What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent that may be used for the prevention of organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Prevent organ rejection 502 92
Systemic lupus erythematosus 195 74
Multiple sclerosis 70 30
Lupus nephritis 41 12
Neuromyelitis optica 37 26

Show all 93 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 36
Moderate 87
Mild 114
None 149

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients
Diarrhea 35
Nausea 26
Fatigue 12
Headaches 8
Stomach pain 8
Hair loss 6

Show all 118 reported side effects

Dosages

Based on patients currently taking Mycophenolate mofetil

Dosage Patients
1,000 mg twice daily 34
500 mg twice daily 28
2,000 mg daily 16
1,500 mg twice daily 15
1,000 mg daily 9
250 mg twice daily 7
500 mg daily 6
3,000 mg daily 6
1,500 mg daily 4
360 mg twice daily 2

See all 24 dosages

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients
Side effects too severe 93
Doctor's advice 85
Other 49
Did not seem to work 46
Course of treatment ended 18
Change in health plan coverage 5
Personal research 5
Expense 4
See all 232 patients who've stopped taking Mycophenolate mofetil

Duration

Currently taking Mycophenolate mofetil

Duration Patients
1 - 6 months 8
6 months - 1 year 14
1 - 2 years 22
2 - 5 years 33
5 - 10 years 52
10 years or more 16

Stopped taking Mycophenolate mofetil

Duration Patients
Less than 1 month 24
1 - 6 months 54
6 months - 1 year 46
1 - 2 years 32
2 - 5 years 44
5 - 10 years 27
10 years or more 5
Adherence
Adherence Evaluations
Always 333
Usually 37
Sometimes 7
Never taken as prescribed 9
Burden
Burden Evaluations
Very hard to take 16
Somewhat hard to take 50
A little hard to take 79
Not at all hard to take 241
Cost per month
Cost per month Evaluations
$200+ 22
$100-199 19
$50-99 28
$25-49 29
< $25 144
Not specified 144

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients
Azathioprine (Imuran) 26
Methotrexate (Apo-Methotrexate) 18
Prednisone (Deltasone) 14
Hydroxychloroquine (Plaquenil) 8
Cyclophosphamide (Cytoxan) 5

Show all 23 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients
Azathioprine (Imuran) 10
Methotrexate (Apo-Methotrexate) 7
Belimumab (Benlysta) 5
Cyclophosphamide (Cytoxan) 5
Rituximab (Rituxan) 5

Show all 17 treatments patients report switching to

Last updated:

37 patient evaluations for Mycophenolate mofetil

Apr 15, 2016 (Started Jan 09, 2016)

  • Effectiveness
    Major (for transplant rejection prevention)
  • Side effects
    Mild (diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Twice daily
Advice & Tips: Does cause some bowel problems, diarrhea specifically, but its infrequent and manageable
Cost: $25-49 monthly

  • 0 helpful marks

Sep 25, 2015 (Started Apr 09, 2010)

  • Effectiveness
    Major (for neuromyelitis optica)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 2000 mg Daily

  • 0 helpful marks

Sep 10, 2014 (Started Jun 01, 2013)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: The first two weeks were tough on the stomach.//however the results are phenomenal! No cane or wheel chair great stamina brain works better.
Cost: < $25 monthly

Apr 14, 2014 (Started Jun 01, 2013)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: < $25 monthly

Oct 18, 2013 (Started Jun 01, 2013)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: < $25 monthly

Sep 9, 2013 (Started Jun 01, 2013)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (pain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Advice & Tips: The first week hard on stomach but results worth pain.
Cost: < $25 monthly

Jul 16, 2013 (Started Jun 01, 2013)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Mild (pain)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily

  • 1 helpful mark
Last updated:
Showing 3 of 37 patient evaluations for Mycophenolate mofetil