What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Topamax Sprinkle Trokendi XR Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,031 404
Epilepsy 708 385
Headaches 183 86
Fibromyalgia 117 77
Cluster Headaches 95 52
Pain 73 28

Show all 251 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 239
Moderate 328
Mild 257
None 328

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 85
Brain fog 64
Hands tingling 53
Memory problems 51
Word fishing 51
Feet tingling 48

Show all 409 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 50
100 mg twice daily 32
50 mg daily 30
200 mg daily 25
50 mg twice daily 24
25 mg twice daily 21
25 mg daily 19
200 mg twice daily 17
400 mg daily 16
300 mg daily 12

See all 34 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 370
Did not seem to work 244
Doctor's advice 204
Other 105
Expense 36
Personal research 31
Course of treatment ended 28
Change in health plan coverage 9
See all 707 patients who’ve stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 2
1 - 6 months 15
6 months - 1 year 26
1 - 2 years 43
2 - 5 years 76
5 - 10 years 78
10 years or more 46

Stopped taking Topiramate

Duration Patients
Less than 1 month 126
1 - 6 months 192
6 months - 1 year 106
1 - 2 years 93
2 - 5 years 124
5 - 10 years 55
10 years or more 16
Adherence
Adherence Evaluations
Always 986
Usually 119
Sometimes 19
Never taken as prescribed 28
Burden
Burden Evaluations
Very hard to take 45
Somewhat hard to take 86
A little hard to take 163
Not at all hard to take 858
Cost per month
Cost per month Evaluations
$200+ 18
$100-199 12
$50-99 35
$25-49 103
< $25 537
Not specified 447

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 11
Sumatriptan (Imitrex) 10
Carbamazepine (Tegretol) 6
Propranolol (Inderal) 6
Levetiracetam (Keppra) 5

Show all 44 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Divalproex sodium (Depakote) 10
Gabapentin (Neurontin) 8
Lamotrigine (Lamictal) 8
Propranolol (Inderal) 5
Amitriptyline (Elavil) 4

Show all 41 treatments patients report switching to

Last updated:

110 patient evaluations for Topiramate

845 members have decided to share their profiles only with other members of PatientsLikeMe.

Srs2388
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Srs2388
Data Quality: 1 star
  • Gender: M
  • Age: 28y
  • Duration: ? yrs
Quality of life:
  • Mental: Severe
  • Physical: Severe
2 seizures
1 week ago
I am: vb
I have:
Epilepsy

See Srs2388's full Topiramate history

Dec 16, 2016 (Started Jun 30, 2016)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Side effects
    Severe (Paresthesia)
  • Adherence
    Sometimes
  • Burden
    Very hard to take
Dosage: 50 mg Three times daily
Cost: < $25 monthly

  • 0 helpful marks
joan53
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joan53
Data Quality: 2 stars
  • Gender: F
  • Age: 53y
  • Duration: 52 yrs
PRO survey: PRO 3
Quality of life:
  • Mental: None
  • Physical: None
0 seizures
4 weeks ago
I am: vg
I have:
Epilepsy

See joan53's full Topiramate history

Dec 12, 2016 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: I was Actually put on Topamax for my epilepsy. Controlling my headaches was the best side effect from a medication that I ever experienced. But I still find that getting a good nights sleep and trying my best to eat healthy helps a lot.
Cost: < $25 monthly
Side effects: Fingers Tingling

Jan 7, 2011 (Started Jan 01, 2005)

  • Effectiveness
    Can’t tell (for Epilepsy)
  • Effectiveness
    Moderate (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Side effects: Fingers Tingling

Mar 1, 2010 (Started Jan 01, 2005)

  • Effectiveness
    Major (for Epilepsy)
  • Effectiveness
    Major (for Cluster headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 400 mg Daily
Advice & Tips: Topamax has been a very good for me. When I first went onit it was just to controll seizures, but then I started having cluster headaches it was increased . I do my very best not to miss a dose of medication. I also try to get to know the people at the pharmacy(they know me by name) it helps me when I hve any probs.
Side effects: Fingers Tingling

  • 0 helpful marks
Seclorum
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Seclorum
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See Seclorum's full Topiramate history

Aug 18, 2016 (Started Jun 12, 2016)

  • Effectiveness
    Major (for Headaches)
  • Side effects
    Moderate (Frequent urination)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 110 patient evaluations for Topiramate