What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Toprel Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Epilepsy 2419 414
Migraine headaches 1486 563
Cluster headaches 402 64
Borderline personality disorder 323 38
Headaches 218 94
Migraine 218 56

Show all 259 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 293
Moderate 395
Mild 320
None 445

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients Percentage
Weight loss 110
Hands tingling 65
Decreased appetite 64
Brain fog 62
Memory problems 62
Feet tingling 61

Show all 344 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients Percentage
50 mg twice daily 8
25 mg daily 5
50 mg daily 5
100 mg daily 5
100 mg twice daily 5
200 mg twice daily 5
25 mg twice daily 3
150 mg daily 3
200 mg daily 3
400 mg daily 2

See all 17 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 450
Did not seem to work 293
Doctor's advice 255
Other 121
Expense 40
Personal research 40
Course of treatment ended 33
Change in health plan coverage 13
See all 856 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients Percentage
1 - 6 months 3
1 - 2 years 4
2 - 5 years 10
5 - 10 years 13
10 years or more 22

Stopped taking Topiramate

Duration Patients Percentage
Less than 1 month 150
1 - 6 months 218
6 months - 1 year 115
1 - 2 years 114
2 - 5 years 150
5 - 10 years 72
10 years or more 26
Adherence
Adherence Evaluations Percentage
Always 1230
Usually 153
Sometimes 24
Never taken as prescribed 46
Burden
Burden Evaluations Percentage
Very hard to take 54
Somewhat hard to take 108
A little hard to take 200
Not at all hard to take 1091
Cost per month
Cost per month Evaluations Percentage
$200+ 20
$100-199 12
$50-99 35
$25-49 106
< $25 656
Not specified 624

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients Percentage
Sumatriptan (Imitrex) 19
Gabapentin (Neurontin) 18
Lamotrigine (Lamictal) 18
Divalproex sodium (Depakote) 13
Amitriptyline (Elavil) 12

Show all 62 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients Percentage
Lamotrigine (Lamictal) 28
Gabapentin (Neurontin) 19
Divalproex sodium (Depakote) 17
Botulinum Toxin Type A (Botox) 13
Zonisamide (Zonegran) 13

Show all 72 treatments patients report switching to

Last updated:

117 patient evaluations for Topiramate

Aug 6, 2021 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Mild (for Overall) (tremor in hands, brain fog, word fishing)
  • Side effects
    Mild (for Tremor In Hands)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Twice daily
Advice & Tips: drink a lot of water with this medicine.
Side effects: word fishing, tremor in hands, brain fog

Mar 12, 2021 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Mild (for Overall) (tremor in hands, brain fog, word fishing)
  • Side effects
    Mild (for Tremor In Hands)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Twice daily
Advice & Tips: In my case, It causes trembling
Side effects: word fishing, tremor in hands, brain fog

Sep 19, 2018 (Started Jan 01, 2004)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Mild (for Overall) (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Twice daily
Advice & Tips: the side effects may be poor balance. Drink with plenty of water. That is a must.
Side effects: word fishing, tremor in hands, brain fog

Nov 23, 2009 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Moderate (for Overall) (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Twice daily
Side effects: word fishing, tremor in hands, brain fog

  • 0 helpful marks

Jan 5, 2021 (Started Jul 01, 2007)

  • Effectiveness
    Can't tell (for borderline personality disorder)
  • Side effects
    Moderate (for Overall) (urinary incontinence, nocturnal urinary incontinence)
  • Side effects
    Severe (for Nocturnal Urinary Incontinence)
  • Side effects
    Moderate (for Urinary Incontinence)
  • Adherence
    Usually
  • Burden
    Not at all hard to take

Jul 1, 2017 (Started Jul 01, 2007)

  • Effectiveness
    Moderate (for borderline personality disorder)
  • Effectiveness
    Moderate (for bipolar II disorder)
  • Side effects
    Severe (for Overall) (urinary incontinence, nocturnal urinary incontinence)
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Advice & Tips: Prevents migraine

  • 0 helpful marks

Mar 1, 2008 (Started May 20, 2006)

  • Effectiveness
    Moderate (for migraine headaches)
  • Side effects
    Mild (for Overall) (sleepiness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 200 mg Daily

  • 0 helpful marks
Last updated:
Showing 3 of 117 patient evaluations for Topiramate