What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Topamax Sprinkle Toprel Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,114 452
Epilepsy 716 394
Headaches 185 87
Fibromyalgia 120 78
Cluster Headaches 100 54
Pain 74 29

Show all 266 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 250
Moderate 347
Mild 274
None 358

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 94
Brain fog 65
Memory problems 56
Hands tingling 54
Word fishing 52
Feet tingling 49

Show all 419 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 58
200 mg daily 42
100 mg twice daily 41
50 mg twice daily 37
50 mg daily 36
25 mg daily 27
25 mg twice daily 22
200 mg twice daily 22
150 mg daily 15
400 mg daily 14

See all 44 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 383
Did not seem to work 253
Doctor's advice 212
Other 106
Expense 37
Personal research 33
Course of treatment ended 29
Change in health plan coverage 10
See all 732 patients who’ve stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 3
1 - 6 months 22
6 months - 1 year 39
1 - 2 years 57
2 - 5 years 105
5 - 10 years 92
10 years or more 69

Stopped taking Topiramate

Duration Patients
Less than 1 month 127
1 - 6 months 198
6 months - 1 year 113
1 - 2 years 96
2 - 5 years 130
5 - 10 years 56
10 years or more 17
Adherence
Adherence Evaluations
Always 1041
Usually 132
Sometimes 22
Never taken as prescribed 34
Burden
Burden Evaluations
Very hard to take 48
Somewhat hard to take 92
A little hard to take 173
Not at all hard to take 916
Cost per month
Cost per month Evaluations
$200+ 19
$100-199 12
$50-99 35
$25-49 104
< $25 568
Not specified 491

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 11
Sumatriptan (Imitrex) 10
Lamotrigine (Lamictal) 8
Propranolol (Inderal) 7
Carbamazepine (Tegretol) 6

Show all 49 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 13
Divalproex sodium (Depakote) 11
Lamotrigine (Lamictal) 11
Levetiracetam (Keppra) 6
Propranolol (Inderal) 5

Show all 45 treatments patients report switching to

Last updated:

115 patient evaluations for Topiramate

912 members have decided to share their profiles only with other members of PatientsLikeMe.

sparkifox
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sparkifox
Gender: F
Data Quality: 3 stars
Depression: 1
Mania: 0
Emotional: 2
Anxiety: 2
Compulsion: 2
External Stress: Severe
31 F
Function: Moderate
Distress: Moderate
I am: vb
I have:
C-PTSD

See sparkifox's full Topiramate history

May 25, 2017 (Started Apr 10, 2017)

  • Effectiveness
    Can’t tell (for Support mental / emotional health)
  • Effectiveness
    Can’t tell (for Dissociation)
  • Side effects
    Severe (Word fishing, Numbness and tingling with pins and needles, Dizziness and feeling faint)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Twice daily

  • 0 helpful marks
COOPERATI
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COOPERATI
Gender: M
Data Quality: 2 stars
Depression: 3
Mania: 2
Emotional: 4
Anxiety: 2
Compulsion: 2
External Stress: Overwhelming
43 M
Function: Low
Distress: High
I am: vb
I have:
Schizophrenia

See COOPERATI's full Topiramate history

May 9, 2017 (Started Feb 18, 2010)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Effectiveness
    Major (for Migraine headaches)
  • Effectiveness
    Moderate (for Bipolar Disorder)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 200 mg Daily

Dec 4, 2010 (Started Feb 18, 2010)

  • Effectiveness
    Moderate (for Treat my mood condition(s))
  • Effectiveness
    Moderate (for Bipolar Disorder)
  • Effectiveness
    Moderate (for Migraine headaches)
  • Side effects
    Severe
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 200 mg Daily

  • 1 helpful mark
modifiedgirl
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modifiedgirl
Gender: F
Data Quality: 3 stars
Pain: Some
Fatigue: Some
Sleep: All
Stiffness: All
function: Some
external_stress: Little
Stickman: most
Description:F42y
FM:10y Dx
CFS:?y
I am: n
I have:
Fibromyalgia

See modifiedgirl's full Topiramate history

Apr 25, 2017 (Started Jul 01, 2010)

  • Effectiveness
    Major (for Migraine headaches)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 45 mg Daily

  • 0 helpful marks
Last updated:
Showing 3 of 115 patient evaluations for Topiramate