What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Topamax Sprinkle Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,175 485
Epilepsy 726 402
Headaches 185 88
Fibromyalgia 121 78
Cluster headaches 102 53
Pain 74 32

Show all 240 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe
258
Moderate
356
Mild
282
None
382

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 95
Memory problems 55
Brain fog 54
Hands tingling 53
Word fishing 52
Feet tingling 48

Show all 418 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 64
50 mg twice daily 42
100 mg twice daily 40
200 mg daily 34
25 mg twice daily 31
50 mg daily 31
25 mg daily 26
200 mg twice daily 25
400 mg daily 18
300 mg daily 14

See all 41 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 396
Did not seem to work 263
Doctor's advice 218
Other 110
Expense 38
Personal research 34
Course of treatment ended 30
Change in health plan coverage 11
See all 758 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 1
1 - 6 months 30
6 months - 1 year 25
1 - 2 years 47
2 - 5 years 101
5 - 10 years 115
10 years or more 80

Stopped taking Topiramate

Duration Patients
Less than 1 month 130
1 - 6 months 204
6 months - 1 year 114
1 - 2 years 104
2 - 5 years 134
5 - 10 years 59
10 years or more 18
Adherence
Adherence Evaluations
Always 1086
Usually 135
Sometimes 22
Never taken as prescribed 35
Burden
Burden Evaluations
Very hard to take 49
Somewhat hard to take 92
A little hard to take 180
Not at all hard to take 957
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 12
$50-99 35
$25-49 104
< $25 593
Not specified 515

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Sumatriptan (Imitrex) 13
Gabapentin (Neurontin) 12
Propranolol (Inderal) 11
Lamotrigine (Lamictal) 10
Divalproex sodium (Depakote) 8

Show all 49 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 15
Divalproex sodium (Depakote) 12
Lamotrigine (Lamictal) 12
Amitriptyline (Elavil) 6
Botulinum Toxin Type A (Botox) 6

Show all 47 treatments patients report switching to

Last updated:

116 patient evaluations for Topiramate

Sep 19, 2017 (Started Jul 09, 2012)

  • Effectiveness
    None (for post-traumatic stress disorder)
  • Effectiveness
    None (for migraine headaches)
  • Side effects
    None
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Cost: < $25 monthly

Jul 1, 2015 (Started Jul 09, 2012)

  • Effectiveness
    None (for post-traumatic stress disorder)
  • Effectiveness
    None (for migraine headaches)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: 25 mg Daily
Cost: < $25 monthly

Aug 29, 2010 (Started Jul 09, 2012)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Side effects
    Mild
  • Adherence
    Sometimes
  • Burden
    Somewhat hard to take
Advice & Tips: 1. I feel groggy for about 12+ hours after taking this medication. I usually have to resort to taking Caffeine pills as a small "pick-me-up". 2. No unexpected benefits 3. Too sleepy to function to full capability.
Cost: < $25 monthly

  • 0 helpful marks

Jun 4, 2017 (Started May 26, 2017)

  • Effectiveness
    Slight (for post-traumatic stress disorder)
  • Effectiveness
    Slight (for moodiness)
  • Effectiveness
    Slight (for borderline personality disorder)
  • Side effects
    Mild (dry mouth, feeling hot)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: No weight gain so far
Cost: < $25 monthly

  • 0 helpful marks

May 25, 2017 (Started Apr 10, 2017)

  • Effectiveness
    Can’t tell (for Support mental / emotional health)
  • Effectiveness
    Can’t tell (for dissociation)
  • Side effects
    Severe (word fishing, numbness and tingling with pins and needles, dizziness and feeling faint)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Twice daily

  • 0 helpful marks
Last updated:
Showing 3 of 116 patient evaluations for Topiramate