What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Topamax Sprinkle Trokendi XR Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,017 398
Epilepsy 702 377
Headaches 181 85
Fibromyalgia 116 75
Cluster Headaches 94 50
Pain 73 27

Show all 245 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 233
Moderate 326
Mild 255
None 321

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 85
Brain fog 64
Hands tingling 54
Memory problems 50
Word fishing 49
Feet tingling 48

Show all 412 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 47
100 mg twice daily 27
50 mg daily 26
200 mg daily 26
25 mg twice daily 24
50 mg twice daily 24
200 mg twice daily 19
25 mg daily 18
400 mg daily 12
300 mg daily 8

See all 32 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 363
Did not seem to work 239
Doctor's advice 203
Other 104
Expense 36
Course of treatment ended 28
Personal research 28
Change in health plan coverage 9
See all 697 patients who’ve stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
1 - 6 months 19
6 months - 1 year 22
1 - 2 years 39
2 - 5 years 72
5 - 10 years 79
10 years or more 36

Stopped taking Topiramate

Duration Patients
Less than 1 month 125
1 - 6 months 193
6 months - 1 year 105
1 - 2 years 89
2 - 5 years 120
5 - 10 years 54
10 years or more 16
Adherence
Adherence Evaluations
Always 975
Usually 117
Sometimes 17
Never taken as prescribed 26
Burden
Burden Evaluations
Very hard to take 44
Somewhat hard to take 86
A little hard to take 160
Not at all hard to take 845
Cost per month
Cost per month Evaluations
$200+ 18
$100-199 12
$50-99 35
$25-49 102
< $25 527
Not specified 441

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 11
Sumatriptan (Imitrex) 10
Propranolol (Inderal) 6
Carbamazepine (Tegretol) 5
Levetiracetam (Keppra) 5

Show all 40 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Divalproex sodium (Depakote) 8
Gabapentin (Neurontin) 8
Lamotrigine (Lamictal) 5
Propranolol (Inderal) 5
Verapamil (Verapamil ER) 4

Show all 40 treatments patients report switching to

Last updated:

109 patient evaluations for Topiramate

837 members have decided to share their profiles only with other members of PatientsLikeMe.

Seclorum
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Seclorum
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See Seclorum's full Topiramate history

Aug 18, 2016 (Started Jun 12, 2016)

  • Effectiveness
    Major (for Headaches)
  • Side effects
    Moderate (Frequent urination)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks
scorpio1975
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scorpio1975
Gender: F
Data Quality: 1 star
Pain: All
Fatigue: All
Sleep: Most
Stiffness: All
function: None
external_stress: All
Stickman: all
Description:F41y
FM:27y Dx
I am: vb
I have:
Fibromyalgia

See scorpio1975's full Topiramate history

May 9, 2016 (Started Jul 01, 2015)

  • Effectiveness
    Moderate (for Migraine headaches)
  • Effectiveness
    Moderate (for Cluster Headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks
Wavewatcher
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Wavewatcher
Sex: F
Data Quality: 2 stars
Relapse: Severe
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: none
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See Wavewatcher's full Topiramate history

Sep 7, 2015 (Started Nov 15, 2006)

  • Effectiveness
    Major (for Headaches)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Cost: < $25 monthly

Jul 28, 2010 (Started Nov 15, 2006)

  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Medication are set up a week in advance for 3 time a day. Had additional benefit of weight lose over a year of from 315 to 240. Quit smoking and put on 20 pounds and thyroid went out of wack and added another 25 lbs.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 109 patient evaluations for Topiramate