What is Topiramate?

Category: Prescription Drugs

Most popular types: Topamax Trokendi XR Topamax Sprinkle Show all

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Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Migraine headaches 1251 540
Epilepsy 731 407
Headaches 185 90
Fibromyalgia 123 78
Cluster headaches 112 61

Show all 234 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 277
Moderate 384
Mild 310
None 423

Commonly reported side effects and conditions associated with Topiramate

Side effect Patients Percentage
Weight loss 107
Decreased appetite 62
Hands tingling 60
Memory problems 60
Brain fog 57
Feet tingling 55

Show all 333 reported side effects

Dosages

Based on patients currently taking Topiramate

Dosage Patients Percentage
100 mg daily 35
50 mg twice daily 32
100 mg twice daily 32
25 mg daily 24
25 mg twice daily 23
50 mg daily 23
200 mg daily 20
150 mg twice daily 9
200 mg twice daily 9
400 mg daily 9

See all 31 dosages

Why patients stopped taking Topiramate

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 421
Did not seem to work 276
Doctor's advice 235
Other 111
Expense 40
Personal research 36
Course of treatment ended 31
Change in health plan coverage 12
See all 802 patients who've stopped taking Topiramate

Duration

Currently taking Topiramate

Duration Patients Percentage
Less than 1 month 1
1 - 6 months 8
6 months - 1 year 34
1 - 2 years 34
2 - 5 years 89
5 - 10 years 59
10 years or more 43

Stopped taking Topiramate

Duration Patients Percentage
Less than 1 month 147
1 - 6 months 212
6 months - 1 year 112
1 - 2 years 110
2 - 5 years 146
5 - 10 years 62
10 years or more 21
Adherence
Adherence Evaluations Percentage
Always 1181
Usually 147
Sometimes 23
Never taken as prescribed 43
Burden
Burden Evaluations Percentage
Very hard to take 53
Somewhat hard to take 103
A little hard to take 193
Not at all hard to take 1045
Cost per month
Cost per month Evaluations Percentage
$200+ 20
$100-199 12
$50-99 35
$25-49 106
< $25 629
Not specified 592

What people switch to and from

Patients started taking Topiramate after stopping:

Treatment Patients Percentage
Gabapentin (Neurontin) 17
Sumatriptan (Imitrex) 14
Lamotrigine (Lamictal) 13
Divalproex sodium (Depakote) 10
Propranolol (Inderal) 10

Show all 54 treatments patients report switching from

Patients stopped taking Topiramate and switched to:

Treatment Patients Percentage
Gabapentin (Neurontin) 16
Divalproex sodium (Depakote) 15
Lamotrigine (Lamictal) 13
Botulinum Toxin Type A (Botox) 8
Amitriptyline (Elavil) 7

Show all 58 treatments patients report switching to

Last updated:

118 patient evaluations for Topiramate

Feb 12, 2019 (Started Jul 01, 2017)

  • Effectiveness
    None (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Never taken as prescribed
  • Burden
    Not at all hard to take

Jan 15, 2019 (Started Jul 01, 2017)

  • Effectiveness
    Slight (for mood swings)
  • Side effects
    Severe (hair loss)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 50 mg Twice daily

  • 0 helpful marks

Sep 19, 2018 (Started Jan 01, 2004)

  • Effectiveness
    Can't tell (for epilepsy)
  • Side effects
    Mild (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 75 mg Twice daily
Advice & Tips: the side effects may be poor balance. Drink with plenty of water. That is a must.
Side effects: word fishing, tremor in hands, brain fog

Nov 23, 2009 (Started Jan 01, 2004)

  • Effectiveness
    Slight (for epilepsy)
  • Side effects
    Moderate (tremor in hands, brain fog, word fishing)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 75 mg Twice daily
Side effects: word fishing, tremor in hands, brain fog

  • 0 helpful marks

Jul 8, 2018 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for mood swings)
  • Effectiveness
    Moderate (for weight loss)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 150 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 118 patient evaluations for Topiramate