What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Toprel Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Epilepsy 2407 411
Migraine headaches 1477 560
Cluster headaches 400 62
Borderline personality disorder 313 38
Headaches 219 93
Migraine 179 52

Show all 260 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 287
Moderate 392
Mild 314
None 438

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients Percentage
Weight loss 110
Decreased appetite 66
Hands tingling 66
Brain fog 63
Memory problems 62
Feet tingling 61

Show all 338 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients Percentage
50 mg twice daily 16
50 mg daily 12
100 mg twice daily 12
25 mg daily 10
200 mg twice daily 9
100 mg daily 8
200 mg daily 8
25 mg twice daily 7
150 mg daily 4
150 mg twice daily 4

See all 21 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 443
Did not seem to work 291
Doctor's advice 249
Other 119
Expense 41
Personal research 38
Course of treatment ended 32
Change in health plan coverage 13
See all 844 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients Percentage
Less than 1 month 3
1 - 6 months 4
6 months - 1 year 3
1 - 2 years 9
2 - 5 years 36
5 - 10 years 27
10 years or more 22

Stopped taking Topiramate

Duration Patients Percentage
Less than 1 month 148
1 - 6 months 214
6 months - 1 year 115
1 - 2 years 114
2 - 5 years 152
5 - 10 years 67
10 years or more 22
Adherence
Adherence Evaluations Percentage
Always 1212
Usually 150
Sometimes 24
Never taken as prescribed 45
Burden
Burden Evaluations Percentage
Very hard to take 55
Somewhat hard to take 108
A little hard to take 197
Not at all hard to take 1071
Cost per month
Cost per month Evaluations Percentage
$200+ 20
$100-199 12
$50-99 36
$25-49 108
< $25 653
Not specified 602

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients Percentage
Sumatriptan (Imitrex) 19
Lamotrigine (Lamictal) 18
Gabapentin (Neurontin) 17
Divalproex sodium (Depakote) 13
Amitriptyline (Elavil) 12

Show all 61 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients Percentage
Lamotrigine (Lamictal) 27
Gabapentin (Neurontin) 21
Divalproex sodium (Depakote) 17
Botulinum Toxin Type A (Botox) 14
Zonisamide (Zonegran) 13

Show all 68 treatments patients report switching to

Last updated:

118 patient evaluations for Topiramate

Feb 12, 2019 (Started Jul 01, 2017)

  • Effectiveness
    None (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take

Jan 15, 2019 (Started Jul 01, 2017)

  • Effectiveness
    Slight (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks

Sep 19, 2018 (Started Jan 01, 2004)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Mild (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Twice daily
Advice & Tips: the side effects may be poor balance. Drink with plenty of water. That is a must.
Side effects: word fishing, tremor in hands, brain fog

Nov 23, 2009 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Moderate (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Twice daily
Side effects: word fishing, tremor in hands, brain fog

  • 0 helpful marks

May 12, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for borderline personality disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Side effects
    Mild (feeling hot/overheating, dry mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Cost: < $25 monthly

May 10, 2018 (Started May 26, 2017)

  • Effectiveness
    Moderate (for borderline personality disorder)
  • Effectiveness
    Moderate (for moodiness)
  • Effectiveness
    Moderate (for post-traumatic stress disorder)
  • Side effects
    Moderate (feeling hot/overheating, dry mouth)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily
Advice & Tips: Weight loss is an awesome side effect... Not extreme but hell... I shed amor 10 to 15 in the first 2 to 3 months.. And ive since then pretty much maintained by normal weight...
Cost: < $25 monthly

Jun 4, 2017 (Started May 26, 2017)

  • Effectiveness
    Slight (for borderline personality disorder)
  • Effectiveness
    Slight (for moodiness)
  • Effectiveness
    Slight (for post-traumatic stress disorder)
  • Side effects
    Mild (feeling hot/overheating, dry mouth)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: No weight gain so far
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 118 patient evaluations for Topiramate