What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Topamax Sprinkle Trokendi XR Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,060 425
Epilepsy 711 387
Headaches 183 86
Fibromyalgia 119 77
Cluster Headaches 99 53
Pain 74 29

Show all 256 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 243
Moderate 334
Mild 266
None 336

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 88
Brain fog 65
Hands tingling 53
Memory problems 51
Word fishing 51
Feet tingling 48

Show all 412 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 53
100 mg twice daily 39
200 mg daily 31
50 mg twice daily 29
50 mg daily 28
25 mg daily 21
25 mg twice daily 21
200 mg twice daily 19
400 mg daily 15
300 mg daily 9

See all 41 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 376
Did not seem to work 247
Doctor's advice 207
Other 106
Expense 37
Personal research 31
Course of treatment ended 28
Change in health plan coverage 10
See all 720 patients who’ve stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 1
1 - 6 months 19
6 months - 1 year 31
1 - 2 years 53
2 - 5 years 76
5 - 10 years 85
10 years or more 52

Stopped taking Topiramate

Duration Patients
Less than 1 month 126
1 - 6 months 195
6 months - 1 year 109
1 - 2 years 95
2 - 5 years 127
5 - 10 years 57
10 years or more 16
Adherence
Adherence Evaluations
Always 1002
Usually 125
Sometimes 20
Never taken as prescribed 32
Burden
Burden Evaluations
Very hard to take 45
Somewhat hard to take 88
A little hard to take 168
Not at all hard to take 878
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 12
$50-99 35
$25-49 103
< $25 547
Not specified 463

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 11
Sumatriptan (Imitrex) 10
Carbamazepine (Tegretol) 6
Propranolol (Inderal) 6
Lamotrigine (Lamictal) 5

Show all 45 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Divalproex sodium (Depakote) 10
Gabapentin (Neurontin) 9
Lamotrigine (Lamictal) 9
Propranolol (Inderal) 5
Amitriptyline (Elavil) 4

Show all 41 treatments patients report switching to

Last updated:

111 patient evaluations for Topiramate

871 members have decided to share their profiles only with other members of PatientsLikeMe.

oneunusualchick
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oneunusualchick
Gender: F
Data Quality: 2 stars
Pain: Most
Fatigue: All
Sleep: Most
Stiffness: All
function: None
external_stress: All
Stickman: most
Description:F49y
CFS:6y Dx
FM:8y Dx
I am: b
I have:
Fibromyalgia

See oneunusualchick's full Topiramate history

Feb 2, 2017 (Started Jul 01, 2014)

  • Effectiveness
    Major (for Migraine headaches)
  • Side effects
    Mild (Carbonated drinks taste flat)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Twice daily
Advice & Tips: I'd tell them it makes soda, beer, & champagne taste funny but to me it's worth it. I went from nearly constant migraines to almost none!
Cost: < $25 monthly

  • 0 helpful marks
Srs2388
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Srs2388
Data Quality: 1 star
  • Gender: M
  • Age: 29y
  • Duration: ? yrs
Quality of life:
  • Mental: Severe
  • Physical: Severe
2 seizures
6 weeks ago
I am: vb
I have:
Epilepsy

See Srs2388's full Topiramate history

Dec 16, 2016 (Started Jun 30, 2016)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Paresthesia)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 50 mg Three times daily
Cost: < $25 monthly

  • 0 helpful marks
joan53
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joan53
Data Quality: 2 stars
  • Gender: F
  • Age: 53y
  • Duration: 52 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
0 seizures
4 weeks ago
I am: vg
I have:
Epilepsy

See joan53's full Topiramate history

Dec 12, 2016 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: I was Actually put on Topamax for my epilepsy. Controlling my headaches was the best side effect from a medication that I ever experienced. But I still find that getting a good nights sleep and trying my best to eat healthy helps a lot.
Cost: < $25 monthly
Side effects: Fingers Tingling

Jan 7, 2011 (Started Jan 01, 2005)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Effectiveness
    Moderate (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Side effects: Fingers Tingling

Mar 1, 2010 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Topamax has been a very good for me. When I first went onit it was just to controll seizures, but then I started having cluster headaches it was increased . I do my very best not to miss a dose of medication. I also try to get to know the people at the pharmacy(they know me by name) it helps me when I hve any probs.
Side effects: Fingers Tingling

  • 0 helpful marks
Last updated:
Showing 3 of 111 patient evaluations for Topiramate