Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Improve communication 38 11
Slurred speech 19 1
ALS (Amyotrophic Lateral Sclerosis) 14 1
Voice changes 9 1
Difficulty speaking (dysarthria) 6 1
Atrophy of hand muscles 4 1

Show all 27 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 1
Moderate 1
Mild 3
None 24

Commonly reported side effects and conditions associated with Augmentative Speech Device

Side effect Patients
Headaches 1
Nonepileptic seizures 1
people say hard to understand 1
works slow 1

Dosages

Based on patients currently using Augmentative Speech Device

Dosage Patients
daily 4
12 hr daily 2
as needed 1

Why patients stopped taking Augmentative Speech Device

Multiple reasons could be selected

Reason Patients
Other 14
Course of treatment ended 3
Did not seem to work 3
Side effects too severe 1
See all 22 patients who’ve stopped using Augmentative Speech Device

Duration

Currently using Augmentative Speech Device

Duration Patients
2 - 5 years 1
5 - 10 years 3
10 years or more 3

Stopped using Augmentative Speech Device

Duration Patients
Less than 1 month 4
1 - 6 months 6
6 months - 1 year 4
1 - 2 years 6
2 - 5 years 2
Adherence
Adherence Evaluations
Always 16
Usually 5
Sometimes 5
Never taken as prescribed 3
Burden
Burden Evaluations
Very hard to take 2
Somewhat hard to take 3
A little hard to take 8
Not at all hard to take 16
Cost per month
Cost per month Evaluations
$200+ 3
$100-199 1
$50-99 0
$25-49 0
< $25 7
Not specified 18
Last updated:

10 patient evaluations for Augmentative Speech Device

23 members have decided to share their profiles only with other members of PatientsLikeMe.

canmark
60687 thumb
canmark
Sex: M
Data Quality: 2 stars
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
I am: n
I have:
ALS

See canmark's full Augmentative Speech Device history

Nov 23, 2013 (Started Aug 05, 2013)

  • Effectiveness
    Moderate (for Improve communication)
  • Side effects
    None
  • Adherence
    Sometimes
  • Burden
    A little hard to take
Dosage: Daily
Advice & Tips: I used to be able to touch type and my job required me to use a computer extensively, but due to ALS my hands and fingers have weakened and it’s difficult for me to do much more than one-finger typing. I have no issues with speaking, however, and use a desktop USB microphone with a gooseneck (as opposed to the headset microphone that comes with the software). I use Dragon Naturally Speaking 12 for composing larger blocks of text for emails or other written communication. The software requires you to train it to recognize your voice and pronunciation of words, but otherwise basic use is fairly easy to pick up. That said, I am still learning more advanced techniques such as editing, and using Dragon for things other than just composing large blocks of text.
Cost: $100-199 monthly

  • 0 helpful marks
mompeach
726 thumb
mompeach
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: b
I have:
ALS

See mompeach's full Augmentative Speech Device history

Sep 17, 2012 (Started Aug 03, 2012)

  • Effectiveness
    Moderate (for Improve communication)
  • Side effects
    Mild (Headaches)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: As needed
Advice & Tips: I am trying out this communication device and it is on loan from words +. I'm new to using eyegaze technology. Before trying this I've been using words + ez key.

  • 0 helpful marks
Tommy Maker
21803 thumb
Tommy Maker
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: g
I have:
ALS

See Tommy Maker's full Augmentative Speech Device history

Jul 15, 2011 (Started May 05, 2010)

  • Effectiveness
    Moderate (for helping to stay working)
  • Effectiveness
    Moderate (for preparing for future deficiencies)
  • Effectiveness
    Slight (for Improve communication)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: Daily
Advice & Tips: easy at first to get into the workings of the software, but it simply cannot proceed beyond the initial intermediate stage. Too many bugs in the system, the costs of proceeding further with the device is not sufficiently in correlation with the benefits which accrue. The support package is hopeless, staff at dragon always blame other applications which I have loaded. I have this system loaded at home and at work and have the same problems at both locations.
Cost: $200+ monthly

Oct 6, 2010 (Started May 05, 2010)

  • Effectiveness
    Major (for helping to stay working)
  • Effectiveness
    Major (for preparing for future deficiencies)
  • Effectiveness
    Major (for Improve communication)
  • Side effects
    Moderate
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: As needed
Advice & Tips: This is a fantastic piece of equipment, however, it's important to start learning as soon as possible. The Motor Neurone Disease Association in the UK advised me to start training as soon as possible, I regret that I took some months before following that advice. I worry, however, that I may not be able to carry on using the equipment in the event that my voice fails, this however has not happened to me yet. It is difficult to set up, and I often trip over at the cables but I'm learning that there are wireless adaptations for most things. The bonus for me is that whilst learning about the dragon in work, I have learnt how to use it at home. The frustration is that the dragon takes different commands depending on what computer you are on, but it's easy to get over this, it just takes time. It saves me a huge amount of time and allowed me to continue in work. I recommend it 100%.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 10 patient evaluations for Augmentative Speech Device