - 6 months 208
6 months - 1 year 113
1 - 2 years 106
2 - 5 years 142
5 - 10 years 62
10 years or more 18
Adherence
Adherence Evaluations
Always 1146
Usually 144
Sometimes 23
Never taken as prescribed 42
Burden
Burden Evaluations
Very hard to take 50
Somewhat hard to take 97
A little hard to take 187
Not at all hard to take 1021
Cost per month
Cost per month Evaluations
$200+ 20
$100-199 12
$50-99 35
$25-49 105
< $25 622
Not specified 561

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 15
Sumatriptan (Imitrex) 14
Lamotrigine (Lamictal) 11
Propranolol (Inderal) 10
Divalproex sodium (Depakote) 8

Show all 52 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 16
Divalproex sodium (Depakote) 15
Lamotrigine (Lamictal) 13
Botulinum Toxin Type A (Botox) 8
Zonisamide (Zonegran) 7

Show all 50 treatments patients report switching to

Last updated:

118 patient evaluations for Topiramate

Apr 25, 2017 (Started Jul 01, 2010)

  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 45 mg Daily

  • 0 helpful marks

Mar 22, 2017 (Started Jan 04, 2017)

  • Effectiveness
    Moderate (for nerve pain (neuralgia))
  • Side effects
    Mild (very tired right after treatment)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: this medication may make you VERY tired. I tried 50 mg in the morning and slept for hours. Dr discontinued the daytime dose. Be careful with daytime dosing.
Cost: < $25 monthly

  • 0 helpful marks

Mar 17, 2017 (Started Mar 05, 2017)

  • Effectiveness
    Major (for migraine headaches)
  • Side effects
    Moderate (anorexia nervosa, aphasia, stuttering)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Twice daily
Advice & Tips: I suffered from crushing migraines for 40 years.... when i got the 100mg dose 2 x day my migraines disappeared, fir that i will put up with aphasia and stuttering and spelling errors to not have crushing pain for 40 years. i can now wean off the narcotics i took norco 10mg /325 to get pain control to 4-5/10 and now i am pain free it is a good trade.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 118 patient evaluations for Topiramate