What is Trilogy 100?

Category: Equipment

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Generic name: Non-invasive Ventilator

NIPPV, also known as Bilevel Positive Airway Pressure (Bi-Pap) is an electronic breathing device used in the treatment of sleep apnoea, lung disease, and to treat respiratory weakness in ALS. Use of the device overnight improves quality of sleep, daytime sleepiness, and may improve thinking ability.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
ALS (Amyotrophic Lateral Sclerosis) 14 8
Breathing difficulty 11 3
Fatigue 5 1
Decreased diaphragm strength 2 1
Central sleep apnea 1 3
Decreased respiratory function 1 0

Show all 12 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 3
Moderate 1
Mild 4
None 4

Commonly reported side effects and conditions associated with Trilogy 100

Side effect Patients
Dry mouth 2
Atrophy of muscles 1
Dry eyes 1
Dry throat 1
Granulation tissue both peg and trach site 1
Muscle weakness 1

Show all 7 reported side effects

Dosages

Based on patients currently using Trilogy 100

Dosage Patients
8 hr daily 3
4 hr daily 2
6 hr daily 1
7 hr daily 1
12 hr daily 1
daily 1

Why patients stopped taking Trilogy 100

Multiple reasons could be selected

Reason Patients
Course of treatment ended 1
See all 1 patient who’ve stopped using Trilogy 100

Duration

Currently using Trilogy 100

Duration Patients
1 - 6 months 2
6 months - 1 year 2
1 - 2 years 3
2 - 5 years 2

Stopped using Trilogy 100

Duration Patients
6 months - 1 year 1
Adherence
Adherence Evaluations
Always 7
Usually 2
Sometimes 2
Never taken as prescribed 1
Burden
Burden Evaluations
Very hard to take 3
Somewhat hard to take 4
A little hard to take 3
Not at all hard to take 2
Cost per month
Cost per month Evaluations
$200+ 3
$100-199 0
$50-99 0
$25-49 0
< $25 3
Not specified 6
Last updated:

1 patient evaluation for Trilogy 100

8 members have decided to share their profiles only with other members of PatientsLikeMe.

wrgguts
49178 thumb
wrgguts
Sex: M
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: vg
I have:
ALS

See wrgguts's full Trilogy 100 history

Jul 18, 2015 (Started Jul 01, 2011)

  • Effectiveness
    Major (for Decreased diaphragm strength)
  • Effectiveness
    Major (for ALS (Amyotrophic Lateral Sclerosis))
  • Side effects
    Mild (Granulation tissue both peg and trach site)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 23 hr Daily

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for Trilogy 100