What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Topamax Sprinkle Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1,240 525
Epilepsy 732 406
Headaches 185 89
Fibromyalgia 124 80
Cluster headaches 108 60
Pain 75 34

Show all 241 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 267
Moderate 374
Mild 301
None 412

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients
Weight loss 99
Decreased appetite 61
Hands tingling 57
Memory problems 57
Brain fog 55
Word fishing 53

Show all 337 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients
100 mg daily 55
50 mg twice daily 45
100 mg twice daily 40
50 mg daily 29
200 mg daily 28
25 mg twice daily 25
25 mg daily 22
200 mg twice daily 20
150 mg daily 17
300 mg daily 11

See all 39 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients
Side effects too severe 416
Did not seem to work 272
Doctor's advice 229
Other 110
Expense 39
Personal research 36
Course of treatment ended 31
Change in health plan coverage 12
See all 786 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients
Less than 1 month 1
1 - 6 months 16
6 months - 1 year 21
1 - 2 years 42
2 - 5 years 114
5 - 10 years 104
10 years or more 61

Stopped taking Topiramate

Duration Patients
Less than 1 month 143
1 - 6 months 208
6 months - 1 year 113
1 - 2 years 106
2 - 5 years 142
5 - 10 years 62
10 years or more 18
Adherence
Adherence Evaluations
Always 1145
Usually 144
Sometimes 23
Never taken as prescribed 42
Burden
Burden Evaluations
Very hard to take 50
Somewhat hard to take 97
A little hard to take 187
Not at all hard to take 1020
Cost per month
Cost per month Evaluations
$200+ 20
$100-199 12
$50-99 35
$25-49 105
< $25 622
Not specified 560

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients
Gabapentin (Neurontin) 16
Sumatriptan (Imitrex) 14
Lamotrigine (Lamictal) 11
Propranolol (Inderal) 10
Divalproex sodium (Depakote) 8

Show all 52 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients
Gabapentin (Neurontin) 16
Divalproex sodium (Depakote) 15
Lamotrigine (Lamictal) 13
Botulinum Toxin Type A (Botox) 8
Zonisamide (Zonegran) 7

Show all 50 treatments patients report switching to

Last updated:

118 patient evaluations for Topiramate

Jul 8, 2018 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for weight loss)
  • Effectiveness
    Moderate (for mood swings)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

May 12, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for borderline personality disorder)
  • Side effects
    Mild (dry mouth, feeling hot/overheating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: < $25 monthly

May 10, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for borderline personality disorder)
  • Side effects
    Moderate (dry mouth, feeling hot/overheating)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Weight loss is an awesome side effect... Not extreme but hell... I shed amor 10 to 15 in the first 2 to 3 months.. And ive since then pretty much maintained by normal weight...
Cost: < $25 monthly

Jun 4, 2017 (Started May 26, 2017)

  • Effectiveness
    Slight (for post-traumatic stress disorder)
  • Effectiveness
    Slight (for moodiness)
  • Effectiveness
    Slight (for borderline personality disorder)
  • Side effects
    Mild (dry mouth, feeling hot/overheating)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: No weight gain so far
Cost: < $25 monthly

  • 0 helpful marks

Feb 15, 2018 (Started Dec 20, 2017)

  • Effectiveness
    Moderate (for essential tremor)
  • Side effects
    Severe (hives (urticaria))
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take
Dosage: 25 mg Twice daily
Advice & Tips: Hives is just bad luck. I liked the medication, but my hands broke out in hives and my face was starting to break out as well. The questionnaire is asking about terminated treatments and then asks how often I take it currently. Terminates=/=current. I never take it currently, but when I did take it, there was no difficulty.

  • 0 helpful marks
Last updated:
Showing 3 of 118 patient evaluations for Topiramate