What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Topamax Sprinkle Trokendi XR Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,099 443
Epilepsy 716 391
Headaches 185 87
Fibromyalgia 119 77
Cluster Headaches 100 53
Pain 74 29

Show all 264 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 246
Moderate 345
Mild 271
None 350

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 93
Brain fog 66
Memory problems 54
Hands tingling 53
Word fishing 51
Feet tingling 48

Show all 417 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 62
100 mg twice daily 36
200 mg daily 36
50 mg daily 31
50 mg twice daily 31
25 mg daily 28
200 mg twice daily 23
25 mg twice daily 22
150 mg daily 14
300 mg daily 14

See all 45 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 380
Did not seem to work 249
Doctor's advice 209
Other 106
Expense 37
Personal research 32
Course of treatment ended 29
Change in health plan coverage 10
See all 728 patients who’ve stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 2
1 - 6 months 22
6 months - 1 year 36
1 - 2 years 61
2 - 5 years 90
5 - 10 years 96
10 years or more 64

Stopped taking Topiramate

Duration Patients
Less than 1 month 127
1 - 6 months 196
6 months - 1 year 111
1 - 2 years 96
2 - 5 years 129
5 - 10 years 57
10 years or more 17
Adherence
Adherence Evaluations
Always 1027
Usually 131
Sometimes 21
Never taken as prescribed 33
Burden
Burden Evaluations
Very hard to take 48
Somewhat hard to take 92
A little hard to take 170
Not at all hard to take 902
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 12
$50-99 35
$25-49 103
< $25 561
Not specified 482

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 11
Sumatriptan (Imitrex) 10
Lamotrigine (Lamictal) 8
Propranolol (Inderal) 7
Carbamazepine (Tegretol) 6

Show all 47 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 13
Divalproex sodium (Depakote) 10
Lamotrigine (Lamictal) 10
Levetiracetam (Keppra) 5
Propranolol (Inderal) 5

Show all 44 treatments patients report switching to

Last updated:

114 patient evaluations for Topiramate

901 members have decided to share their profiles only with other members of PatientsLikeMe.

modifiedgirl
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modifiedgirl
Gender: F
Data Quality: 3 stars
Pain: Some
Fatigue: Some
Sleep: All
Stiffness: All
function: Some
external_stress: Little
Stickman: most
Description:F42y
FM:10y Dx
CFS:?y
I am: n
I have:
Fibromyalgia

See modifiedgirl's full Topiramate history

Apr 25, 2017 (Started Jul 01, 2010)

  • Effectiveness
    Major (for Migraine headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 45 mg Daily

  • 0 helpful marks
Monas21
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Monas21
Data Quality: 1 star
Age: 58y
Gender:
Condition: Psoriasis
I am: b
BSA% 18
DLQI score: 14
I have:
Psoriasis

See Monas21's full Topiramate history

Mar 22, 2017 (Started Jan 04, 2017)

  • Effectiveness
    Moderate (for Nerve pain (neuralgia))
  • Side effects
    Mild (Very tired right after treatment)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: this medication may make you VERY tired. I tried 50 mg in the morning and slept for hours. Dr discontinued the daytime dose. Be careful with daytime dosing.
Cost: < $25 monthly

  • 0 helpful marks
LadySirona
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LadySirona
Gender: F
Data Quality: 2 stars
Depression: 2
Mania: 1
Emotional: 1
Anxiety: 2
Compulsion: 2
External Stress: Overwhelming
58 F
Function: Moderate
Distress: Low
I am: vg
I have:
Bipolar Disorder

See LadySirona's full Topiramate history

Mar 17, 2017 (Started Mar 05, 2017)

  • Effectiveness
    Major (for Migraine headaches)
  • Side effects
    Moderate (Anorexia Nervosa, Aphasia, Stuttering)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 100 mg Twice daily
Advice & Tips: I suffered from crushing migraines for 40 years.... when i got the 100mg dose 2 x day my migraines disappeared, fir that i will put up with aphasia and stuttering and spelling errors to not have crushing pain for 40 years. i can now wean off the narcotics i took norco 10mg /325 to get pain control to 4-5/10 and now i am pain free it is a good trade.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 114 patient evaluations for Topiramate