What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Toprel Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Epilepsy 2408 409
Migraine headaches 1479 558
Cluster headaches 400 62
Borderline personality disorder 315 40
Headaches 219 93
Migraine 193 54

Show all 260 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 289
Moderate 393
Mild 313
None 438

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients Percentage
Weight loss 110
Hands tingling 65
Decreased appetite 64
Brain fog 62
Memory problems 62
Feet tingling 61

Show all 342 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients Percentage
25 mg daily 12
50 mg twice daily 12
100 mg twice daily 12
200 mg daily 10
100 mg daily 9
200 mg twice daily 8
25 mg twice daily 6
50 mg daily 4
150 mg daily 4
75 mg twice daily 3

See all 20 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 447
Did not seem to work 292
Doctor's advice 250
Other 121
Expense 41
Personal research 38
Course of treatment ended 32
Change in health plan coverage 13
See all 851 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients Percentage
Less than 1 month 2
1 - 6 months 2
6 months - 1 year 4
1 - 2 years 8
2 - 5 years 34
5 - 10 years 27
10 years or more 19

Stopped taking Topiramate

Duration Patients Percentage
Less than 1 month 149
1 - 6 months 215
6 months - 1 year 116
1 - 2 years 115
2 - 5 years 152
5 - 10 years 67
10 years or more 25
Adherence
Adherence Evaluations Percentage
Always 1212
Usually 152
Sometimes 24
Never taken as prescribed 45
Burden
Burden Evaluations Percentage
Very hard to take 54
Somewhat hard to take 107
A little hard to take 198
Not at all hard to take 1074
Cost per month
Cost per month Evaluations Percentage
$200+ 20
$100-199 12
$50-99 35
$25-49 106
< $25 656
Not specified 604

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients Percentage
Sumatriptan (Imitrex) 19
Lamotrigine (Lamictal) 18
Gabapentin (Neurontin) 17
Divalproex sodium (Depakote) 13
Amitriptyline (Elavil) 12

Show all 61 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients Percentage
Lamotrigine (Lamictal) 27
Gabapentin (Neurontin) 20
Divalproex sodium (Depakote) 18
Botulinum Toxin Type A (Botox) 14
Zonisamide (Zonegran) 13

Show all 71 treatments patients report switching to

Last updated:

119 patient evaluations for Topiramate

Jan 5, 2021 (Started Jul 01, 2007)

  • Effectiveness
    Can't tell (for borderline personality disorder)
  • Side effects
    Moderate (urinary incontinence, nocturnal urinary incontinence)
  • Adherence
    Usually
  • Burden
    Not at all hard to take

Jul 1, 2017 (Started Jul 01, 2007)

  • Effectiveness
    Moderate (for borderline personality disorder)
  • Effectiveness
    Moderate (for bipolar II disorder)
  • Side effects
    Severe (urinary incontinence, nocturnal urinary incontinence)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Advice & Tips: Prevents migraine

  • 0 helpful marks

Feb 12, 2019 (Started Jul 01, 2017)

  • Effectiveness
    None (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take

Jan 15, 2019 (Started Jul 01, 2017)

  • Effectiveness
    Slight (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks

Sep 19, 2018 (Started Jan 01, 2004)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Mild (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Twice daily
Advice & Tips: the side effects may be poor balance. Drink with plenty of water. That is a must.
Side effects: word fishing, tremor in hands, brain fog

Nov 23, 2009 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Moderate (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Twice daily
Side effects: word fishing, tremor in hands, brain fog

  • 0 helpful marks
Last updated:
Showing 3 of 119 patient evaluations for Topiramate