What is Betaseron?

Category: Prescription Drugs

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Generic name: Interferon beta-1b SubQ Injection

Betaseron® is a brand name for interferon beta-1b, a drug in the interferon family used to treat multiple sclerosis. It is administered by sub-cutaneous injection and has been shown to slow the advance of MS as well as reduce the frequency of attacks.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple sclerosis 975 407
General health 13 11
Fatigue 7 6
Walking problems 7 3
Improve mobility 6 4
Stiffness/spasticity 6 2

Show all 21 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations
Severe 72
Moderate 109
Mild 154
None 84

Commonly reported side effects and conditions associated with Betaseron

Side effect Patients
Flu like symptoms 92
Injection site pain 68
Bruising 52
Headaches 41
Depressed mood 39
Feel lousy 38

Show all 111 reported side effects

Dosages

Based on patients currently taking Betaseron

Dosage Patients
0.3 mg every other day 28
1 mg every other day 4
0.3 mg m,w,f 1
0.3 mg 1
0.5 1
0.3 mg daily 1
0.6 mg every other day 1
100 mg 1
daily 1
weekly 1

Why patients stopped taking Betaseron

Multiple reasons could be selected

Reason Patients
Did not seem to work 218
Side effects too severe 213
Doctor's advice 202
Other 114
Change in health plan coverage 20
Expense 19
Personal research 14
Course of treatment ended 11
See all 549 patients who've stopped taking Betaseron

Duration

Currently taking Betaseron

Duration Patients
2 - 5 years 3
5 - 10 years 15
10 years or more 25

Stopped taking Betaseron

Duration Patients
Less than 1 month 21
1 - 6 months 97
6 months - 1 year 85
1 - 2 years 111
2 - 5 years 142
5 - 10 years 63
10 years or more 32
Adherence
Adherence Evaluations
Always 302
Usually 95
Sometimes 6
Never taken as prescribed 16
Burden
Burden Evaluations
Very hard to take 40
Somewhat hard to take 106
A little hard to take 146
Not at all hard to take 127
Cost per month
Cost per month Evaluations
$200+ 31
$100-199 12
$50-99 50
$25-49 67
< $25 151
Not specified 108

What people switch to and from

Patients started taking Betaseron after stopping:

Treatment Patients
Glatiramer acetate (Copaxone) 4
Natalizumab (Tysabri) 2
Cyclophosphamide (Cytoxan) 1
Dimethyl fumarate (Tecfidera) 1
Interferon beta-1a IM Injection (Avonex) 1

Show all 6 treatments patients report switching from

Patients stopped taking Betaseron and switched to:

Treatment Patients
Dimethyl fumarate (Tecfidera) 9
Interferon beta-1a SubQ injection (Rebif) 6
Natalizumab (Tysabri) 6
Fingolimod (Gilenya) 4
Teriflunomide (Aubagio) 3

Show all 11 treatments patients report switching to

Last updated:

54 patient evaluations for Betaseron

Feb 28, 2017 (Started Dec 15, 2005)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Moderate (injection site redness, stiffness/spasticity)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 0.3 mg Every other day
Cost: < $25 monthly

Oct 22, 2012 (Started Dec 15, 2005)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Mild (injection site redness, stiffness/spasticity)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 0.3 mg Every other day
Cost: < $25 monthly

  • 0 helpful marks

Jan 2, 2017 (Started May 18, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Advice & Tips: Went back on Betaseron when Tecfidera didn't work for me
Cost: < $25 monthly

Nov 8, 2016 (Started May 18, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 0.3 mg Every other day
Advice & Tips: On November 8,2016 I began Tecfidera as prescribed by my new MS doctor.
Cost: < $25 monthly

Jun 24, 2015 (Started May 18, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Severe (injection site pain)
  • Adherence
    Never taken as prescribed
  • Burden
    Somewhat hard to take
Advice & Tips: I have stopped taking the Beta. I'd been on it since 2009 and in 2014 I found myself in a horrible depression...NOT suicidal, but complete lack of energy, didn't care about anything, sat on the couch all day watching tv. Stopped cleaning house and letting myself go. Since I've been off of it I am back to myself!
Cost: < $25 monthly

May 25, 2015 (Started May 18, 2009)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Moderate (injection site pain)
  • Adherence
    Usually
  • Burden
    Very hard to take
Advice & Tips: I've been on Beta since 2009. At first it was easy to keep track, but as time went on, it became more and more difficult to remember to take my shot. Then I had a few injection site infections and I was running out of places to inject. If I did my arms or thighs, I had side effects, so I only injected in my belly or hips. Then late in 2014 I began to sink into a deep depression which can be a side effect of being on it for a long period of time. So I went off of it in November 2014 and am taking a break. I feel so much better!!!!!!!!!!!!!
Cost: < $25 monthly

  • 0 helpful marks

Jul 1, 2015 (Started Jan 02, 2010)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Moderate (whole body ache, injection site reaction, depressed mood)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 0.3 mg Every other day
Cost: < $25 monthly
Side effects: whole body ache, depressed mood, depressed mood, injection site reaction

Nov 10, 2014 (Started Jan 02, 2010)

  • Effectiveness
    Major (for multiple sclerosis)
  • Side effects
    Severe (whole body ache, injection site reaction, depressed mood)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 0.3 mg Every other day
Cost: < $25 monthly
Side effects: whole body ache, depressed mood, depressed mood, injection site reaction

Jul 2, 2010 (Started Jan 02, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Severe (whole body ache, injection site reaction, depressed mood)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.3 mg Every other day
Cost: < $25 monthly
Side effects: whole body ache, depressed mood, depressed mood, injection site reaction

Mar 5, 2010 (Started Jan 02, 2010)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    Severe (whole body ache, injection site reaction, depressed mood)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 0.3 mg Every other day
Advice & Tips: 1. I premedicate with oral Benadry, topical hydrocortisone cream 1%, and either acetaminophen or ibuprophen to reduce adverse reactions.
Cost: < $25 monthly
Side effects: whole body ache, depressed mood, depressed mood, injection site reaction

  • 0 helpful marks
Last updated:
Showing 3 of 54 patient evaluations for Betaseron