What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Topamax Sprinkle Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1270 555
Epilepsy 732 410
Headaches 185 93
Fibromyalgia 122 78
Cluster headaches 116 62
Migraine 79 52

Show all 236 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 286
Moderate 389
Mild 313
None 434

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients Percentage
Weight loss 110
Decreased appetite 65
Hands tingling 65
Brain fog 61
Memory problems 61
Feet tingling 60

Show all 338 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients Percentage
50 mg twice daily 17
100 mg daily 14
100 mg twice daily 13
200 mg daily 13
200 mg twice daily 13
25 mg daily 12
50 mg daily 12
25 mg twice daily 11
150 mg twice daily 6
150 mg daily 5

See all 22 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 430
Did not seem to work 279
Doctor's advice 239
Other 115
Expense 40
Personal research 37
Course of treatment ended 32
Change in health plan coverage 12
See all 816 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients Percentage
Less than 1 month 3
1 - 6 months 3
6 months - 1 year 3
1 - 2 years 15
2 - 5 years 33
5 - 10 years 48
10 years or more 32

Stopped taking Topiramate

Duration Patients Percentage
Less than 1 month 148
1 - 6 months 214
6 months - 1 year 115
1 - 2 years 113
2 - 5 years 150
5 - 10 years 67
10 years or more 21
Adherence
Adherence Evaluations Percentage
Always 1203
Usually 150
Sometimes 24
Never taken as prescribed 45
Burden
Burden Evaluations Percentage
Very hard to take 55
Somewhat hard to take 107
A little hard to take 195
Not at all hard to take 1065
Cost per month
Cost per month Evaluations Percentage
$200+ 20
$100-199 12
$50-99 36
$25-49 106
< $25 650
Not specified 598

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients Percentage
Gabapentin (Neurontin) 17
Sumatriptan (Imitrex) 15
Lamotrigine (Lamictal) 14
Divalproex sodium (Depakote) 12
Propranolol (Inderal) 11

Show all 56 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients Percentage
Gabapentin (Neurontin) 17
Lamotrigine (Lamictal) 15
Divalproex sodium (Depakote) 14
Botulinum Toxin Type A (Botox) 10
Zonisamide (Zonegran) 8

Show all 60 treatments patients report switching to

Last updated:

119 patient evaluations for Topiramate

Dec 8, 2019 (Started Jul 01, 2013)

  • Effectiveness
    Slight (for weight loss)
  • Effectiveness
    Moderate (for mood swings)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Cost: < $25 monthly

Jul 8, 2018 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for mood swings)
  • Effectiveness
    Moderate (for weight loss)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Cost: < $25 monthly

  • 0 helpful marks

Feb 12, 2019 (Started Jul 01, 2017)

  • Effectiveness
    None (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take

Jan 15, 2019 (Started Jul 01, 2017)

  • Effectiveness
    Slight (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks

Sep 19, 2018 (Started Jan 01, 2004)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Mild (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Twice daily
Advice & Tips: the side effects may be poor balance. Drink with plenty of water. That is a must.
Side effects: word fishing, tremor in hands, brain fog

Nov 23, 2009 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Moderate (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Twice daily
Side effects: word fishing, tremor in hands, brain fog

  • 0 helpful marks
Last updated:
Showing 3 of 119 patient evaluations for Topiramate