What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Topamax Sprinkle Toprel Show all

false

Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,119 456
epilepsy 716 396
Headaches 185 87
fibromyalgia 119 77
cluster headaches 100 53
Pain 74 29

Show all 264 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 252
Moderate 349
Mild 276
None 358

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 94
Brain fog 66
Memory problems 56
Hands tingling 54
Word fishing 52
Feet tingling 49

Show all 420 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 58
200 mg daily 40
100 mg twice daily 39
50 mg daily 37
50 mg twice daily 36
25 mg daily 28
25 mg twice daily 23
200 mg twice daily 21
150 mg daily 13
400 mg daily 13

See all 45 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 384
Did not seem to work 255
Doctor's advice 213
Other 106
Expense 37
Personal research 33
Course of treatment ended 29
Change in health plan coverage 10
See all 734 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 3
1 - 6 months 20
6 months - 1 year 34
1 - 2 years 62
2 - 5 years 101
5 - 10 years 95
10 years or more 68

Stopped taking Topiramate

Duration Patients
Less than 1 month 127
1 - 6 months 199
6 months - 1 year 114
1 - 2 years 96
2 - 5 years 130
5 - 10 years 56
10 years or more 17
Adherence
Adherence Evaluations
Always 1046
Usually 133
Sometimes 22
Never taken as prescribed 34
Burden
Burden Evaluations
Very hard to take 48
Somewhat hard to take 92
A little hard to take 175
Not at all hard to take 920
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 12
$50-99 35
$25-49 104
< $25 572
Not specified 493

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 11
Sumatriptan (Imitrex) 11
Lamotrigine (Lamictal) 8
Propranolol (Inderal) 7
Carbamazepine (Tegretol) 6

Show all 49 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 13
Divalproex sodium (Depakote) 11
Lamotrigine (Lamictal) 11
Amitriptyline (Elavil) 6
Levetiracetam (Keppra) 6

Show all 45 treatments patients report switching to

Last updated:

116 patient evaluations for Topiramate

silverdragon13
102376 thumb
silverdragon13
Gender: F
Data Quality: 3 stars
Depression: 3
Mania: 0
Emotional: 3
Anxiety: 2
Compulsion: 1
External Stress: Severe
37 F
Function: Low
Distress: Moderate
I am: g
I have:
ADHD

See silverdragon13's full Topiramate history

Jun 4, 2017 (Started May 26, 2017)

  • Effectiveness
    Slight (for post-traumatic stress disorder)
  • Effectiveness
    Slight (for Moodiness)
  • Effectiveness
    Slight (for borderline personality disorder)
  • Side effects
    Mild (Dry mouth, Feeling hot)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: No weight gain so far
Cost: < $25 monthly

  • 0 helpful marks
sparkifox
50091 thumb
sparkifox
Gender: F
Data Quality: 3 stars
Depression: 3
Mania: 0
Emotional: 2
Anxiety: 2
Compulsion: 1
External Stress: Severe
31 F
Function: Low
Distress: Moderate
I am: g
I have:
C-PTSD

See sparkifox's full Topiramate history

May 25, 2017 (Started Apr 10, 2017)

  • Effectiveness
    Can’t tell (for Support mental / emotional health)
  • Effectiveness
    Can’t tell (for Dissociation)
  • Side effects
    Severe (Word fishing, Numbness and tingling with pins and needles, Dizziness and feeling faint)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Twice daily

  • 0 helpful marks
COOPERATI
22007 thumb
COOPERATI
Gender: M
Data Quality: 2 stars
Depression: 3
Mania: 2
Emotional: 4
Anxiety: 2
Compulsion: 2
External Stress: Overwhelming
43 M
Function: Low
Distress: High
I am: vb
I have:
Schizophrenia

See COOPERATI's full Topiramate history

May 9, 2017 (Started Feb 18, 2010)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Effectiveness
    Major (for Migraine headaches)
  • Effectiveness
    Moderate (for bipolar disorder)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily

Dec 4, 2010 (Started Feb 18, 2010)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Effectiveness
    Moderate (for bipolar disorder)
  • Effectiveness
    Moderate (for Migraine headaches)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 200 mg Daily

  • 1 helpful mark
Last updated:
Showing 3 of 116 patient evaluations for Topiramate